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5 patient evaluations for Non-invasive Ventilator taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)' with a perceived effectiveness rating of MajorMajorMajorMajorMajor

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 10, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 28, 2011 13 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
May 28, 2011
Advice & Tips
Makes you feel better. Tilt head of bed up if air goes into stomach.
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 20, 2010 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Eye floaters, Dry mouth at night
Date
Dec 20, 2010
Advice & Tips
eyes bothering got new Nasal apparatus
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 03, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 09, 2010 24 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Pressure sore(s) (decubitus ulcers)
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 11, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 28, 2010 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Oct 26, 2009 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Oct 17, 2008 8 hr Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Bloating, Gas, Excess saliva at night, Dry mouth (xerostomia), sore nose where the mask rests, Dry throat
Date
Oct 17, 2008
Advice & Tips
may wake others when using at night
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 15, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 05, 2010 11 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 05, 2010
Advice & Tips
I wore the nose pillows mask (Liberty ) during the night time and I wore the full face mask during the day. The problem with both masks was that full face mask creates a sore on the bridge of my nose. The Liberty mask was a total pain because when I yawned at night, the nose pillows would come out of my nose. Since I could not use my hands, I had to call for help sometimes every hour into the night. A royal pain for me and my caregivers. Lack of sleep can be very exhausting. So my pulmonary doctor decided that it was time to get a vent. The main reason why is my c o 2 was getting too high. So I made the move to get to get a trach / vent. My breathing is so much better now.
  • Icon_thumb_off 0 helpful marks

7 additional evaluations for Non-invasive Ventilator are not currently shared publicly.