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Carbidopa-Levodopa Treatment Report

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23 patient evaluations for Carbidopa-Levodopa taken for the purpose of 'Parkinson's Disease' with a perceived effectiveness rating of ModerateModerateModerateModerateModerate

Purpose: Parkinson's Disease (Started Jul 27, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 18, 2013 As needed Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Dyskinesia
Date
Apr 18, 2013
Advice & Tips
This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Sep 16, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 26, 2013 75 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Sep 23, 2012 75 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Mar 22, 2012 75 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Dec 10, 2011 75 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Nov 22, 2011 75 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Nov 04, 2011 75 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Sep 23, 2012
Advice & Tips
Timing is important as wearing off can impact on a whole day's activities. I very gradually add a little more time between doses so that I can quickly revert to previous timing. I seem to have more frequent, pronounced & longer lasting tremor. I have also started 'feezing' during walkng as well as at the start & during turning. I am slowing right down, stiff & sore joints & consequent fatigue.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Nov 15, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 18, 2013 6 x 25 mg-250 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
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Purpose: Parkinson's Disease (Started Aug 19, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 29, 2012 3 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Aug 19, 2011 3 x 25 mg-100 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate SometimesSometimesSometimesSometimesSometimes Not at allNot at allNot at allNot at allNot at all
Side effects:
Fatigue
Date
May 29, 2012
Advice & Tips
For me, 2 Levodopa/carbidopa 25/100 pills take around an hour to provide improvement. In the meantime, it has a strong sedative effect. When it kicks in, I can walk normally, with normal arm swing. It's wonderful. I haven't timed the "on" period, but I plan to do this. The medication does not wear off gradually, but suddenly: one normal stride followed by a return to stiff, PD shuffle as I walk down a street. I'm warned that the medication is about to go because my neck muscles get a crawly feeling.
Cost
< $25 monthly
Date
Aug 19, 2011
Advice & Tips
I resist taking my generic carbidopa/levodopa because about 45 minutes later a wave of extreme fatigue strikes which usually results in my going to sleep for an hour. I'd rather deal with the stiffness in walking. I'm thinking of shelling out the big bucks for Sinemet to see if it has the same effect.
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Purpose: Parkinson's Disease (Started Nov 23, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 15, 2012 4.5 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Date
May 15, 2012
Advice & Tips
I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Aug 31, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 02, 2012 3 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Aug 23, 2011 3 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Excessive daytime sleepiness (somnolence)
Date
Aug 23, 2011
Advice & Tips
When I first started this 11 months ago, I felt so light and free on my feet. Much easier to type. Much more effective than Mirapex which made me tired). Then, I started getting more rigid, so the Dr increased the dose from from 1 tab 3x a day to 1.5 tabs 3x a day. I developed dyskenisia immediatley. Very disappointed, but he said i was very sensitive to it and that is also good. So, I dropped back to 1 tab 3x a day with the addition of amantadine 100mg 2x a day. I may experiment with 1.25tabs dosage to try to get the max. Dr said increasing the amantadine may contribute to insomnia.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Nov 12, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 11, 2012 6 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Feb 11, 2012
Advice & Tips
Separate, by one hour, protein intake from treatment. Doing this separation, I'm told, assures the strongest possible impact of the treatment. My experience supports this.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Oct 28, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 07, 2012 2.5 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Parkinson's Disease (Started Jul 07, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 08, 2011   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Apr 08, 2011
Advice & Tips
I was unable to take a full dose of the regular carb/levo 25/100 tablets, so this was a great alternative. I was expecting it to fizz on my tongue and disappear, but instead it just sits there and you have to swallow as it slowly dissolves.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Nov 19, 2001)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 25, 2011 4 x 25 mg-250 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 25, 2011
Advice & Tips
Do not stop taking your meds without Drs approval I felt like I was getting dyskenesia froim the med
Cost
< $25 monthly
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