Purpose:MS (Multiple Sclerosis)(Started Aug 01, 2006)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jun 29, 2010
300 mg/15 mL
Monthly
Moderate
Moderate
Always
Not at all
Side effects:
Bullous pemphigoid
Date
Jun 29, 2010
Advice & Tips
First four years uneventful. Last year developed gum ulcerations, initially diagnosed by my dentist as ANUG (acute necrotizing ulcerative gingivitis), with disseminated ulcers on my inner cheeks and gums. Referred to periodontist after failing to respond to conventional first-round treatment. Further treatment and biopsies inconclusive.
In late 2009, developed rash on scalp, ears, scrotum. Treated for eczema and other bacterial and fungal infections without effect by dermatologist.
In March 2010, rash developed on forehead and torso. Returned to dermatologist, diagnosed as allergic reaction to previous medications.
In late March, 2010, developed blistering rash on thighs, toes, forearms, shins, axillae. Tentatively diagnosed as Stephens-Johnson, with biopsy to confirm.
Biopsy instead confirmed Bullous Pemphigoid.
Purpose:MS (Multiple Sclerosis)(Started Aug 07, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 07, 2009
300 mg/15 mL
Monthly
Slight
Moderate
Always
A little
Date
Aug 07, 2009
Advice & Tips
Don't expect this treatment to work quickly. Since I've been on it I still had 3 relapses. Now that I take it regulary every month I feel ok. I mean, I take it every 1st friday of every month and by the end of the month I'm dragging again. I still get weak, sleep alot, and start slurring or stutter when I talk.
Tiredness, Allergic reaction, Itchy rash, Head pain
Date
Jul 18, 2009
Advice & Tips
The main side affect that bothers me the most is the tightening of my chest and the difficulty breathing during the infusion, also I get the chills during the flush
Cost
< $25 monthly
0 helpful marks
57 additional evaluations
for
Natalizumab
are
not currently shared publicly.
Updating results…
Moderate
0 helpful marks
1 helpful mark
