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Riluzole Treatment Report

Category: Prescription Drugs

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16 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)' with a perceived effectiveness rating of NoneNoneNoneNoneNone

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 16, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 28, 2012 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 11, 2011 100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 11, 2011
Advice & Tips
It made my fasciculations become noticeably less severe.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 16, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 21, 2012   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 15, 2012 50 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 21, 2012
Advice & Tips
side effects outway benefits. I've become extremely fatigued in the last 30 days, in addition I believe it may be making my symptoms worse. In addition, too expensive for the possible benefit of a 2 to 3 month extension of life.
Cost
$200+ monthly
Date
May 15, 2012
Advice & Tips
In my opinion, the cost and possible side effects can out way the benefit. With my current insurance plan this drug will cost me $2,850 annually. But my dr insists I take it, and since my side effects are minimal, I will continue to take it.
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 27, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 05, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 04, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 27, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 10, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 30, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Loss of interest in food
Date
Mar 30, 2011
Advice & Tips
I feel much better since I stopped
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 08, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 02, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
Jan 08, 2009 100 mg Daily ?Can't tell NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Date
Mar 02, 2011
Advice & Tips
Discontinued as progression increased
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 01, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 03, 2011 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 05, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 11, 2010 50 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild NeverNeverNeverNeverNever A littleA littleA littleA littleA little
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jul 14, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 12, 2010 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 02, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Sep 02, 2010
Advice & Tips
The directions say to take 12 hours apart and either 1 hour before or 2 hours after eating. This is easy in the morning because my husband brings the pill and some water to me at 6:00 a.m., and I don't get up until after 8 a.m. usually. It's harder to schedule my meals in the evening, however, so I take it again at 5:00 p.m. if I'm already hungry then, or at 6:00 p.m., but sometimes I've eaten just before or after taking the evening dose. I don't know if this really matters or not.
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 07, 2010 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Nausea and vomiting
Date
May 07, 2010
Advice & Tips
The side effects for the first two months were pretty bad.I had trouble keeping any food down in the mornings and I got really dizzy at times. then the side effects eased off about 85% and I am doing better.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
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