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Non-invasive Ventilator Treatment Report

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34 patient evaluations for Non-invasive Ventilator

Purpose: General health (Started Sep 27, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 22, 2013 1 hr Weekly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Date
Mar 22, 2013
Advice & Tips
I'm new to this device. I've had it for a year but I've only just started to use it on a regular basis. I try to put 3 to 4 hours into each day. I do this because at times I feel a slight breathlessness and also because my voice appears weak. It also appears to raise my energy levels.
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Nov 25, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 27, 2012 9 hr Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Dec 04, 2011 3 hr Daily ?Can't tell NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Oct 27, 2012
Advice & Tips
since my feeding tube implant, I get extreme gas and bloating in my stomach while using the BiPAP. It makes it very difficult to sleep. Additionally, I sometimes wake in the middle of the night with thick mucus. Overall however, I still believe the BiPAP to have somewhat slowed down the progression of the disease.
Cost
$50-99 monthly
Date
Dec 04, 2011
Advice & Tips
My energy levels are much improved!
Cost
$50-99 monthly
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Purposes: ALS (Amyotrophic Lateral Sclerosis) and Fatigue (Started Apr 26, 2011)
Date Dosage ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness Fatigue Perceived effectiveness Side Effects Adherence Burden
Jul 28, 2012 4 hr Daily ?Can't tell Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Jul 28, 2012
Advice & Tips
I used a bipap when I had my Supra Pubic Catheter Insertion done. I found it so beneficial for fatigue symptoms that I petitioned my consultant for a prescription despite good blood gas levels
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Purpose: Support lung health (Started Jan 30, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 29, 2012 10 hr Weekly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone SometimesSometimesSometimesSometimesSometimes SomewhatSomewhatSomewhatSomewhatSomewhat
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Purposes: Obstructive Sleep Apnea and Central Sleep Apnea (Started Oct 15, 2010)
Date Dosage Obstructive Sleep Apnea Perceived effectiveness Central Sleep Apnea Perceived effectiveness Side Effects Adherence Burden
Mar 01, 2012 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Mar 01, 2012
Advice & Tips
Use mask liner for a full face mask. See: http://www.remzzzs.com/ http://padacheek.com/ http://quietusliners.com/
Cost
$100-199 monthly
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Purposes: General health, Fatigue, Breathing difficulty, and Fasciculations (Started May 25, 2007)
Date Dosage General health Perceived effectiveness Fatigue Perceived effectiveness Breathing difficulty Perceived effectiveness Fasciculations Perceived effectiveness Side Effects Adherence Burden
Dec 05, 2011 24 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Dec 15, 2009 23 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Mar 10, 2009 23 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Aug 25, 2008 ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Dec 05, 2011
Advice & Tips
Keep trying until you find the right mask. I wore nasal pillow during the day because I found that more comfortable and I could wear my glasses. At night I wore eaither one that covered my nose and mouth or one that covered just my nose and used a chin strap to keep my mouth closed. By changing masks I was able to prevent skin problems. Don't be afraid of going out with friends with the mask on. After a while you forget about it. Little kids may ask and I would just say it helps my breathing.
Date
Dec 15, 2009
Advice & Tips
I use the nasal pillows during the day so I can wear my glasses. To give my nose a rest I use a mask at night. If I use small square band-aids on the bridge of my nose, there is less irratation
Date
Mar 10, 2009
Advice & Tips
Get a battery so you can take it with you easily
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 10, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 28, 2011 13 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
May 28, 2011
Advice & Tips
Makes you feel better. Tilt head of bed up if air goes into stomach.
Cost
< $25 monthly
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Purpose: Decreased respiratory function (Started Jan 05, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 12, 2011 16 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Dry mouth at night
Date
Feb 12, 2011
Advice & Tips
I sleep much better. I recommend starting as soon as possible.
Cost
< $25 monthly
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Purpose: HIV related neurological symptoms (Started Dec 20, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 03, 2011 6 hr Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate SometimesSometimesSometimesSometimesSometimes SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Acne breakout
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 20, 2010 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Eye floaters, Dry mouth at night
Date
Dec 20, 2010
Advice & Tips
eyes bothering got new Nasal apparatus
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