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IlliniMS
Sex:
F
Data Quality: 3 stars
Type: Relapsing-Remitting
Relapse: Moderate
Sensation: Mild
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: mild
by
IlliniMS
See IlliniMS's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Jan 09, 2013)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Mar 04, 2013
0.5 cap(s)
Daily
? Can't tell
Severe
Always
Not at all
Date
Mar 04, 2013
Advice & Tips
At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.
arthurj
Sex:
M
Data Quality: 3 stars
Type: Relapsing-Remitting
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
by
arthurj
See arthurj's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Apr 14, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jul 09, 2012
0.5 mg
Daily
? Can't tell
None
Always
Not at all
jmartell
Sex:
F
Data Quality: 2 stars
Type: Relapsing-Remitting
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: severe
by
jmartell
See jmartell's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Jan 14, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Dec 22, 2011
0.5 mg
Daily
? Can't tell
None
Always
Not at all
Mar 24, 2011
0.5 mg
Daily
? Can't tell
None
Always
Not at all
azcharli
Sex:
F
Data Quality: 2 stars
Type: Relapsing-Remitting
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
by
azcharli
See azcharli's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Dec 19, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Dec 19, 2011
0.5 mg
Daily
? Can't tell
Severe
Always
Very
Date
Dec 19, 2011
Advice & Tips
After that first dose I was shuffled off to the ER with a low heart rate. After 5 trips to the ER with blood red eyes and severe pain They finally diagnosed me with optic neuritis... DUH!! Yes they do blame Gilenya and yes my eyes are damaged. The Doctor told me that the drug is out of my system but it damaged some of my eye nerves. He also told me that it's not permanent and my nerves will repair themselves. IN TIME!! Bullshit. I am now a new statistic.
Cost
$50-99 monthly
emgaston
Sex:
M
Data Quality: 2 stars
Type: Relapsing-Remitting
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
by
emgaston
See emgaston's full Fingolimod history
Purposes:
to slow down progression and MS (Multiple Sclerosis)
(Started Nov 07, 2011)
Date
Dosage
to slow down progression
Perceived effectiveness
MS (Multiple Sclerosis)
Perceived effectiveness
Side Effects
Adherence
Burden
Nov 07, 2011
0.5 mg
Daily
? Can't tell
? Can't tell
None
Never
Not at all
darlinlizzie
Sex:
F
Data Quality: 2 stars
Type: Relapsing-Remitting
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
by
darlinlizzie
See darlinlizzie's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Dec 01, 2010)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Oct 13, 2011
? Can't tell
Severe
Always
Not at all
Sep 18, 2011
? Can't tell
Severe
Always
Not at all
Jul 01, 2011
0.5 mg
Daily
None
Severe
Always
Not at all
Date
Sep 18, 2011
Advice & Tips
I am challenged as to if taking this therapy lowers my ability to fight severe resporitory conditions and malignancies.
Cost
< $25 monthly
Stillmovin
Sex:
F
Data Quality: 2 stars
Type: Secondary Progressive
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
by
Stillmovin
See Stillmovin's full Fingolimod history
Purpose:
MS (Multiple Sclerosis)
(Started Jul 08, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 15, 2011
0.5 mg
Daily
? Can't tell
Severe
Always
Not at all
Date
Aug 15, 2011
Advice & Tips
For me the Gilenya caused a lot of pain. My neck tends to spasm and be sore anyway this made it worse and added bad back pain. I would wake up very tight and sore. Took for 5 weeks, pain never got better. As soon as I stopped it subsided and went back to just the neck pain like before, woke up feeling so much better the first day without as much pain then the second and third day were even better. For me this was not a good experience. My doctor has another patient that has done great on it. Maybe it is just due to the fact that I have really tight muscles anyhow.
Cost
< $25 monthly
Purpose:
MS (Multiple Sclerosis)
(Started Feb 23, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jul 13, 2011
0.5 mg
Daily
? Can't tell
Severe
Always
Not at all
Side effects:
Liver failure (acute)
Date
Jul 13, 2011
Advice & Tips
Liver issues. had to stop taking medication
Cost
< $25 monthly
Purpose:
MS (Multiple Sclerosis)
(Started Nov 15, 2010)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Feb 01, 2011
0.5 mg
Daily
? Can't tell
None
Always
Not at all
47 additional evaluations
for
Fingolimod
are
not currently shared publicly.
Updating results…
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