Purpose:Systemic Lupus Erythematosus(Started May 01, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jul 07, 2012
200 mg
Daily
Moderate
Mild
Always
Not at all
Apr 19, 2012
?Can't tell
Mild
Always
Not at all
Date
Jul 07, 2012
Advice & Tips
After a few months of break from this drug, my new rheumatologist wants me back on it. So far, no side effects like last time.
Date
Apr 19, 2012
Advice & Tips
I started taking hydroxychloroquine as soon as I was diagnosed with lupus. I had a lesion on my nose (a white bump) that disappeared after a month of taking the drug (the bump had been there for over a year). I had hives when I started the drug (dosage 200mg) and my doctor told me to take the drug every other day until my body got used to it. Once the hives ended, I started taking it everyday, and after a year, my dosage was increased to 400 mg. At the highest, I took 600mg, but only for 6 months, and the dosage was decreased again to 400 mg, which I took for 3 years. I just stopped the drug 2 weeks ago on my own, cold-turkey, and have had no adverse reactions. If anything, I feel and look healthier than I have in years.
Purpose:Systemic Lupus Erythematosus(Started Aug 25, 2006)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Mar 31, 2012
400 mg
Daily
Moderate
None
Always
Not at all
Date
Mar 31, 2012
Advice & Tips
I have had a consistently low white blood count my entire life. After taking plaquenil, my count began to normalize.
I find having an alarm set right before bed time and never moving my pills from my end-table keeps me on track.
Purpose:Systemic Lupus Erythematosus(Started Aug 20, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Sep 17, 2009
200 mg
Daily
Moderate
Moderate
Always
Not at all
Side effects:
Gas, Stomach pain, Hair loss
Date
Sep 17, 2009
Advice & Tips
Plaquenil - when I first started it, it was very efiicacious. but did also have immediate side effects of stomach upset, gas, and hair loss. I have decided that the benefits outway the side effects and so am still taking it (200 mg twice a day). my doc did initial blood tests, and also warned me to get eye exams regularaly.
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