Filter by: patients

Mitoxantrone Treatment Report

Category: Prescription Drugs

Most Popular Types: Novantrone

false

See also: FCMR protocol

Sort by: Helpfulness | Most Recent

3 patient evaluations for Mitoxantrone taken for the purpose of 'MS (Multiple Sclerosis)' with a perceived effectiveness rating of MajorMajorMajorMajorMajor

  • travellover
    Sex: F
    Data Quality: 2 stars
    MS: 22 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 29261-thumb
  • See travellover's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started Apr 04, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 18, 2011 5 mg Every 3 months Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Nausea
Date
May 18, 2011
Advice & Tips
This was a miracle drug for me. It is IV chemotherapy treatment for last ditch effort in treating MS. It turned my world around to where I felt like a functioning human again. It virtually stopped my exacerbations and I was able to walk on my own for the first time in seven years. The side effects were terrible for about two weeks after treatment. Vomiting and nausea, with lots of weakness and I lost my hair. The sad thing is that you can only take so many treatments in a lifetime. Now that mine are over I am going downhi again.
  • Icon_thumb_on 1 helpful mark
Purpose: MS (Multiple Sclerosis) (Started Jul 06, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 06, 2009 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Headaches, Sick to my stomach, Tiredness, Pain, Hair loss
Date
Jan 06, 2009
Advice & Tips
You are only able to take 12 treatments in your lifetime. Every 3 months. I have had good results on this medication. Your doctor has to check your heart prior to starting and before ever treatment.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • mrsnurse
    Sex: F
    Data Quality: 3 stars
    MS: 33 yrs
    Mentor
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: None
    Cognition: moderate
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
  • 53908-thumb
  • See mrsnurse's full Mitoxantrone history
Purposes: MS (Multiple Sclerosis) and secondary progresssive M.S. (Started Mar 05, 2001)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness secondary progresssive M.S. Perceived effectiveness Side Effects Adherence Burden
Mar 05, 2002   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 15, 2001 2 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 05, 2002
Advice & Tips
While I was taking Novantrone, I had very very little side effects, maybe slight nausea once, but the benefits for outweigh any problems!! It was definately worth it!!
Date
Sep 15, 2001
Advice & Tips
I took IV Novantrone every 3 months for two years. Since that time, I have not had another exacerbation of the MS. I think if is wonderful and very thankful that I was able to take it! Now I do have a pretty normal life!! Although I had already lost my job due to cognitive difficulties caused by the MS, I wish I could have taken it at the very beginning!!
  • Icon_thumb_off 0 helpful marks

11 additional evaluations for Mitoxantrone are not currently shared publicly.