73 patient evaluations for Carbamazepine

Zarabtul
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Zarabtul
Data Quality: 1 star
  • Sex: M
  • Age: 35y
  • Duration: 33 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
9 seizures
150 weeks ago
I am: vg
I have:
Epilepsy

See Zarabtul's full Carbamazepine history

Feb 9, 2008 (Started Feb 08, 2008)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 100 mg Daily
Advice & Tips: It caused my throat to go totally raw and caused me to become ill within one day of taking it...
Cost: < $25 monthly
Side effects: Rashes (redness, swelling)

  • 0 helpful marks
Tegid
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Tegid
Data Quality: 1 star
  • Sex: M
  • Age: 49y
  • Duration: 14 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
1 seizure
18 weeks ago
I am: g
I have:
Epilepsy

See Tegid's full Carbamazepine history

Sep 15, 2007 (Started Jul 01, 2001)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 1600 mg Daily
Advice & Tips: I became much less lucid and had major difficulties carrying out everyday activities. I had to stop work.

Sep 15, 2006 (Started Jul 01, 2001)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 600 mg Daily
Advice & Tips: Owing to escalating food intolerances, I asked consultant if drugs could be withdrawn. They suggested I switched to Oxycarbazepine.

  • 0 helpful marks
philkatie
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philkatie
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See philkatie's full Carbamazepine history

Jun 10, 2006 (Started Jun 20, 2006)

  • Perceived effectiveness for Trigeminal Neuralgia: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little

  • 0 helpful marks
Ramilla
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Ramilla
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: moderate
Vision: none
Speech: none
Swallowing: mild
Upper limb: none
Walking: none
I am: g
I have:
MS

See Ramilla's full Carbamazepine history

Nov 10, 2005 (Started Oct 03, 2005)

  • Perceived effectiveness for Muscle spasms: Major
  • Side Effects: Moderate
  • Adherence: Sometimes
  • Burden: Somewhat
Dosage: 50 mg Daily
Advice & Tips: I started taking this as a treatment for Muscle Spazms on the whole right side of my body during my second MS attack. It worked almost with the first dose, within a week I was no longer having Muscle Spazms at all, and within 3 weeks I was able to wean the dose down to half tab a day, then I discontinued completely. I now keep a bottle handy in case I have another attack, but so far I have not needed it.
Cost: $25-49 monthly
Side effects: Brain fog

  • 0 helpful marks
tootse
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tootse
Data Quality: 0 stars
  • Sex: F
  • Age: 49y
  • Duration: 34 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
5 seizures
141 weeks ago
I am: g
I have:
Epilepsy

See tootse's full Carbamazepine history

May 14, 2005 (Started Jul 29, 1999)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 600 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
JesswithMS
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JesswithMS
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See JesswithMS's full Carbamazepine history

Apr 30, 2003 (Started Feb 02, 2002)

  • Perceived effectiveness for Nerve pain (neuralgia): Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 800 mg Daily
Advice & Tips: Take medication as prescribed. If you need to stop medication make sure you wean yourself off of the drug according to your doctor due to causing very severe side effects including seizures.
Cost: < $25 monthly
Side effects: Increased appetite, Mood swings, Dizziness

  • 0 helpful marks
Stormborn
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Stormborn
Data Quality: 1 star
  • Sex: M
  • Age: 34y
  • Duration: 33 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
150 weeks ago
I am: vb
I have:
Epilepsy

See Stormborn's full Carbamazepine history

Jun 15, 2002 (Started Nov 15, 2001)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 400 mg Daily

  • 0 helpful marks
thegizzard
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thegizzard
Data Quality: 1 star
  • Sex: F
  • Age: 59y
  • Duration: 33 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
194 weeks ago
I am: n
I have:
Epilepsy

See thegizzard's full Carbamazepine history

May 10, 2001 (Started Jan 01, 1982)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: It worked very well for a long time. At my request, under my doctor's care, I stopped taking it to see if I could do without medicine for my epilepsy. I could not. He put me back on the tegretol, but I became toxic on it at any dose.
Cost: < $25 monthly

  • 0 helpful marks
TomR
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TomR
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See TomR's full Carbamazepine history

Feb 1, 1999 (Started Apr 01, 1994)

  • Perceived effectiveness for Other: Moderate
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: A little
Side effects: Hiccups (hiccoughs)

Mar 1, 1994 (Started Apr 01, 1994)

  • Perceived effectiveness for Other: Moderate
  • Side Effects: Moderate
  • Adherence: Sometimes
  • Burden: Not at all
Side effects: Hiccups (hiccoughs)

  • 0 helpful marks
JJWJ
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JJWJ
Data Quality: 1 star
  • Sex: M
  • Age: 58y
  • Duration: 49 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
2 seizures
191 weeks ago
I am: g
I have:
Epilepsy

See JJWJ's full Carbamazepine history

Oct 4, 1996 (Started Apr 16, 1992)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 1200 mg Daily
Advice & Tips: 1) If you request a surgical evaluation and the doctor (in my case, Robert Gumnit, M.D.) refuses to let you out of the hospital forcing you to take more medication, get off of it if you can still think. If you cannot think another person will have to get you off of it and file a lawsuit in less than two years for you to have a chance to have a regular life again. 2) Over twenty percent of mothers I have talked with believe that "doctors know everything" and will not help their children survive. (And about 7000 deaths each year in the 1990s were due to a doctor killing a patient.) Make sure the person watching over you when you try a new medication will take action and not leave you a "zombie" (a nurse who told me I was within two days of death and my Dilantin count was up to 36.6 while getting off of Tegretol following the doctor's orders. 3) When I used over 500 mg/day of Tegretol, I could not think at all. When I got under 200 mg/day, then I regained control of my life. It was three years after my right hip shattered that I learned the Tegretol did that.
Side effects: Difficulty thinking

  • 0 helpful marks
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