Purpose:MS (Multiple Sclerosis)(Started Feb 15, 2004)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 01, 2012
2.5 mg
Daily
Moderate
Moderate
Always
A little
Sep 30, 2011
4 mg
M,W,F
Slight
Moderate
Always
Not at all
Date
Sep 30, 2011
Advice & Tips
It really seemed to help for years but we suspect that I have become sensitized to it. It was suggested that I drop my dosage to 2mg but it is very difficult to obtain here.
Purpose:MS (Multiple Sclerosis)(Started May 13, 2010)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
May 13, 2011
4.5 mg
Daily
Moderate
None
Always
Not at all
Date
May 13, 2011
Advice & Tips
since I started LDN I have noticed more and more positive benefits. No, I haven't got up and walked but my legs are so muchbetter, no spasticity, no pain, no nothing! I think because I haven't walked for so long, that will not realistically happen at all. Another very big positive is that I no longer have to wear pads to protect dribbles of urine, yes I do like to be within easy reach of a toilet but..hey.. that is also my age I'm sure. I had a wonderful 3 weeks in France with my Sister and all went superbly. I now want to go and live in Paris!!!! only joking! So I am totally hooked on LDN, why isn't everyone with MS on it?
Purposes:Support quality of life and MS (Multiple Sclerosis)(Started Jul 01, 2008)
Date
Dosage
Support quality of life
Perceived effectiveness
MS (Multiple Sclerosis)
Perceived effectiveness
Side Effects
Adherence
Burden
Jun 26, 2010
4.5 mg
Daily
Major
Moderate
None
Always
Not at all
Date
Jun 26, 2010
Advice & Tips
Began LDN as alternative to disease modifying therapies as I became uncomfortable with regular injections. Have experienced stability in disease progression since beginning LDN and found benefit to overall sense of well being.
Purpose:MS (Multiple Sclerosis)(Started Feb 23, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Apr 16, 2010
3 mg
Daily
Moderate
None
Always
Not at all
Jun 30, 2009
3 mg
Daily
?Can't tell
None
Always
A little
May 09, 2009
3 mg
Daily
Moderate
None
Usually
Not at all
Mar 12, 2009
3 mg
Daily
?Can't tell
None
Always
Not at all
Date
Apr 16, 2010
Advice & Tips
Less fatigued since beginning
Cost
$25-49 monthly
Date
Jun 30, 2009
Advice & Tips
The first 2 weeks I experienced Insomnia buts its no longer a problem. Be aware its not covered by insurance as its not been approved for treatment of MS even though its approved by the FDA in higher doses for other illnesses.
Cost
$25-49 monthly
Date
May 09, 2009
Advice & Tips
I personally would use this with or without other tx. I was no longer able to tolerate the injections and the Imuran made me very ill so even though this is not a FDA approved drug for MS it seems to be working for me.
Cost
$25-49 monthly
Date
Mar 12, 2009
Advice & Tips
caused insomnia the first week but no other problem noted. advised to take at bedtime per pharmacist.
Purpose:MS (Multiple Sclerosis)(Started Aug 15, 2008)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Apr 08, 2010
3 mg
Daily
Moderate
None
Always
Not at all
Date
Apr 08, 2010
Advice & Tips
I take a 3mg LDN capsule every evening at or after 10:00pm.
The first dose of LDN made my breathing easier (I also have COPD)
The first week of taking LDN the spacidity pain in my legs became less and less.
I began having more energy and less fatigue and an over all good feeling.
After 6 months I was able to stop using a cane when walking.
Updating results…
Moderate
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