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Interferon beta-1a IM Injection Treatment Report

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15 patient evaluations for Interferon beta-1a IM Injection taken for the purpose of 'MS (Multiple Sclerosis)' with a perceived effectiveness rating of MajorMajorMajorMajorMajor

Purpose: MS (Multiple Sclerosis) (Started Jan 28, 2013)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 04, 2013 1 mcg Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 28, 2010   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Fatigue
Date
Feb 04, 2013
Advice & Tips
I am now considered SPMS (Secondary Progressive MS) because I am 60 and they have no research to show that it works once you reach that stage but they said if I FELT like it was working I could continue to take it. I walk unassisted, I talk, I drive within a 50 mile radius to the doctor, and I pay our bills and look after myself. I can't clean house and do other things but I can do that so me and my Neurologist determined that as long as I was up and moving we were not going to fix something that wasn't broke. I am getting it on a grant and don't have to pay for it and am more than a little thankful that I am still able to get it for fear I would go downhill rapidly without it. I take Benadryl after the shot and have no trouble with the flu like sysmptoms unless I forget that.
Cost
< $25 monthly
Date
Jul 28, 2010
Advice & Tips
I TAKE MY SHOT ON SUNDAY NIGHT BECAUSE I DON'T WORK. IF I WORKED IT WOULD BE FRIDAY NIGHT. THE DAY AFTER THE SHOT SOMETIMES I SLEEP A LOT AND OTHERS I AM FINE. NO UNEXPECTED BENEFITS.
Cost
$50-99 monthly
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Purpose: MS (Multiple Sclerosis) (Started Jun 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 25, 2012 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 25, 2012
Advice & Tips
I've had no new lesions since I started taking Avonex. For anyone who has been diagnosed, get on the drugs as soon as you can. I was given this advice, and I ignored it at first. It only took one relapse to change my mind.
Cost
< $25 monthly
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Purpose: MS (Multiple Sclerosis) (Started Apr 08, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 23, 2012 30 mcg Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 23, 2012
Advice & Tips
Stay with it. The benefits to me far outweigh the risk. With Avonex I have been able to continue working and feel like I am a productive adult who can care for myself. The downside: The cost is horrid , with insurance I pay for the first two months each year. this is approximately $4000 out of pocket.
Cost
$200+ monthly
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Purpose: MS (Multiple Sclerosis) (Started Apr 28, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 30, 2011 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere UsuallyUsuallyUsuallyUsuallyUsually VeryVeryVeryVeryVery
Apr 26, 2011 30 mcg/0.5 mL Weekly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Oct 25, 2010 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Apr 28, 2009 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere UsuallyUsuallyUsuallyUsuallyUsually VeryVeryVeryVeryVery
Side effects:
Dizziness, Stabbing headaches, Flu like symptoms, Generalized muscle aches, Chills/fever, Nausea, Joint pain, Shivering, Tiredness, Spasms, Body Aches
Date
May 30, 2011
Advice & Tips
Side effects need to be addressed. Doctors don't help, Biogen Idec didn't help. Unbearable, just cannot do it anymore.
Cost
< $25 monthly
Date
Apr 26, 2011
Advice & Tips
I will not be taking this much longer. I can't believe all the days of being miserably ill I have given to this medication. The makers of the drug are making bundles of money off this but they cannot offer me any means of coping with the HORRIBLE side effects.
Cost
$50-99 monthly
Date
Oct 25, 2010
Advice & Tips
Continue to have horrible side effects and NO pain medications work effectively. Have come close to overdosing to deal with the side effects which last for over 24 hours. Thinking about quiting.
Cost
$50-99 monthly
Date
Apr 28, 2009
Advice & Tips
The side effects may NEVER lessen and ibuprophen may not ever be enough. If you have these problems the medical professionals will probably do nothing to assist you in dealing with them. The drug companies will never disclose how common this problem is because that is not a selling point. If you have severe side effects DON'T try sleeping through them - it won't happen, take the injection in the morning so you can deal with it while you are awake and not lose sleep. Plan on feeling like crap for two days a week but it's better than Rebif where you feel like crap all week. I don't understand why they can prescribe something with such horrible side effects but not prescribe something to deal with the side effects?
Cost
$50-99 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: MS (Multiple Sclerosis) (Started Jul 27, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 13, 2010 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 13, 2010
Advice & Tips
Flu-like symptoms never end regardless of how long you have taken the medication
Cost
< $25 monthly
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Purpose: MS (Multiple Sclerosis) (Started Aug 25, 2002)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 23, 2010 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Date
Sep 23, 2010
Advice & Tips
i wasn't sure if it was doing anything until i recently changed neuros had an mri and he told me it was doing its job so was good to hear
Cost
$200+ monthly
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Purpose: MS (Multiple Sclerosis) (Started Jan 21, 1990)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 25, 2010 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 12, 2009 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Flu like symptoms, Chills/fever, Body Aches, Generalized muscle aches
Date
Jun 25, 2010
Advice & Tips
I have been taking Avonex since the original trials. I really believe that it has helped my MS from progressing as quickly as it would have otherwise. When I began treatment I was experiencing 2+ exacerbations per month...and since I started using Avonex, my exacerbations have been 1 (or less) per YEAR! (and that is since about 1991)
Cost
< $25 monthly
Date
Jan 12, 2009
Advice & Tips
I have been using Avonex since the original Trials...many years ago (around 1990), and have never missed a dose! I really believe it has had a LOT to do with my MS not progressing as quickly. The shots are really no big deal. And, now you can use a shorter needle! yea! After all these years, my biggest problem is trying to find new spots to inject! (Don't want to damage tissue)_
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Purpose: MS (Multiple Sclerosis) (Started Aug 14, 1996)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 18, 2009 30 mcg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Side effects:
Generalized muscle aches, Chills/fever, Flu like symptoms
Date
Aug 18, 2009
Advice & Tips
I would like to stay on Avonex, but with the liver acting up, I will stop it for now. I want to go back on it or go to an oral that doesn't effect the liver.
Cost
$25-49 monthly
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Purpose: MS (Multiple Sclerosis) (Started May 01, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 29, 2009 Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Generalized muscle aches, Body Aches, Flu like symptoms, Lethargy, Joint pain, Fever
Date
Jul 29, 2009
Advice & Tips
Side effects can be bad at the beginning and it's difficult to know whether the Avonex will even work. STICK WITH IT!! I haven't had any progression in 2 years!!!
Cost
$50-99 monthly
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Purpose: MS (Multiple Sclerosis) (Started Sep 15, 1996)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 06, 2009 30 mcg/0.5 mL Weekly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Generalized muscle aches, Chills/fever, Lethargy, Headaches, Joint pain, Headaches, Joint pain
  • Icon_thumb_off 0 helpful marks
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