34 patient evaluations for Non-invasive Ventilator

Tommy Maker
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Tommy Maker
Sex: M
Data Quality: 3 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: b
I have:
ALS

See Tommy Maker's full Non-invasive Ventilator history

Mar 22, 2013 (Started Jan 02, 2014)

  • Perceived effectiveness for General health: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Advice & Tips: I'm new to this device. I've had it for a year but I've only just started to use it on a regular basis. I try to put 3 to 4 hours into each day. I do this because at times I feel a slight breathlessness and also because my voice appears weak. It also appears to raise my energy levels.
Cost: < $25 monthly

  • 0 helpful marks
jaws-als
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jaws-als
Sex: M
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vg
I have:
ALS

See jaws-als's full Non-invasive Ventilator history

Oct 27, 2012 (Started Nov 25, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 9 hr Daily
Advice & Tips: since my feeding tube implant, I get extreme gas and bloating in my stomach while using the BiPAP. It makes it very difficult to sleep. Additionally, I sometimes wake in the middle of the night with thick mucus. Overall however, I still believe the BiPAP to have somewhat slowed down the progression of the disease.
Cost: $50-99 monthly

Dec 4, 2011 (Started Nov 25, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 3 hr Daily
Advice & Tips: My energy levels are much improved!
Cost: $50-99 monthly

  • 0 helpful marks
Rachael
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Rachael
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: vb
I have:
ALS

See Rachael's full Non-invasive Ventilator history

Jul 28, 2012 (Started Apr 26, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Perceived effectiveness for Fatigue: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 4 hr Daily
Advice & Tips: I used a bipap when I had my Supra Pubic Catheter Insertion done. I found it so beneficial for fatigue symptoms that I petitioned my consultant for a prescription despite good blood gas levels

  • 0 helpful marks
faeroe347
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faeroe347
Sex: M
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: g
I have:
ALS

See faeroe347's full Non-invasive Ventilator history

May 29, 2012 (Started Jan 30, 2012)

  • Perceived effectiveness for Support lung health: Slight
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Somewhat
Dosage: 10 hr Weekly
Cost: $25-49 monthly

  • 0 helpful marks
JohnBFisher
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JohnBFisher
Data Quality: 1 star
  • Sex: M
  • Age: 58
Condition: Spinocerebellar Ataxia 7 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: g
I have:
Spinocerebellar Ataxia

See JohnBFisher's full Non-invasive Ventilator history

Mar 1, 2012 (Started Oct 15, 2010)

  • Perceived effectiveness for Obstructive Sleep Apnea: Major
  • Perceived effectiveness for Central Sleep Apnea: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 8 hr Daily
Advice & Tips: Use mask liner for a full face mask. See: http://www.remzzzs.com/ http://padacheek.com/ http://quietusliners.com/
Cost: $100-199 monthly

  • 0 helpful marks
amma
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amma
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: n
I have:
ALS

See amma's full Non-invasive Ventilator history

Dec 5, 2011 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 24 hr Daily
Advice & Tips: Keep trying until you find the right mask. I wore nasal pillow during the day because I found that more comfortable and I could wear my glasses. At night I wore eaither one that covered my nose and mouth or one that covered just my nose and used a chin strap to keep my mouth closed. By changing masks I was able to prevent skin problems. Don't be afraid of going out with friends with the mask on. After a while you forget about it. Little kids may ask and I would just say it helps my breathing.

Dec 15, 2009 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 23 hr Daily
Advice & Tips: I use the nasal pillows during the day so I can wear my glasses. To give my nose a rest I use a mask at night. If I use small square band-aids on the bridge of my nose, there is less irratation

Mar 10, 2009 (Started May 25, 2007)

  • Perceived effectiveness for General health: Major
  • Perceived effectiveness for Fatigue: Major
  • Perceived effectiveness for Breathing difficulty: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 23 hr Daily
Advice & Tips: Get a battery so you can take it with you easily

Aug 25, 2008 (Started May 25, 2007)

  • Perceived effectiveness for Fasciculations: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage:

  • 1 helpful mark
jeanmck
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jeanmck
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vb
I have:
ALS

See jeanmck's full Non-invasive Ventilator history

May 28, 2011 (Started May 10, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 13 hr Daily
Advice & Tips: Makes you feel better. Tilt head of bed up if air goes into stomach.
Cost: < $25 monthly

  • 1 helpful mark
moolaw
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moolaw
Sex: F
Data Quality: 0 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: b
I have:
ALS

See moolaw's full Non-invasive Ventilator history

Feb 12, 2011 (Started Jan 05, 2011)

  • Perceived effectiveness for Decreased respiratory function: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 16 hr Daily
Advice & Tips: I sleep much better. I recommend starting as soon as possible.
Cost: < $25 monthly
Side effects: Dry mouth at night

  • 0 helpful marks
Suzinmotion
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Suzinmotion
Sex: F
Data Quality: 2 stars
Mental Symptoms : mild
Physical Symptoms : mild
97
VL 201k
I am: g
I have:
HIV

See Suzinmotion 's full Non-invasive Ventilator history

Feb 3, 2011 (Started Dec 20, 2010)

  • Perceived effectiveness for HIV related neurological symptoms: Moderate
  • Side Effects: Moderate
  • Adherence: Sometimes
  • Burden: Somewhat
Dosage: 6 hr Daily
Side effects: Acne breakout

  • 0 helpful marks
Cricketjbs
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Cricketjbs
Sex: F
Data Quality: 1 star
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
I am: vb
I have:
ALS

See Cricketjbs's full Non-invasive Ventilator history

Dec 20, 2010 (Started Sep 09, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 8 hr Daily
Advice & Tips: eyes bothering got new Nasal apparatus
Side effects: Eye floaters, Dry mouth at night

  • 0 helpful marks
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Showing 10 of 34 patient evaluations for Non-invasive Ventilator