Filter by: patients
Home > Evaluations from Patients who take Riluzole

Riluzole Treatment Report

Category: Prescription Drugs

Most Popular Types: Rilutek

false

Sort by: Helpfulness | Most Recent

9 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)' with a side effects rating of SevereSevereSevereSevereSevere

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 16, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 21, 2012   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 15, 2012 50 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 21, 2012
Advice & Tips
side effects outway benefits. I've become extremely fatigued in the last 30 days, in addition I believe it may be making my symptoms worse. In addition, too expensive for the possible benefit of a 2 to 3 month extension of life.
Cost
$200+ monthly
Date
May 15, 2012
Advice & Tips
In my opinion, the cost and possible side effects can out way the benefit. With my current insurance plan this drug will cost me $2,850 annually. But my dr insists I take it, and since my side effects are minimal, I will continue to take it.
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 10, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 30, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Loss of interest in food
Date
Mar 30, 2011
Advice & Tips
I feel much better since I stopped
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 12, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 05, 2010 50 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Jun 30, 2010 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 12, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tiredness
Date
Jun 30, 2010
Advice & Tips
I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 14, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 05, 2010 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Dizziness
Date
Jul 05, 2010
Advice & Tips
Severe fatigue Dizziness Possible drop in BP
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 13, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 16, 2009 50 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere SometimesSometimesSometimesSometimesSometimes A littleA littleA littleA littleA little
Oct 13, 2009 50 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
Date
Dec 16, 2009
Advice & Tips
Ao tomar esse medicamento nao tive melhoras e meu figado ficou muito ruim, TGO E TGP acima de 600
Cost
$200+ monthly
Date
Oct 13, 2009
Advice & Tips
nao faz efeito e maltrata o figado
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 08, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 04, 2009   ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Liver inflammation
Date
Feb 04, 2009
Advice & Tips
Have regular blood tests to moderate your liver function.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 02, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 24, 2008 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jul 24, 2008
Advice & Tips
tue le foie
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 01, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 02, 2008 50 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Jun 28, 2008 50 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Side effects:
Abdominal pain, Stomach pain, Nausea
Date
Jun 28, 2008
Advice & Tips
Try it because it is the only treatment at this time.
Cost
$50-99 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 15, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 16, 2007 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Nausea, Fatigue
  • Icon_thumb_off 0 helpful marks

21 additional evaluations for Riluzole are not currently shared publicly.