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Vagus Nerve Stimulation (VNS) Treatment Report

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2 patient evaluations for Vagus Nerve Stimulation (VNS) taken for the purpose of 'Epilepsy' with a side effects rating of SevereSevereSevereSevereSevere

  • Tonialpha
    Data Quality: 3 stars
    • Sex: F
    • Age: 59y
    • Duration: 46 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: None
    • Physical: None
    Surgery type: Left Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS)
    10 seizures
    1 week ago
  • 21423-thumb
  • by Tonialpha
  • See Tonialpha's full Vagus Nerve Stimulation (VNS) history
Purpose: Epilepsy (Started May 22, 2001)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 20, 2011 Weekly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Sep 15, 2000   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Swallowing difficulty (dysphagia)
Date
Oct 20, 2011
Advice & Tips
Dr. turned it off for a year and that helped. Now I am having the symptoms again.
Cost
< $25 monthly
Date
Sep 15, 2000
Advice & Tips
Initially asthma symptoms increased, used O2. I lost my ability to sing, Seizures increased, changed Epileptologist Used all ranges on machine. Changed battery. I wanted it out but seizures started to get better Now w/ low levels my seizures are better under control. Asthma is better Throat is not swollen anymore
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started May 29, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 15, 2010   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Jun 15, 2010
Advice & Tips
my experience included faulty equipment from Cyberonics (VNS manufacturer) that shocked me twice SEVERELY and would not stop....DO NOT RECIEVE THIS DEVICE. I did however receive authorization for my Michigan Medical Marijuana Permit from a very frightened Neurologist who didn't know what he was signing immediately after I had been shocked =]
  • Icon_thumb_off 0 helpful marks