1 patient evaluation for Non-invasive Ventilator taken for the purpose of 'Fatigue' with a perceived effectiveness rating of Major

amma
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amma
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: n
I have:
ALS

See amma's full Non-invasive Ventilator history

Dec 5, 2011 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 24 hr Daily
Advice & Tips: Keep trying until you find the right mask. I wore nasal pillow during the day because I found that more comfortable and I could wear my glasses. At night I wore eaither one that covered my nose and mouth or one that covered just my nose and used a chin strap to keep my mouth closed. By changing masks I was able to prevent skin problems. Don't be afraid of going out with friends with the mask on. After a while you forget about it. Little kids may ask and I would just say it helps my breathing.

Dec 15, 2009 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 23 hr Daily
Advice & Tips: I use the nasal pillows during the day so I can wear my glasses. To give my nose a rest I use a mask at night. If I use small square band-aids on the bridge of my nose, there is less irratation

Mar 10, 2009 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 23 hr Daily
Advice & Tips: Get a battery so you can take it with you easily

Aug 25, 2008 (Started May 25, 2007)

  • Perceived effectiveness for Fasciculations: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage:

  • 1 helpful mark
Last updated:
Showing 1 of 1 patient evaluation for Non-invasive Ventilator