Purposes:Improve mobility and Parkinson's Disease(Started Jul 20, 2010)
Date
Dosage
Improve mobility
Perceived effectiveness
Parkinson's Disease
Perceived effectiveness
Side Effects
Adherence
Burden
Aug 08, 2010
4 mg/24 hr
Daily
Moderate
Moderate
None
Always
Not at all
Date
Aug 08, 2010
Advice & Tips
i take the Neupro patch to fill the gaps or off periods that i got with Stalevo 3x per day just one hour before the next Stalevo. it works. i can do more and feel lots stronger so it supports and enforces the Stalevo to work better. they work well together.
the one thing with Neupro is to know where to put the patch. it has to be a seperate place for 14 days. the first patch was 2mg but then i noticed the 4mg is bigger in size so it takes more space.
also i have found to use 3M tegaderm to cover the patch to make sure it stays to the skin. the first day it let go in the corners and i happened to be in a hospital where they put the 3M tegaderm on top of it. works like a charm and no problems of the patch letting go. it also is water protecting.
due to the cost, I change patches every other day instead of daily and still get the benefits I seek.
After 4 weeks on the new dosage my calves & feet were very swollen, but it was mostly gone by the time I saw my neuro 01/28. He commented it was probably my body adjusting to the new dosage. I am also eating more - let's see if that cuts back? :)
Cost
$200+ monthly
Date
Mar 11, 2009
Advice & Tips
It's the only dopamine agonist I can tolerate (Mirapex & Requip gave me unacceptable side effects).
Re: not adhering to the dosing schedule, I cannot afford to use a Neupro patch for just one day, so I use a patch for 2-3 days with good relief.
My only downside to Neupro is eating compulsively, but it's *much* better than either Mirapex or Requip.
Cost
$50-99 monthly
Date
Aug 27, 2008
Advice & Tips
Pray Neupro patches become available again soon in the US.
Purpose:Stiffness/Spasticity(Started Oct 01, 2007)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Mar 21, 2009
6 mg
Daily
Moderate
None
Always
Not at all
Date
Mar 21, 2009
Advice & Tips
I had been on the patch for about 3 months when the FDA took it off of the market. my dr and i agreed that because it was helping me with the rigidity in my arm and legs that i would continue using it because he had sample patches that I could use until they expired in April 2009.
i am now on Requip XL 6mg. I am starting my 3rd week on the Requip next week i will be up to 8 mg.we are hoping that it does some of the same things that the Neupro patch did for me.
Start using it, as low dosage as possible. I truly know that had I taken it early on I would not have the deterioration I have. Since using Neupro, I am 80% better in some ways, and 100% restored in other ways.
this was the drug that worked best for me. i was extremely disappointed to find that the FDA had pulled it from the market because of a manufacturing error.
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simplydolling
Sex:
F
Data Quality: 1 star
Parkinson's:
6 yrs
Hoehn-Yahr 5
Type: Inherited (genetic) Parkinson's disease
On
This medication was withdrawn by the manufacturer...if it hadn't been I would have had to stop anyway...as I delveloped a severe skin reaction to the patch. If the medication had been on a paper or silk binder, instead of the silicone...I don't think this would have been a problem.
Updating results…
Moderate
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