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Non-invasive Ventilator Treatment Report

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19 patient evaluations for Non-invasive Ventilator with a adherence rating of AlwaysAlwaysAlwaysAlwaysAlways

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Nov 25, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 27, 2012 9 hr Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Dec 04, 2011 3 hr Daily ?Can't tell NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Oct 27, 2012
Advice & Tips
since my feeding tube implant, I get extreme gas and bloating in my stomach while using the BiPAP. It makes it very difficult to sleep. Additionally, I sometimes wake in the middle of the night with thick mucus. Overall however, I still believe the BiPAP to have somewhat slowed down the progression of the disease.
Cost
$50-99 monthly
Date
Dec 04, 2011
Advice & Tips
My energy levels are much improved!
Cost
$50-99 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Obstructive Sleep Apnea and Central Sleep Apnea (Started Oct 15, 2010)
Date Dosage Obstructive Sleep Apnea Perceived effectiveness Central Sleep Apnea Perceived effectiveness Side Effects Adherence Burden
Mar 01, 2012 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Mar 01, 2012
Advice & Tips
Use mask liner for a full face mask. See: http://www.remzzzs.com/ http://padacheek.com/ http://quietusliners.com/
Cost
$100-199 monthly
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Purposes: General health, Fatigue, Breathing difficulty, and Fasciculations (Started May 25, 2007)
Date Dosage General health Perceived effectiveness Fatigue Perceived effectiveness Breathing difficulty Perceived effectiveness Fasciculations Perceived effectiveness Side Effects Adherence Burden
Dec 05, 2011 24 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Dec 15, 2009 23 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Mar 10, 2009 23 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Aug 25, 2008 ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Dec 05, 2011
Advice & Tips
Keep trying until you find the right mask. I wore nasal pillow during the day because I found that more comfortable and I could wear my glasses. At night I wore eaither one that covered my nose and mouth or one that covered just my nose and used a chin strap to keep my mouth closed. By changing masks I was able to prevent skin problems. Don't be afraid of going out with friends with the mask on. After a while you forget about it. Little kids may ask and I would just say it helps my breathing.
Date
Dec 15, 2009
Advice & Tips
I use the nasal pillows during the day so I can wear my glasses. To give my nose a rest I use a mask at night. If I use small square band-aids on the bridge of my nose, there is less irratation
Date
Mar 10, 2009
Advice & Tips
Get a battery so you can take it with you easily
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started May 10, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 28, 2011 13 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
May 28, 2011
Advice & Tips
Makes you feel better. Tilt head of bed up if air goes into stomach.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
Purpose: Decreased respiratory function (Started Jan 05, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 12, 2011 16 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Dry mouth at night
Date
Feb 12, 2011
Advice & Tips
I sleep much better. I recommend starting as soon as possible.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 20, 2010 8 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Eye floaters, Dry mouth at night
Date
Dec 20, 2010
Advice & Tips
eyes bothering got new Nasal apparatus
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 03, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 09, 2010 24 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Pressure sore(s) (decubitus ulcers)
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jul 28, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 15, 2010 8 hr Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 15, 2010
Advice & Tips
Greatly added to the quality of my sleep
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: PLS (Primary Lateral Sclerosis) (Started Jun 28, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 10 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Sep 03, 2010
Advice & Tips
it is a little difficult to use by yourself as you get weaker and nursing staff are a litle afraid of equipment. Inservicing new personnel when you don't talk is difficult.
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Purpose: Breathing difficulty (Started Jun 04, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 11, 2010 24 hr All the time (24/7) Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 24, 2008 7 hr Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 24, 2008
Advice & Tips
Don't avoid it, embrace it. It helps greatly.
Cost
$50-99 monthly
  • Icon_thumb_off 0 helpful marks
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