39 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis' with a perceived effectiveness rating of Major

cyclistgirl
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cyclistgirl
Sex: F
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: mild
I have:
MS

See cyclistgirl's full Natalizumab history

Sep 28, 2013 (Started Sep 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Cognitive improvement was significant. Muscle strength was significant.
Cost: < $25 monthly

  • 0 helpful marks
angel414
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angel414
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: severe
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See angel414's full Natalizumab history

Sep 2, 2013 (Started Feb 16, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for Improve mobility: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I am totally impressed with Tysabri, I can move and function so much better. the only side effect or negative about this treatment is the JCV viris and having Blood work done more frequently. but I feel it is worth the quality of life I am having right now verse what I did have on Rebif. or nothing at all. The choice is something only you can make quality of life or quanity of life I chose quality of life right now for me.

  • 0 helpful marks
NancyBeth
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NancyBeth
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See NancyBeth's full Natalizumab history

Jul 23, 2013 (Started Jul 01, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Drink a lot of fluid before, during and after to help the medication's effectiveness. I also ask for food (with protein) to keep my energy level up. Usually the treatment facilities have fantastic food and there is no charge because your there for at least 3hours. Tysabri has been a huge benefit for me, I can't believe I waited as long as I did to start taking it.
Cost: < $25 monthly

  • 0 helpful marks
ecurra19
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ecurra19
Sex: F
Data Quality: 1 star
Relapse: Severe
Sensation: Severe
Overall: Severe
Cognition: moderate
Vision: moderate
Speech: severe
Swallowing: severe
Upper limb: severe
Walking: severe
I am: n
I have:
MS

See ecurra19's full Natalizumab history

Jul 8, 2013 (Started Dec 13, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Severe
  • Adherence: Never
  • Burden: A little
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Second JC test negative.

  • 0 helpful marks
Ollybo
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Ollybo
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I have:
MS

See Ollybo's full Natalizumab history

Jul 1, 2013 (Started Jan 10, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
wearingredshoes
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wearingredshoes
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Mild
Overall: None
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See wearingredshoes's full Natalizumab history

Jun 24, 2013 (Started Oct 16, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
gardener
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gardener
Sex: F
Data Quality: 3 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: b
I have:
MS

See gardener's full Natalizumab history

May 30, 2013 (Started Jul 13, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Taking an antihistamine the day of treatment helped a great deal with treatment day fatigue.
Cost: $25-49 monthly

  • 0 helpful marks
Jazz1982
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Jazz1982
Sex: F
Data Quality: 3 stars
Sensation: None
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I am: vg
I have:
MS

See Jazz1982's full Natalizumab history

Nov 14, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Today I have no MS symptoms :D

Aug 23, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: The pain is just getting worse from yesterday.

Jul 23, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Make the drip slower so instead of taking 1 hour, let it take 1.5 or more hours and for me, I got no side effects at all :)

Jun 26, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Quality of life gets better every month. Every time I think, no way can this month be topped, it gets hit on the head and high kicked to the side from how exponentially significant the change is :)

May 16, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I had to go in after 5 weeks due to an UTI so I was on antibiotics and that's the protocol here in Sweden. What I noticed was my body was still comfy and functioning normally, what seemed to make a difference was the speed of infusion rate. It was slower than usual and voila! Not a single side effect. Will try it again next month and see if this theory holds up.

Apr 15, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL Monthly
Advice & Tips: If you have low bp, load up on the sodium.

Mar 16, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL Monthly
Advice & Tips: It's a miracle drug.

Feb 13, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Clear head and loads of energy

Jan 11, 2012 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Energy and a big difference in mood towards the positive.

Dec 15, 2011 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I had a difficult 2 days after therapy the first 2 infusions, as in I would feel tired, some lower back pain. the 3rd infusion felt as if I had not taken anything at all and i cud go about my day normally, such a relief!

Nov 10, 2011 (Started Oct 18, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly

  • 4 helpful marks
kaykay19
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kaykay19
Sex: F
Data Quality: 1 star
Relapse: Severe
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See kaykay19's full Natalizumab history

Oct 15, 2012 (Started Jan 01, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks
baebae
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baebae
Sex: F
Data Quality: 3 stars
Relapse: Moderate
Sensation: Moderate
Overall: None
Cognition: moderate
Vision: none
Speech: mild
Swallowing: mild
Upper limb: none
Walking: none
I am: vg
I have:
MS

See baebae's full Natalizumab history

Jun 16, 2012 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I just received my 39th infusion on 6/13 (my 35th birthday) and I'm still going strong. Tysabri is still currently the best and most aggressive treatment available for me. The impact is small, only once per month for 2 hours and I love my nurse so that helps a lot. Some unexpected benefits would be that I am still doing great up to this point. I have a new neurologist as of October 2011 and she does not advise drug holidays. Her proposed approach is to consider getting infused every 8 weeks instead of every 4 weeks which equates to every other month and cuts my infusions in half to 6 per year instead of 12. This is an attempt to avoid the most dangerous side effect PML. The longer you take Tysabri, the greater your risk for developing PML if you are positive for the JC Virus which I am. For details about this, see my blog at http://didimentionmyms.blogspot.com/. 04/11/14-Today I am receiving my 62nd Tysabri infusion and I'm still going strong and relapse free, thank you Jesus!!
Cost: < $25 monthly
Side effects: Dry mouth (xerostomia), Dry eyes, Headaches, Fear of PML

May 23, 2011 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I love Tysabri. I take drug holidays to give my immune system time to bounce back per doctor advice. I seriously recommend Tysabri for anyone whose disease is on the agressive side but has a decent and strong immune system since it is very aggressive. It works for me and really adds to my quality of life.
Cost: < $25 monthly
Side effects: Dry mouth (xerostomia), Dry eyes, Headaches, Fear of PML

Jan 9, 2010 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Cost: < $25 monthly
Side effects: Dry mouth (xerostomia), Dry eyes, Headaches, Fear of PML

Nov 18, 2009 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I was on Tysabri for 18 months, now I plan to take a "drug holiday" for 6 months per doc's advice. My experience with Tysabri has been mainly positive. I hope and pray that I do well for the next 6 months. Before Tysabri, my lesions were multiplying at a fast pace. It was crazy.
Cost: < $25 monthly
Side effects: Dry mouth (xerostomia), Dry eyes, Headaches, Fear of PML

  • 3 helpful marks
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Showing 10 of 39 patient evaluations for Natalizumab