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18 patient evaluations for Deep Brain Stimulation (DBS)

Purposes: Parkinson's Disease, Improve mobility, and Tremor(s) (Started Jun 19, 2009)
Date Dosage Parkinson's Disease Perceived effectiveness Improve mobility Perceived effectiveness Tremor(s) Perceived effectiveness Side Effects Adherence Burden
Nov 10, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Apr 14, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 MildMildMildMild AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Feb 02, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Side effects:
Loss of balance
Date
Nov 10, 2010
Advice & Tips
increase mobility, no tremors at alll,filing beter
Cost
$200+ monthly
Date
Apr 14, 2010
Advice & Tips
every day i improve more, and i feel better and my motion is faster
Cost
$200+ monthly
Date
Feb 02, 2010
Advice & Tips
Personally it was me very easy to make the decision since i had the opportunity to know a patient that had been already operated and my only question to him was it is that he had to be operate again and he told me that If without doubting it one minute. also i had the opportunity to know a youth from another social stratum to which they operated very recently for the epilepsy to the day that we saw each other and it was one of people that more push myself to operate me. Regarding other benefits I consider that the benefit is to have recovered the initiative of finishing quick very fast anything that I start. What also produces certain frustration for what the last 10 years of my illness I cannot recover it in 6 months
Cost
$200+ monthly
  • Icon_thumb_on 2 helpful marks
Purpose: Parkinson's Disease (Started May 15, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 09, 2009 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 09, 2009
Advice & Tips
Allowed me to reduce my sinemet dosage 80%, eliminated agonist and amantadine, since have restarted to reduce sinemet even further. My balance and speech has declined but cannot say whether due to DBS or progession of disease as it's been 24 years since diagnosis.
  • Icon_thumb_on 2 helpful marks
Purpose: Parkinson's Disease (Started )
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 18, 2008   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Nov 17, 2008   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Nov 18, 2008
Advice & Tips
I recommend everyone who has PD to at least be evaluated by a neurologist and neurosurgeon to see if they are candidates.
Date
Nov 17, 2008
Advice & Tips
I recently had DBS in Denver, it was the best decision concerning my health I have ever made. I can now walk, my tremors are essentially gone, I now have my balance, and do not fall any more.
  • Icon_thumb_on 2 helpful marks
Purpose: Parkinson's Disease (Started Apr 10, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 18, 2009 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 11, 2009 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Nov 09, 2008 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Depressed mood
Date
Jan 11, 2009
Advice & Tips
ask lots of questions and do lots of research before the procedure and know your doctors,make sure they know you well
Cost
< $25 monthly
Date
Nov 09, 2008
Advice & Tips
Huge mobility improvements and overall increased self sufficiency
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: Depressed mood (Started Oct 31, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 31, 2008 One time Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tingling near implant, Mild pulling sensation in my neck from the wire threaded under the skin, Visual disturbances (ie seeing stars and light flashes), Speech problems
Date
Oct 31, 2008
Advice & Tips
This is still experimental. Patients must be able to recall a time free from depression, even decades ago. The surgery was very painful, and took longer to recover than I expected. Once I did, the results were apparent. Not so much for the depressed thinking, but completely eliminated the slowed thinking, lack of verbal fluency, eyesight much improved (details, colors), hearing improved-able to follow conversations, fine motor skills definitely improved. I would choose ECT over this surgery for depression if insurance would pay indefinitely. This is more an option for people who need continued ECT once a month. It doesn't replace drugs, but seems to make them more effective. The drugs seems to help more with the hopelessness, sad thinking. The implant more with the slowed down stuff.
  • Icon_thumb_on 1 helpful mark
Purpose: Parkinson's Disease (Started Apr 17, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 15, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Mar 10, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Sep 14, 2008   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Mobility decreased
Date
Mar 15, 2010
Advice & Tips
DBS is the new technology that alleviates all shaking and dykinesia and allow almost full body functionality. My DBS surgery is performed improperly. The leads were too close together, placed at a bad angle 35 degrees from the "floor" and the sutures were on top of the hardware
Cost
$200+ monthly
Date
Mar 10, 2010
Advice & Tips
Have DBS performed by a knowledgeable surgeon. It works!
Cost
$200+ monthly
Date
Sep 14, 2008
Advice & Tips
The best solution for PDers.
Cost
$200+ monthly
  • Icon_thumb_on 1 helpful mark
Purposes: Tremor(s) and Parkinson's Disease (Started Oct 08, 2008)
Date Dosage Tremor(s) Perceived effectiveness Parkinson's Disease Perceived effectiveness Side Effects Adherence Burden
Dec 21, 2010 Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Feb 16, 2010 Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Problems with focusing eyes, Excess saliva, Dependent on doctor
Date
Dec 21, 2010
Advice & Tips
no problem at all EVERY THING ; TREMORS; PHISICAL ; THINKING WORKING:DRIVING I AM FREE AGAIN 100%
Cost
$200+ monthly
Date
Feb 16, 2010
Advice & Tips
I have all ready explain this, i am more or absoluty streight, much more alert , less depresion,i am working in nano technologic and electronic, i have already practicing golf again, reading much more. beter position and beter balance out side off home i don´t know wy probabily because i tray harder. and my steps are more longer and slower. The impact was all ,to my family and me i am a more hapier person i have a new pet that it is a cokerspaniel blcak who i take hin out every day to play at a park
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: Parkinson's Disease (Started Feb 08, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 08, 2010 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: My purpose was more than jus one I had tremors in hands and legs,stiffness and dyskinesias all of which were not being helped for long by the meds they still helped but not very long so for a better quality to my day my dr. recommmend DBS. (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 29, 2010 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Oct 29, 2010
Advice & Tips
ware of was the fact that it takes time and it might seem worse before it gets better.Some of my answers to the above question are due to newness of this procedure so whatch for updates.
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
Purpose: Parkinson's Disease (Started Oct 18, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 29, 2008 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
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