This medication's given me some very un-expected increase in heat tolerance.
Cost
$50-99 monthly
Date
Sep 07, 2008
Advice & Tips
This medication is FDA approved for MS in "compounded" form only. If an MS patient can obtain a prescription for this medication (many neurologists won't consider writing a script for this), they'll need to have access to a "compounding" pharmacy. As with all medications, success rates appear to vary. Many people who I know that are using LDN have realized dramatic, if not astonishing symptomatic relief in addition to less disease activity. Some that I know tried it for a period of time without any noticible relief or change & thus stopped using it. Success rates have seemed to depend on dosage level, at least from my observations. Some using LDN notice change almost immediately at the lower dosage levels. Others, as noted above, realize no change at any dosage level. Personally, the symptom relief that I've noticed most is an increase in heat tolerance. As far as my overall success rate, I'd say this medication has done very well in slowing the progression. I've gone over 15 months without having an exacerbation or needing IV solu-medrol. 11 of those months have been since I began using LDN, & I'm not using highest dosage. Maintaining my mobility level & being essentially symptom free for this period of time is very unusual (& quite pleasant!) for me; especially over the last 3 yrs. Note: neurologists/MS specialists might recommend a dormant period of time between stopping a current medication (Beta-Seron, Avonex, etc.) & the beginning of LDN use.
Purpose:MS (Multiple Sclerosis)(Started Jun 06, 2008)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Apr 29, 2011
50 mg
Monthly
Major
None
Always
Not at all
May 31, 2010
50 mg
Monthly
Major
None
Always
Not at all
Apr 04, 2010
50 mg
Monthly
Major
None
Always
Not at all
Mar 04, 2010
50 mg
Monthly
Major
None
Always
Not at all
Jun 08, 2008
50 mg
Monthly
Major
None
Always
Not at all
Date
Apr 29, 2011
Advice & Tips
LDN - Naltrexone has helped me with Fatigue problems and slowing down the progression in Multiple Sclerosis
Cost
< $25 monthly
Date
May 31, 2010
Advice & Tips
I take it in liquid form
Cost
< $25 monthly
Date
Apr 04, 2010
Advice & Tips
GREAT i take 1ml per night, major FATIGUE problems have gone !!!
Cost
< $25 monthly
Date
Mar 04, 2010
Advice & Tips
It has helped me with the MAJOR fatigue problems i did have before !!! Now since using LDN for nearly two years and one of the first males to try this drug in Australia for M.S, i no longer have these fatigue problems WOW !!! please send me a email before you try this drug and i can explain how i take it.
Purposes:General health, MS (Multiple Sclerosis), and Fatigue(Started Aug 18, 2010)
Date
Dosage
General health
Perceived effectiveness
MS (Multiple Sclerosis)
Perceived effectiveness
Fatigue
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 29, 2010
1.3 mg
Daily
Side effects:
Vivid dreams
Date
Aug 29, 2010
Advice & Tips
I would Like to share how much LDN has help me , I use to be sleeping 5 to 6 times a day I never got enough sleep and after taking LDN I only sleep at bedtime and enjoy the day, I have no pain what so ever anymore, when my feet start hurting from walking to much cause sometimes I dont realize how much energy I get lol but the LDN takes my pain away, I'M So more focused , My memory is not a fog, It's just been so good to find something like this. It's just one pill before bedtime and feel the affects the next day thats all...
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