9 patient evaluations for Topiramate taken for the purpose of 'Epilepsy' with a perceived effectiveness rating of Major

carlo
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carlo
Data Quality: 3 stars
  • Sex: M
  • Age: 71y
  • Duration: 39 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
0 seizures
1 week ago
I am: n
I have:
Epilepsy

See carlo's full Topiramate history

Jul 28, 2013 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: take as directed. no seizures.
Cost: < $25 monthly

Apr 13, 2010 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: none
Cost: < $25 monthly

Mar 11, 2010 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: no seizures for the past 11 months.
Cost: < $25 monthly

Nov 19, 2009 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: it really worked for me. reduced my seizures to a few per yr.
Cost: < $25 monthly

  • 1 helpful mark
Madeline Belet
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Madeline Belet
Data Quality: 2 stars
  • Sex: F
  • Age: 45y
  • Duration: 33 yrs
Quality of Life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
75 weeks ago
I am: g
I have:
Epilepsy

See Madeline Belet's full Topiramate history

Jun 6, 2013 (Started Jan 15, 2013)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Advice & Tips: I have been on seizure control meds all my life, this is the first one that actually helped me lose weight instead of gain it. I'm not on very much Topamax, and the rumor I heard/read was that people using it gave it the name Dopamax. I'm a writer and artist. I depend on my brain, needing it to work properly so I can have a happy and functioning life. I take my 3 pills all at once, 75 mg, at night before bed so I can write during the day. It was the only way I could do it. I still feel sleepy at times but I don't feel dopey... but I'm not on a lot either. The other thing I'd say is to be prepared for an entourage of strange sensory changes and sensitivities. I see in HD, as I like to put it, experience De Javu' all the time now, see titles on book come off the cover as though I'm wearing 3D glasses all the time, I taste smell and taste certain things at certain times of the day like burning fabric or the smell of metals like iron. I also cough for no reason and I am sneezing all the time now and it's not allergies... of which I don't have any. Should you take this med, I'd say take lots of notes, start slow, and keep the communication lines very open with your doctor.

  • 0 helpful marks
Bombsyki
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Bombsyki
Sex: F
Data Quality: 1 star
Depression: 1
Mania: 0
Emotional: 1
Anxiety: 1
Compulsion: 1
External Stress: Moderate
28 F
Function: High
Distress: Low
I am: b
I have:
Major Depressive Disorder

See Bombsyki's full Topiramate history

Aug 19, 2012 (Started Feb 13, 2003)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 500 mg Daily
Cost: < $25 monthly

Apr 27, 2012 (Started Feb 13, 2003)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 500 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
shell052169
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shell052169
Data Quality: 2 stars
  • Sex: M
  • Age: 45y
  • Duration: 34 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
2 weeks ago
I am: n
I have:
Epilepsy

See shell052169's full Topiramate history

Jun 17, 2012 (Started Mar 07, 2007)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Cost: < $25 monthly

Aug 25, 2010 (Started Mar 07, 2007)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 200 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
Mrpag13
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Mrpag13
Data Quality: 1 star
  • Sex: M
  • Age: 26y
  • Duration: 17 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: None
0 seizures
158 weeks ago
I have:
Epilepsy

See Mrpag13's full Topiramate history

Jan 13, 2011 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

Dec 20, 2010 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

Dec 13, 2010 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

Jun 10, 2010 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

Mar 22, 2010 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

Mar 17, 2010 (Started Dec 21, 2009)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Hands Tingling, Feet Tingling, Sleepiness, Weight loss, Erectile dysfunction, Erectile dysfunction

  • 0 helpful marks
pjoy17
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pjoy17
Data Quality: 0 stars
  • Sex: F
  • Age: 57y
  • Duration: 52 yrs
Quality of Life:
  • Mental: None
  • Physical: None
6 seizures
230 weeks ago
I am: g
I have:
Epilepsy

See pjoy17's full Topiramate history

Jun 24, 2010 (Started Jan 19, 2010)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: I am sleeping so much better than I have ever slept in my life ! I workout better getting better muscle tone, am happier!
Cost: $200+ monthly

  • 1 helpful mark
Joli
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Joli
Data Quality: 1 star
  • Sex: F
  • Age: 32y
  • Duration: 5 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
194 weeks ago
I have:
Epilepsy

See Joli's full Topiramate history

May 24, 2010 (Started Dec 14, 2008)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: To be on this medicine is a god send for myself.... I have not had a seizure in a year.... I also changed many things in my life though. You do have to take it the way your doctor tells you too. If you party a lot you need to " tone it down" for the sake of your health. Topamax honestly has made it easier for me live my life w/o having to worry about having another seizure... Granted you have to live your life a bit more stress free.. Being that STRESS also causes seizures.... Chaos... The mind can only take so much... Eat healthy.. Excercise to the best of your ability. :0) I was on a bunch of meds that made me very dopey at one time... The docs and I narrowed it down to this one, and it's been doing the job. Yes there are a few side effects but nothing like a siezure.... I get the tingles through my hands... I tend to forget things at times... But then I'm right back on track! These are chances you take to become better.... So good luck to all! hope I was of help!
Side effects: Numbness and Tingling, Slurred speech, Burning sensation

  • 0 helpful marks
literature lover
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literature lover
Data Quality: 0 stars
  • Sex: F
  • Age: 44y
  • Duration: 8 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
244 weeks ago
I have:
Epilepsy

See literature lover's full Topiramate history

Feb 19, 2010 (Started Sep 20, 2006)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 200 mg Daily
Advice & Tips: I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost: < $25 monthly
Side effects: Memory Loss

  • 1 helpful mark
freckleface53
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freckleface53
Data Quality: 0 stars
  • Sex: F
  • Age: 61
Condition: 11 additional condition(s)
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: b

See freckleface53's full Topiramate history

Dec 22, 2008 (Started Apr 06, 2001)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: If this medicine is going to help you, take it.

  • 0 helpful marks
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Showing 9 of 9 patient evaluations for Topiramate