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Fingolimod Treatment Report

Category: Prescription Drugs

Most Popular Types: Gilenya

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10 patient evaluations for Fingolimod taken for the purpose of 'MS (Multiple Sclerosis)' with a side effects rating of SevereSevereSevereSevereSevere

  • IlliniMS
    Sex: F
    Data Quality: 3 stars
    MS: 11 yrs
    Type: Relapsing-Remitting
    Relapse: Moderate
    Sensation: Mild
    Overall: Mild
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: mild
  • 12481-thumb
  • by IlliniMS
  • See IlliniMS's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 09, 2013)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 04, 2013 0.5 cap(s) Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 04, 2013
Advice & Tips
At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.
  • Icon_thumb_off 0 helpful marks
  • hjkl;'
    Sex: F
    Data Quality: 0 stars
    MS: 13 yrs
    Type: Relapsing-Remitting
    Sensation: Unreported
    Overall: Unreported
    Cognition: unreported
    Vision: unreported
    Speech: unreported
    Swallowing: unreported
    Upper limb: unreported
    Walking: unreported
  • Portrait_default_thumb
  • by hjkl;'
  • See hjkl;''s full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Apr 15, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 15, 2012 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jul 15, 2012
Advice & Tips
I took Gilenya for 16 weeks and took 4 rounds of antibiotics for 3 different problems with infections which started immediately upon starting Gilenya. Also had a flare up which required hospital stay with IV steroids. Gilenya & I did not play nicely with each other, but it may work wonders for you. I myself am going back to Tysabri.
Cost
< $25 monthly
  • Icon_thumb_on 2 helpful marks
  • moogie16
    Sex: F
    Data Quality: 2 stars
    MS: 51 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 4749-thumb
  • by moogie16
  • See moogie16's full Fingolimod history
Purposes: MS (Multiple Sclerosis) and to slow down progression (Started Mar 14, 2012)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness to slow down progression Perceived effectiveness Side Effects Adherence Burden
May 24, 2012   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 11, 2012 0.5 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 24, 2012
Advice & Tips
I am able to walk better, have better gait, less spasicity in my legs. I believe the problem is drug interaction with Synthroid. We'll soon find out.
Cost
< $25 monthly
Date
May 11, 2012
Advice & Tips
I'm not as emotional as I was on Tysabri
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • azcharli
    Sex: F
    Data Quality: 2 stars
    MS: 18 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 18196-thumb
  • by azcharli
  • See azcharli's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Dec 19, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 19, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Dec 19, 2011
Advice & Tips
After that first dose I was shuffled off to the ER with a low heart rate. After 5 trips to the ER with blood red eyes and severe pain They finally diagnosed me with optic neuritis... DUH!! Yes they do blame Gilenya and yes my eyes are damaged. The Doctor told me that the drug is out of my system but it damaged some of my eye nerves. He also told me that it's not permanent and my nerves will repair themselves. IN TIME!! Bullshit. I am now a new statistic.
Cost
$50-99 monthly
  • Icon_thumb_on 3 helpful marks
  • bbblooze
    Sex: F
    Data Quality: 0 stars
    MS: 6 yrs
    Type: Progressive Relapsing
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 23937-thumb
  • by bbblooze
  • See bbblooze's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jun 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 03, 2011 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Nov 03, 2011
Advice & Tips
Do not take this poison. The side effects are far worse than the mere MS alone!!!! I was /am still in so much pain my pain meds have tripled.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • darlinlizzie
    Sex: F
    Data Quality: 2 stars
    MS: 15 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 15802-thumb
  • by darlinlizzie
  • See darlinlizzie's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Dec 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 13, 2011   ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 18, 2011   ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 01, 2011 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 18, 2011
Advice & Tips
I am challenged as to if taking this therapy lowers my ability to fight severe resporitory conditions and malignancies.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Stillmovin
    Sex: F
    Data Quality: 2 stars
    MS: 16 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 20005-thumb
  • by Stillmovin
  • See Stillmovin's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jul 08, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 15, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 15, 2011
Advice & Tips
For me the Gilenya caused a lot of pain. My neck tends to spasm and be sore anyway this made it worse and added bad back pain. I would wake up very tight and sore. Took for 5 weeks, pain never got better. As soon as I stopped it subsided and went back to just the neck pain like before, woke up feeling so much better the first day without as much pain then the second and third day were even better. For me this was not a good experience. My doctor has another patient that has done great on it. Maybe it is just due to the fact that I have really tight muscles anyhow.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: MS (Multiple Sclerosis) (Started Feb 23, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 13, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Liver failure (acute)
Date
Jul 13, 2011
Advice & Tips
Liver issues. had to stop taking medication
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • hank2555
    Sex: M
    Data Quality: 1 star
    MS: 21 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by hank2555
  • See hank2555's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 13, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 30, 2011 4 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Swelling in legs, feet and ankles, Blood pressure raised dangerously high
Date
Jun 30, 2011
Advice & Tips
Too many adverse reactions too risky. Wish I had never taken drug!
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Lisam808
    Sex: F
    Data Quality: 2 stars
    MS: 14 yrs
    Type: Relapsing-Remitting
    Relapse: Mild
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 8178-thumb
  • by Lisam808
  • See Lisam808's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 31, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 11, 2011   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 08, 2011   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Jun 04, 2010   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Abnormal EKG (electrocardiogram), Swelling in legs, feet and ankles
Date
Apr 11, 2011
Advice & Tips
Began to give me CHF- started with swelling of face and limbs. abnormal ekg. stopped started back on Ty
Cost
< $25 monthly
  • Icon_thumb_on 4 helpful marks

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