8 patient evaluations for Naltrexone taken for the purpose of 'Multiple Sclerosis' with a perceived effectiveness rating of Major

CURLYWINGS
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CURLYWINGS
Sex: M
Data Quality: 3 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See CURLYWINGS's full Naltrexone history

Jun 1, 2013 (Started Jun 01, 2013)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.4 mg Daily
Advice & Tips: I take it in liquid form. Pill form is also available. My speech has improved. No more slurring or mumbling. Bladder has shown significant improvement. Bowel has shown improvement. Stamina is much better. This drug works for me and makes the other drugs work better. Not an approved MS drug by my doctor or the hospital (Mellon Center)
Cost: < $25 monthly

  • 2 helpful marks
slowrambler
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slowrambler
Sex: M
Data Quality: 1 star
Relapse: Moderate
Sensation: Severe
Overall: Mild
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: severe
I am: g
I have:
MS

See slowrambler's full Naltrexone history

Sep 7, 2012 (Started Sep 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: This medication's given me some very un-expected increase in heat tolerance.
Cost: $50-99 monthly

Feb 9, 2009 (Started Sep 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: $50-99 monthly

Sep 7, 2008 (Started Sep 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: This medication is FDA approved for MS in "compounded" form only. If an MS patient can obtain a prescription for this medication (many neurologists won't consider writing a script for this), they'll need to have access to a "compounding" pharmacy. As with all medications, success rates appear to vary. Many people who I know that are using LDN have realized dramatic, if not astonishing symptomatic relief in addition to less disease activity. Some that I know tried it for a period of time without any noticible relief or change & thus stopped using it. Success rates have seemed to depend on dosage level, at least from my observations. Some using LDN notice change almost immediately at the lower dosage levels. Others, as noted above, realize no change at any dosage level. Personally, the symptom relief that I've noticed most is an increase in heat tolerance. As far as my overall success rate, I'd say this medication has done very well in slowing the progression. I've gone over 15 months without having an exacerbation or needing IV solu-medrol. 11 of those months have been since I began using LDN, & I'm not using highest dosage. Maintaining my mobility level & being essentially symptom free for this period of time is very unusual (& quite pleasant!) for me; especially over the last 3 yrs. Note: neurologists/MS specialists might recommend a dormant period of time between stopping a current medication (Beta-Seron, Avonex, etc.) & the beginning of LDN use.
Cost: $50-99 monthly

  • 3 helpful marks
stevo450
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stevo450
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: vg
I have:
MS

See stevo450's full Naltrexone history

Apr 29, 2011 (Started Jun 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Monthly
Advice & Tips: LDN - Naltrexone has helped me with Fatigue problems and slowing down the progression in Multiple Sclerosis
Cost: < $25 monthly

May 31, 2010 (Started Jun 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Monthly
Advice & Tips: I take it in liquid form
Cost: < $25 monthly

Apr 4, 2010 (Started Jun 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Monthly
Advice & Tips: GREAT i take 1ml per night, major FATIGUE problems have gone !!!
Cost: < $25 monthly

Mar 4, 2010 (Started Jun 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Monthly
Advice & Tips: It has helped me with the MAJOR fatigue problems i did have before !!! Now since using LDN for nearly two years and one of the first males to try this drug in Australia for M.S, i no longer have these fatigue problems WOW !!! please send me a email before you try this drug and i can explain how i take it.
Cost: < $25 monthly

Jun 8, 2008 (Started Jun 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Monthly
Cost: < $25 monthly

  • 11 helpful marks
Maxime
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Maxime
Sex: F
Data Quality: 0 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: vg
I have:
MS

See Maxime's full Naltrexone history

Mar 10, 2011 (Started Jun 18, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: I have my life back, thanks to LDN. I strongly recommend this treatment, it works great for me and I never regretted starting it.
Cost: $25-49 monthly

  • 1 helpful mark
tiggermomma
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tiggermomma
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See tiggermomma's full Naltrexone history

Oct 12, 2010 (Started Oct 12, 2010)

  • Perceived effectiveness for Improve mobility: Moderate
  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for Fatigue: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: If you have MS this medication has done wonders for me look into LDN take charge of your life and MS
Cost: $25-49 monthly

  • 0 helpful marks
Tati
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Tati
Sex: F
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: mild
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See Tati's full Naltrexone history

Aug 29, 2010 (Started Aug 18, 2010)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for Fatigue: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1.3 mg Daily
Advice & Tips: I would Like to share how much LDN has help me , I use to be sleeping 5 to 6 times a day I never got enough sleep and after taking LDN I only sleep at bedtime and enjoy the day, I have no pain what so ever anymore, when my feet start hurting from walking to much cause sometimes I dont realize how much energy I get lol but the LDN takes my pain away, I'M So more focused , My memory is not a fog, It's just been so good to find something like this. It's just one pill before bedtime and feel the affects the next day thats all...
Cost: $25-49 monthly
Side effects: Vivid dreams

  • 1 helpful mark
jmscout
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jmscout
Sex: F
Data Quality: 0 stars
Sensation: None
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See jmscout's full Naltrexone history

Sep 15, 2008 (Started Apr 25, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: Daily
Cost: $50-99 monthly

  • 0 helpful marks
feathers4me
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feathers4me
Sex: F
Data Quality: 0 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: severe
I have:
MS

See feathers4me's full Naltrexone history

Aug 18, 2008 (Started Mar 28, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: take between 9pm and 3 am must be made at a compounding pharamcy
Cost: $25-49 monthly

  • 0 helpful marks
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Showing 8 of 8 patient evaluations for Naltrexone