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Topiramate Treatment Report

Category: Prescription Drugs

Most Popular Types: Topamax, Topamax Sprinkle, Topictal (Show all)

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11 patient evaluations for Topiramate taken for the purpose of 'Epilepsy' with a side effects rating of ModerateModerateModerateModerateModerate

  • coco72
    Data Quality: 0 stars
    • Sex: F
    • Age: 40y
    • Duration: ? yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Unreported
    • Physical: Unreported
    ? seizures
  • 36519-thumb
  • See coco72's full Topiramate history
Purpose: Epilepsy (Started Jun 19, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 19, 2011 200 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Hair loss, Spaced out
Date
Jul 19, 2011
Advice & Tips
I notice that my hair is falling out. I am very spacey. It does help control my seizures so I do take this, with the side effects.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • kack73
    Data Quality: 0 stars
    • Sex: F
    • Age: 39y
    • Duration: 25 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    0 seizures
    119 weeks ago
  • 17829-thumb
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Purpose: Epilepsy (Started Jan 01, 2000)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 13, 2010 500 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Bumps on face
  • Icon_thumb_off 0 helpful marks
Purposes: Epilepsy, Increase effect of another treatment, and Migraine headaches (Started Jun 23, 2010)
Date Dosage Epilepsy Perceived effectiveness Increase effect of another treatment Perceived effectiveness Migraine headaches Perceived effectiveness Side Effects Adherence Burden
Jul 16, 2010 100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Jul 16, 2010
Advice & Tips
Take at same time each day. Works best as an "add on " treatment for other treatments, my doctor added it to Keppra when I was still having seizures and it seemed to help calm them down somewhat. One unusual side benefit of this drug is that if you want to lose weight, Toprimate is definitely one that dampens the appetite, though its not so great if you are already thin or underweight like I was....I have to remind myself to eat. Oh, and if you are prone to kidney stones, watch out....this medication can provoke you in forming more of them. An unexpected good benefit of this drug is that it seems to make me have less desire for nictoine....a good thing for someone who wants to stop smoking!
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started May 05, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 06, 2010 400 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Weight loss
Date
May 06, 2010
Advice & Tips
Talk to your doctor about the weight loss affect, appetite loss. It can be a problem. Especially if you are small to begin with.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started Jun 20, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 22, 2010 300 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Apr 22, 2010
Advice & Tips
the positive side effect of this med. is that I have lost some weight from it. But that is the only good part. I waqs on another med and gained weight because of it until my body became sick even though I was on a diet. Ever since I was put on this med about 10 months after I started having seizures after being seizure free for almost 10 years. A side effect I noticed right away with this med. was tingling in hands and feet, which even 3 years later I still get that. Itjust resurfaced about 3 weeks ago, when the last time I had them was when my dr. put me on the med. & when he upped it. He has not upped it and I don't have poor circulation. It can happen when you are walking like it did me. Of course there are the normal drowsiness,etc. But I did notice this med. does mimic the same symptoms as menopause, which I might be dealing with. My dr. that put me on this med. has hard time thinking that is true & didn't want to investigate my other symptoms I was having around the time of my seizures. Instead he just upped the med. which didn't help. Made my headaches even worse. Now I have a different dr. who is running alot of tests my other dr. didn't. I also have to investigate the fact the this med can cause a decrease in white blood cells. I don't know if that is true in my case, but it might help understand why some of my hormone levels might be coming out normal when I know there is something going on or wrong. I found that out in a book about side effects to meds. This med. currently doesn't control my seizures by itself, so I do not think it is very effctive for grand mal seizures like I have. I also have a very active life and it just doesn't fit in with my life, because I would and currently have to take more med. to try and control the seizures. That's not good for myself or my family. And my Family comes first. They rely on mom for everything.
  • Icon_thumb_off 0 helpful marks
Purposes: Bipolar Disorder and Epilepsy (Started Feb 01, 2006)
Date Dosage Bipolar Disorder Perceived effectiveness Epilepsy Perceived effectiveness Side Effects Adherence Burden
Mar 23, 2010 200 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually VeryVeryVeryVeryVery
Side effects:
Rhinitis (nasal inflammation), Memory problems
  • Icon_thumb_off 0 helpful marks
  • Hotflash
    Data Quality: 1 star
    • Sex: F
    • Age: 52y
    • Duration: 8 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Unreported
    • Physical: Unreported
    0 seizures
    156 weeks ago
  • 19465-thumb
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Purpose: Epilepsy (Started Jan 09, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 09, 2010 300 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Body Hair Loss
Date
Mar 09, 2010
Advice & Tips
All Foods will Taste Different If you Drink Colas You might switch ti Dr Pepper for awhile
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started Sep 20, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 19, 2010 200 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Memory Loss
Date
Feb 19, 2010
Advice & Tips
I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: Epilepsy (Started Dec 07, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 01, 2010   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
  • Icon_thumb_off 0 helpful marks
  • trice
    Data Quality: 2 stars
    • Sex: M
    • Age: 43y
    • Duration: 30 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: None
    • Physical: None
    Surgery type: Vagus Nerve Stimulation (VNS)
    0 seizures
    this week
  • 16081-thumb
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Purpose: Epilepsy (Started Jan 01, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 23, 2009 25 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Word fishing, Tremor in hands, Brain fog
  • Icon_thumb_off 0 helpful marks
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