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34 patient evaluations for Non-invasive Ventilator

Purpose: Breathing difficulty (Started Jun 01, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 18, 2009 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
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Purpose: Breathing difficulty (Started Jun 04, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 11, 2010 24 hr All the time (24/7) Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 24, 2008 7 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 24, 2008
Advice & Tips
Don't avoid it, embrace it. It helps greatly.
Cost
$50-99 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 15, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 05, 2010 11 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 05, 2010
Advice & Tips
I wore the nose pillows mask (Liberty ) during the night time and I wore the full face mask during the day. The problem with both masks was that full face mask creates a sore on the bridge of my nose. The Liberty mask was a total pain because when I yawned at night, the nose pillows would come out of my nose. Since I could not use my hands, I had to call for help sometimes every hour into the night. A royal pain for me and my caregivers. Lack of sleep can be very exhausting. So my pulmonary doctor decided that it was time to get a vent. The main reason why is my c o 2 was getting too high. So I made the move to get to get a trach / vent. My breathing is so much better now.
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Purpose: Breathing difficulty (Started Mar 05, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 10, 2008 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Breathing difficulty (Started Mar 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 05, 2010 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Breathing difficulty (Started Jan 19, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 19, 2010 3 hr Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild SometimesSometimesSometimesSometimesSometimes A littleA littleA littleA littleA little
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Purpose: breathing support (Started Aug 05, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 22, 2009 2 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone SometimesSometimesSometimesSometimesSometimes A littleA littleA littleA littleA little
Date
Dec 22, 2009
Advice & Tips
Switched to the AVAP machine.
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Purpose: Breathing difficulty (Started Apr 22, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 27, 2009 6 hr Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
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Purpose: Breathing difficulty (Started May 01, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 09, 2008 8 hr Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Side effects:
Dry throat, Bloating, Gas, Dry mouth (xerostomia)
Date
Dec 09, 2008
Advice & Tips
for me it has ben worth geting used to it. when i use it i have more energy it sure beets sleaping all day and night
Cost
< $25 monthly
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Purpose: PLS (Primary Lateral Sclerosis) (Started Jun 28, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 10 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Sep 03, 2010
Advice & Tips
it is a little difficult to use by yourself as you get weaker and nursing staff are a litle afraid of equipment. Inservicing new personnel when you don't talk is difficult.
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