Purpose:MS (Multiple Sclerosis)(Started May 05, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
May 30, 2012
300 mg/15 mL
every 4 weeks
?Can't tell
Severe
Always
Not at all
Date
May 30, 2012
Advice & Tips
I'll try 2nd infusion since I tested negative for rheumatoid arthritis and Lyme disease. Pain and stiffness have just decreased in time for my next infusion in June.
Purpose:MS (Multiple Sclerosis)(Started Feb 09, 2007)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Oct 18, 2011
300 mg/15 mL
Monthly
Major
Severe
Always
Not at all
Jan 16, 2009
300 mg/15 mL
Monthly
Major
None
Always
Not at all
Aug 19, 2008
300 mg/15 mL
Monthly
Moderate
None
Always
Not at all
Aug 18, 2008
300 mg/15 mL
Monthly
Moderate
None
Always
Not at all
Date
Jan 16, 2009
Advice & Tips
Give it time, and refrain from taking a lot of other prescribed drugs for pain issues, or over-the-counter treatments for other MS-related physical problems. I believe the purity of the the Tysabri should be kept intact so as not to affect the potency and effectiveness of this treatment. A positive mental attitude and the desire to overcome this illness couldn't hurt, either. I will overcome.
Cost
< $25 monthly
Date
Aug 19, 2008
Advice & Tips
No more cane, a lot less pain!
Cost
< $25 monthly
Date
Aug 18, 2008
Advice & Tips
Your Immune system needs to be typically too large to be on Tysabri, as it reduces your immune system towards the normal spectrum.
Purpose:MS (Multiple Sclerosis)(Started Aug 19, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Sep 21, 2010
300 mg/15 mL
every 4 weeks
Moderate
Severe
Always
Not at all
Side effects:
Weakness in hip, Weakness in left leg, Weakness in legs, Weakness in legs
Date
Sep 21, 2010
Advice & Tips
became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal".
Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Purpose:MS (Multiple Sclerosis)(Started Oct 15, 2008)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 20, 2010
None
Severe
Always
Not at all
Jan 11, 2010
Major
Severe
Always
A little
Side effects:
Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory
Date
Aug 20, 2010
Advice & Tips
Make sure that you have taken the new test to see if you have a chance of getting pml. I have been sick since October of 2009 with severe side effects if Tysabri. I had twenty four monthly treatments and shoul have had no more than 20 without a 6 month "vacation". From October through june of 2010 I spend most of every day in bed. I virtually have no memory of the eight months and was offered no assisatnce from Biogen or their partners it was as if I did not exist. every morning I awoke I felt blessed by GOD. I know that God healed me from the severe effects of Tysabri.
Cost
$200+ monthly
Date
Jan 11, 2010
Advice & Tips
The treatment was effective for the first 23 monthly treatments. However the treatments have lost their effectiveness. I now have every side effect attributed to PML. I would not recommend this treatment side effects to dangerous to consider and fatal.I am still alive but been extremely sick since October of 3009, I understand a tet will soon be available that will tell if you can take Tysabri by testine for the antigens. positive test dont take negative test ok.
Make sure you drink plenty of fluids. Ask your Dr. if he/she recommends taking something prior to infusion. And do try and give it three months as I did and if it truly isn't working, then stop. No drug is worth feeling horrible for.
Cost
$200+ monthly
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