Evaluations from Patients who take Ropinirole

holmesa

Sex: F

Data Quality: 2 stars

Parkinson's: 16 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: none

Arms: mild

Chest: mild

Legs: mild
by holmesa
See holmesa's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Oct 06, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 26, 2013	8 mg Daily	Major	None	Always	Not at all
Nov 25, 2012	8 mg Daily	Moderate	None	Always	A little
Sep 23, 2012	8 mg Daily	Slight	Mild	Always	Not at all
Mar 22, 2012	16 mg Daily	Major	Mild	Always	Not at all
Dec 10, 2011	16 mg Daily	Major	None	Always	Not at all
Nov 22, 2011	16 mg Daily	Major	Mild	Always	A little
Sep 28, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Aug 15, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Jun 09, 2009	12 mg Daily	Major	Mild	Always	Not at all

Side effects:: Swelling in ankles, Muscle cramps, Pain, Fatigue, Indigestion, Lack of concentration, Swelling in feet, Nausea

Date: Sep 23, 2012
Advice & Tips: I have titrated down from 16mg to 12mg to 8mg to 4mg BUT had to go back to 12mg due to pain, cramp, clawing etc however my binge eating has stopped & my ankles & feet are not swollen.
Cost: < $25 monthly

Date: Sep 28, 2011
Advice & Tips: It is the mainstay PD treatment. Lowering the dose by 25% caused cramping & tremor.
Cost: < $25 monthly

Date: Aug 15, 2011
Advice & Tips: Difficult to titrate down - possibly due to it being slow-release
Cost: < $25 monthly

1 helpful mark

Wayne Lampe

Sex: M

Data Quality: 2 stars

ALS: 7 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate
by Wayne Lampe
See Wayne Lampe's full Ropinirole history

**Purpose:** RLS (Restless Legs Syndrome) *(Started Nov 20, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 15, 2012	0.75 mg Daily	Major	None	Always	Not at all
Jan 01, 2012	0.75 mg Daily	Moderate	None	Always	Not at all

Side effects:: Daytime sleepiness

0 helpful marks

jus' me

Sex: F

Data Quality: 3 stars

Pain: Little

Fatigue: All

Sleep: All

Stiffness: None

function: None

external_stress: Little

Stickman: some
Description:F49y
CFS:?y
FM:1y Dx
by jus' me
See jus' me's full Ropinirole history

**Purposes:** RLS (Restless Legs Syndrome) and Periodic Limb Movement Disorder *(Started Jan 10, 2012)*
Date	Dosage	RLS (Restless Legs Syndrome) Perceived effectiveness	Periodic Limb Movement Disorder Perceived effectiveness	Side Effects	Adherence	Burden
Sep 01, 2012	0.25 mg Daily	None	Moderate	Moderate	Always	Not at all

Date: Sep 01, 2012
Advice & Tips: As soon as this was added I started getting more restful sleep and fairly soon after, many of my ANS symptoms went away... vertigo, dizziness, temperature dysregulation, excessive sweating, etc. They have since returned, but only when in relapse mode.
Cost: < $25 monthly

0 helpful marks

KatB

Sex: F

Data Quality: 1 star

Pain: All

Fatigue: All

Sleep: All

Stiffness: All

function: None

external_stress: None

Stickman: all
Description:F37y
CFS:19y Dx
FM:3y Dx
by KatB
See KatB's full Ropinirole history

**Purpose:** RLS (Restless Legs Syndrome) *(Started Mar 15, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 21, 2012	4 mg Daily	Moderate	None	Always	Not at all

Date: Apr 21, 2012
Advice & Tips: it helps prevent migraines
Cost: < $25 monthly

0 helpful marks

Maribeth

Data Quality: 0 stars
- Sex: Female
- Age: 66y
Condition: Narcolepsy 2 additional condition(s)
Quality of Life:
- Social: Mild
- Mental: Mild
- Physical: Mild
I am: Good
by Maribeth
See Maribeth's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Sep 12, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 18, 2011	16 mg Daily	Major	None	Always	Not at all
Mar 09, 2011	16 mg Daily	Major	Mild	Always	Not at all
Apr 08, 2010	16 mg Daily	Major	Mild	Always	Not at all
Mar 24, 2009	16 mg Daily	Major	Mild	Always	Not at all
Jan 11, 2009	16 mg Daily	Major	Mild	Always	Not at all
Nov 27, 2008	12 mg Daily	Major	Mild	Always	Not at all
Oct 26, 2008	10 mg Daily	Major	Moderate	Always	Not at all

Side effects:: Dizziness, Back pain, Tiredness, Tremor(s), Hyponatremia, Nausea, Narcolepsy

Date: Oct 18, 2011
Advice & Tips: It works for me I couldn't work without it. I was over medicated for afew weeks and had moderately severe narcolepsy!
Cost: < $25 monthly

Date: Mar 09, 2011
Advice & Tips: Just increased my dosage to work up slowly to 24mg, I can now tolerate 20mg and will increase to 22Mg for next week, I hope, I can tell the difference because my tremors had become worse in my hand, arm, and even started in my left leg, Now they have calmed down unless I get too tired. Hooray! I will add Sinemet if I really need it. but for now I can still go to work.. I take all of my Requip XL early in the AM because I can't sleep if I take it at night, It is a little unpleasant when it hits -but it lasts for me until midnight.
Cost: $100-199 monthly

Date: Apr 08, 2010
Advice & Tips: Without requip XL, I would lose my fine motor skills and would not be able to work as writing. typing, etc. would be impossible for me. Word retrieval would become impossible again. This drug is a godsend for me and no trouble to take in the early AM not at bedtime. Love it for now - even with low blood sodium levels that must be closely monitored. n
Cost: < $25 monthly

Date: Mar 24, 2009
Advice & Tips: This drug has done wonders for me. I just hope it keeps me in the condition that I am in now = a few arm and finger tremors almost seem like part of my natural self. It would be strange if they stopped. I didn't want to do any meds - just denial. I'm glad my neurologist knows the magic words to make me do what is best.
Cost: < $25 monthly

Date: Jan 11, 2009
Advice & Tips: TRY IT - IT'S REALLY BAD SIDE EFFECTS FOR ABOUT 24 HOURS WHEN YOU START OR INCREASE - BUT THEN IT'S GREAT - A STEADY FLOW OF MEDS
Cost: < $25 monthly

Date: Nov 27, 2008
Advice & Tips: I was in denial, my usual state of mind about life in general,so I did not want to take any drug. My neurologist was very patient and did not push me to do anything. I started the drug - got very sick and then improved rapidly. You never know how your body, brain will react to drugs until you try them
Cost: < $25 monthly

Date: Oct 26, 2008
Advice & Tips: It makes you sick. About 20 minutes after you take it, it feels like you got hit by a car and knocked off a cliff with lightheadedness and nausea all the way down - then on some days after that I feel so good - like I never knew that a person could feel. Be sure to be compliant with this medication. I wasn't at first - too much denial and it was horrible.

0 helpful marks

harpangel

Sex: F

Data Quality: 0 stars

PTSD

Depression: 4

Mania: 0

Emotional: 2

Anxiety: 3

Compulsion: 0

External Stress: Overwhelming

Rx Therapy

63 F

Function: Low

Distress: Moderate
by harpangel
See harpangel's full Ropinirole history

**Purpose:** Restless feeling in legs *(Started Oct 11, 1999)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 28, 2009	0.5 mg Daily	Moderate	None	Always	Not at all

Date: Sep 28, 2009
Advice & Tips: If I don't take it as scheduled the symptoms return with a vengeance!
Cost: < $25 monthly

0 helpful marks

seasea

Sex: F

Data Quality: 0 stars

Parkinson's: 5 yrs

Hoehn-Yahr 1 Type: Parkinson's disease

Mouth/throat: none

Arms: mild

Chest: none

Legs: mild
by seasea
See seasea's full Ropinirole history

**Purpose:** Other *(Started Jan 05, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 10, 2009	4 mg Daily	Slight	Mild	Always	Not at all

Side effects:: Swelling in feet, Daytime sleepiness, Lack of concentration, Swelling in ankles, Constipation, Constipation

Date: Sep 10, 2009
Advice & Tips: No impact that I can notice. My hair has started to fall out. I don't know if that is a side effect of this medication.
Cost: < $25 monthly

1 helpful mark

tlheyne

Sex: F

Data Quality: 2 stars

MS: 5 yrs

Type: Primary Progressive

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by tlheyne
See tlheyne's full Ropinirole history

**Purpose:** Restless feeling in legs *(Started Mar 11, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 28, 2009	4 mg Daily	Major	None	Usually	A little

Date: Jul 28, 2009
Advice & Tips: I take it 3 hours before I go to bed and put my legs up. If I'm late taking it, I have to stay up later and keep my legs down. If I prop them up, it delays the effect of the Requip XL. It also makes you sleepy, which is a plus. The most important things to remember are same time every day and DO NOT ELEVATE LEGS!! It helps me tremendously!!
Cost: < $25 monthly

0 helpful marks

rmabey

Sex: M

Data Quality: 1 star

Parkinson's: 7 yrs

Hoehn-Yahr 3 Type: Parkinsonism (unknown cause) On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by rmabey
See rmabey's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Nov 20, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 06, 2009	4 mg Daily	Moderate	Severe	Always	Very
Apr 28, 2009	10 mg Daily	Moderate	Moderate	Always	Somewhat

Side effects:: Swelling in feet, Swelling in ankles, Daytime sleepiness, Constipation, Eyes water (tearing)

Date: Jul 06, 2009
Advice & Tips: If you are prone to allergies and have any of the above conditions consult your Neurologist. The above side effects are listed The British Formulary which records among other things the side effects of all prescription drugs used in the United Kingdom.
Cost: < $25 monthly

0 helpful marks

Impy Ann1

Sex: F

Data Quality: 0 stars

MS: 32 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate
by Impy Ann1
See Impy Ann1's full Ropinirole history

**Purpose:** Restless feeling in legs *(Started Oct 01, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 08, 2008	1 other One time	None	None	Always	Not at all

Date: Oct 08, 2008
Advice & Tips: Not worth the time it took to take this stuff. It was free from the doctor or I would have counted it a major burden.
Cost: < $25 monthly

0 helpful marks