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Fingolimod Treatment Report

Category: Prescription Drugs

Most Popular Types: Gilenya

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10 patient evaluations for Fingolimod taken for the purpose of 'MS (Multiple Sclerosis)' with a perceived effectiveness rating of Can't tellCan't tellCan't tellCan't tellCan't tell

  • Stefie/MS
    Sex: F
    Data Quality: 3 stars
    MS: 23 yrs
    Mentor
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 13207-thumb
  • by Stefie/MS
  • See Stefie/MS's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Sep 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 18, 2013 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
Date
Jun 18, 2013
Advice & Tips
The above chart that I filled out was unable to be read. Just know that I have had no bad experiences with Gilenya. Since starting Gilenya I have had no exacerbations. It is a blessing to not have to stick myself anymore.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • IlliniMS
    Sex: F
    Data Quality: 3 stars
    MS: 11 yrs
    Type: Relapsing-Remitting
    Relapse: Moderate
    Sensation: Mild
    Overall: Mild
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: mild
  • 12481-thumb
  • by IlliniMS
  • See IlliniMS's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 09, 2013)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 04, 2013 0.5 cap(s) Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 04, 2013
Advice & Tips
At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.
  • Icon_thumb_off 0 helpful marks
  • arthurj
    Sex: M
    Data Quality: 2 stars
    MS: 37 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 3638-thumb
  • by arthurj
  • See arthurj's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Apr 14, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 09, 2012 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • jmartell
    Sex: F
    Data Quality: 3 stars
    MS: 11 yrs
    Type: Relapsing-Remitting
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 28936-thumb
  • by jmartell
  • See jmartell's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jan 14, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 22, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 24, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_on 2 helpful marks
  • azcharli
    Sex: F
    Data Quality: 2 stars
    MS: 18 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 18196-thumb
  • by azcharli
  • See azcharli's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Dec 19, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 19, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Dec 19, 2011
Advice & Tips
After that first dose I was shuffled off to the ER with a low heart rate. After 5 trips to the ER with blood red eyes and severe pain They finally diagnosed me with optic neuritis... DUH!! Yes they do blame Gilenya and yes my eyes are damaged. The Doctor told me that the drug is out of my system but it damaged some of my eye nerves. He also told me that it's not permanent and my nerves will repair themselves. IN TIME!! Bullshit. I am now a new statistic.
Cost
$50-99 monthly
  • Icon_thumb_on 3 helpful marks
  • emgaston
    Sex: M
    Data Quality: 2 stars
    MS: 10 yrs
    Type: Relapsing-Remitting
    Sensation: None
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 33683-thumb
  • by emgaston
  • See emgaston's full Fingolimod history
Purposes: to slow down progression and MS (Multiple Sclerosis) (Started Nov 07, 2011)
Date Dosage to slow down progression Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Nov 07, 2011 0.5 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • darlinlizzie
    Sex: F
    Data Quality: 2 stars
    MS: 15 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 15802-thumb
  • by darlinlizzie
  • See darlinlizzie's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Dec 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 13, 2011   ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 18, 2011   ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 01, 2011 0.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 18, 2011
Advice & Tips
I am challenged as to if taking this therapy lowers my ability to fight severe resporitory conditions and malignancies.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Stillmovin
    Sex: F
    Data Quality: 2 stars
    MS: 16 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 20005-thumb
  • by Stillmovin
  • See Stillmovin's full Fingolimod history
Purpose: MS (Multiple Sclerosis) (Started Jul 08, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 15, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 15, 2011
Advice & Tips
For me the Gilenya caused a lot of pain. My neck tends to spasm and be sore anyway this made it worse and added bad back pain. I would wake up very tight and sore. Took for 5 weeks, pain never got better. As soon as I stopped it subsided and went back to just the neck pain like before, woke up feeling so much better the first day without as much pain then the second and third day were even better. For me this was not a good experience. My doctor has another patient that has done great on it. Maybe it is just due to the fact that I have really tight muscles anyhow.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: MS (Multiple Sclerosis) (Started Feb 23, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 13, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Liver failure (acute)
Date
Jul 13, 2011
Advice & Tips
Liver issues. had to stop taking medication
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Nov 15, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 01, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_on 2 helpful marks

52 additional evaluations for Fingolimod are not currently shared publicly.