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Fingolimod Treatment Report

Category: Prescription Drugs

Most Popular Types: Gilenya

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See also: FTY720 (Fingolimod) Clinical Trial

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6 patient evaluations for Fingolimod taken for the purpose of 'MS (Multiple Sclerosis)' with a perceived effectiveness rating of NoneNoneNoneNoneNone

  • Mikhali
    Sex: M
    Data Quality: 2 stars
    MS: 4 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
  • 29088-thumb
  • by Mikhali
  • See Mikhali's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Aug 02, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 14, 2012 500 intl units Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 14, 2012
Advice & Tips
Only seemed to make my relapse worse. Probably bad timing.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • hjkl;'
    Sex: F
    Data Quality: 0 stars
    MS: 13 yrs
    Type: Relapsing-Remitting
    Sensation: Unreported
    Overall: Unreported
    Cognition: unreported
    Vision: unreported
    Speech: unreported
    Swallowing: unreported
    Upper limb: unreported
    Walking: unreported
  • Portrait_default_thumb
  • by hjkl;'
  • See hjkl;''s full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Apr 15, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 15, 2012 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jul 15, 2012
Advice & Tips
I took Gilenya for 16 weeks and took 4 rounds of antibiotics for 3 different problems with infections which started immediately upon starting Gilenya. Also had a flare up which required hospital stay with IV steroids. Gilenya & I did not play nicely with each other, but it may work wonders for you. I myself am going back to Tysabri.
Cost
< $25 monthly
  • Icon_thumb_on 2 helpful marks
  • CaineMan
    Sex: M
    Data Quality: 3 stars
    MS: 8 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 13282-thumb
  • by CaineMan
  • See CaineMan's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 15, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 15, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • bbblooze
    Sex: F
    Data Quality: 0 stars
    MS: 6 yrs
    Type: Progressive Relapsing
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 23937-thumb
  • by bbblooze
  • See bbblooze's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jun 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 03, 2011 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Nov 03, 2011
Advice & Tips
Do not take this poison. The side effects are far worse than the mere MS alone!!!! I was /am still in so much pain my pain meds have tripled.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • hank2555
    Sex: M
    Data Quality: 1 star
    MS: 21 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by hank2555
  • See hank2555's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 13, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 30, 2011 4 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Swelling in legs, feet and ankles, Blood pressure raised dangerously high
Date
Jun 30, 2011
Advice & Tips
Too many adverse reactions too risky. Wish I had never taken drug!
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Lisam808
    Sex: F
    Data Quality: 2 stars
    MS: 14 yrs
    Type: Relapsing-Remitting
    Relapse: Mild
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 8178-thumb
  • by Lisam808
  • See Lisam808's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 31, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 11, 2011   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 08, 2011   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Jun 04, 2010   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Abnormal EKG (electrocardiogram), Swelling in legs, feet and ankles
Date
Apr 11, 2011
Advice & Tips
Began to give me CHF- started with swelling of face and limbs. abnormal ekg. stopped started back on Ty
Cost
< $25 monthly
  • Icon_thumb_on 4 helpful marks

10 additional evaluations for Fingolimod are not currently shared publicly.