Purposes:MS (Multiple Sclerosis) and Bladder problems(Started Sep 08, 2010)
Date
Dosage
MS (Multiple Sclerosis)
Efficacy
Bladder problems
Efficacy
Side Effects
Adherence
Burden
Aug 01, 2011
3000 units
Yearly
Major
Major
Moderate
Always
Somewhat
Date
Aug 01, 2011
Advice & Tips
The first few days are painful and feel like a bladder infection because of the rigid cystoscopy. The pain is worth it. My duration between Botox visits appears to be a 7-8 month timeframe.
I now have to figure out a way to pay for it since the insurance has changed but other than that it worked beautifully. I actually was getting it done every three months.
Purposes:Stiffness/Spasticity, Foot drop, and Foot Drop, Spacisity(Started Sep 30, 2009)
Date
Dosage
Stiffness/Spasticity
Efficacy
Foot drop
Efficacy
Foot Drop, Spacisity
Efficacy
Side Effects
Adherence
Burden
Mar 01, 2011
200 units
Every 3 months
Jan 26, 2011
200 units
Every 3 months
Nov 18, 2010
200 units
Every 3 months
Jul 28, 2010
200 units
Every 3 months
Apr 16, 2010
200 units
Every 3 months
Jan 07, 2010
100 mg
2 Times a Month
Date
Mar 01, 2011
Advice & Tips
the BOTOX worked for me. It really reduced the tightness and cramping in my calves and help with foot drop. I am now using AFO's to help with the foot drop and improve gait.
Date
Jan 26, 2011
Advice & Tips
Got my shot yesterday, 4 in each calf, 100 mg each leg.
Date
Nov 18, 2010
Advice & Tips
I can tell really start to tell when the three months is coming up. My calves are a lot more spastic, and I have a propensity to trip/fall more. The VA this last treatment in October. Kinda of frequed them out on how much botox I get. Previously I had been getting treatment at the Mellen Center at CCF. The cost of my care has taken me to the VA. I will see the Docs at the Mellen Center periodically.
Date
Jul 28, 2010
Advice & Tips
I had injections on 4/16/10. A little over 3 months. In the last three weeks or so I noticed increased foot drop and tripping. Falling 4 times in htat three weeks. Next treatment is scheculed for Oct 26th. Its been about 18 hours adn I see benefit already. Right calf (bad one) more jittery/crampy during shots-very bearable.
Date
Apr 16, 2010
Advice & Tips
This was my third treatment. The dosage was increased by a hundred units in each calf since the January 2010 treatment. 150left 250right. Walking was improved within a few hours.
Date
Jan 07, 2010
Advice & Tips
I was surpised how little pain the injection were. My walking was improved by the next morning.
Have to use catheters three times a day. They are portable and can be used any where but it is easy to get an infection causing pain and leakage from the bladder. Antibiotics for three days sort this out but it is a pain.
Purpose:Stiffness/Spasticity(Started Mar 10, 2009)
Date
Dosage
Efficacy
Side Effects
Adherence
Burden
Nov 01, 2009
As needed
Major
Severe
Always
Somewhat
Oct 01, 2009
As needed
Moderate
Severe
Always
Somewhat
Jun 22, 2009
As needed
Major
Mild
Always
Somewhat
Jun 11, 2009
As needed
Slight
None
Always
Somewhat
May 09, 2009
As needed
Moderate
None
Usually
Somewhat
Apr 11, 2009
As needed
Moderate
Mild
Usually
Somewhat
Mar 20, 2009
As needed
Moderate
Mild
Always
A little
Side effects:
I couldn't bear weight on my leg., Injection site burning, Pain in legs, extreme tenderness along inner thigh for about 3 weeks
Date
Oct 01, 2009
Advice & Tips
It initially was very effective but the last treatment left me unable to bear weight and extreme pain. I had to increase my muscle relaxant and am no longer taking Botox every 3 months. On Hold for now- will start again only if needed.
Cost:
$100-199 monthly
Date
Jun 22, 2009
Advice & Tips
I highly recommend this for severe rigidity and pain. It has really improved my quality of life. I will continue as long as I can afford to.
Cost:
$100-199 monthly
Date
Jun 11, 2009
Advice & Tips
I definitely think it was well worth trying. Its effectiveness lasted nearly 3 months for me so it can be costly. If I hadn't tried it I would not be able to participate in the exercise program I am in and I think I wouldn't be very active mobility wise without it. Next week I will have my injections and am really looking forward to eat as I am back to constant back pain and my gait is becoming more rigid again. I am going to request a higher dosage hoping it will relax my leg even more this round.
Cost:
$100-199 monthly
Date
May 09, 2009
Advice & Tips
This treatment is costly but definitely worth the money. It was a bit tender in the area injected for a couple weeks but other then that I was so happy with the ability to straighten my leg on my awakening in the morning without having to massage and exercise my leg. I actually was pain free in my lower back for about 6 weeks and even now have miniml discomfort.
Cost:
$50-99 monthly
Date
Apr 11, 2009
Advice & Tips
definitely worth having if you have considerable amount of rigidity and pain
Moderate
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