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Home > Non-invasive Ventilator Treatment Evaluations

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18 patient evaluations for Non-invasive Ventilator

  • wbear35
    Sex: M
    Data Quality: 3 stars
    ALS: 33 yrs
    Bi-Pap Wheelchair Feeding tube
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    See profile
  • wbear35
  • 2e42ecb3349bda9bed7e624b6f466271888bf2d7
ALS Amyotrophic lateral sclerosis Efficacy Side Effects Adherence Burden
Oct 17, 2008 Moderate Moderate Always A little
Oct 26, 2009 Major Mild Always A little
Jan 28, 2010 Major None Always A little
Advice/Tips Cost
Oct 17, 2008 may wake others when using at night < $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Narges Karimi
    Sex: F
    Data Quality: 3 stars
    ALS: 2 yrs
    Bi-Pap Wheelchair
    Bulbar: moderate
    Arms: mild
    Chest: moderate
    Legs: moderate
    See profile
  • Narges Karimi
    • by Narges Karimi
    • current dosage: 6 hr daily
    • time on dosage: about 1 day
    • purpose: Breathing difficulty
  • ea35a4c713cbe70093b5ea13a89ca6c27bcac18c
Breathing difficulty Efficacy Side Effects Adherence Burden
Jan 19, 2010 Slight Mild Sometimes A little
  • Icon_thumb_off 0 helpful marks
  • donhing
    Sex: M
    Data Quality: 2 stars
    ALS: 5 yrs
    Bi-Pap Wheelchair Feeding tube
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    See profile
  • donhing
    • by donhing
    • current dosage: 11 hr daily
    • time on dosage: about 8 months
    • purpose: ALS Amyotrophic lateral sclerosis
  • 7cdafd19ff36c6e4f9e8cdc86ad121ecfdedd440
ALS Amyotrophic lateral sclerosis Efficacy Side Effects Adherence Burden
Jan 05, 2010 Major Moderate Always Not at all
Advice/Tips Cost
Jan 05, 2010 I wore the nose pillows mask (Liberty ) during the night time and I wore the full face mask during the day. The problem with both masks was that full face mask creates a sore on the bridge of my nose. The Liberty mask was a total pain because when I yawned at night, the nose pillows would come out of my nose. Since I could not use my hands, I had to call for help sometimes every hour into the night. A royal pain for me and my caregivers. Lack of sleep can be very exhausting. So my pulmonary doctor decided that it was time to get a vent. The main reason why is my c o 2 was getting too high. So I made the move to get to get a trach / vent. My breathing is so much better now. monthly
  • Icon_thumb_off 0 helpful marks
  • flyfish2
    Sex: M
    Data Quality: 1 star
    ALS: 3 yrs
    Bi-Pap
    Bulbar: none
    Arms: none
    Chest: moderate
    Legs: moderate
    See profile
  • flyfish2
    • by flyfish2
    • current dosage: daily
    • time on dosage: about 1 year
    • purpose: Breathing difficulty
  • 3a817535b47e6b490e475146bfa5668441ec32ad
Breathing difficulty Efficacy Side Effects Adherence Burden
Jan 05, 2010 Major None Always Not at all
  • Icon_thumb_off 0 helpful marks
  • mesquite master
    Sex: M
    Data Quality: 2 stars
    ALS: 2 yrs
    Bi-Pap Wheelchair
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: moderate
    See profile
  • mesquite master
    • by mesquite master
    • current dosage: 2 hr daily
    • time on dosage: about 5 months
    • purpose: breathing support
  • 731622f1df6852561af96780926bae31c18ddef9
breathing support Efficacy Side Effects Adherence Burden
Dec 22, 2009 Major None Sometimes A little
Advice/Tips Cost
Dec 22, 2009 Switched to the AVAP machine. monthly
  • Icon_thumb_off 0 helpful marks
  • amma
    Sex: F
    Data Quality: 3 stars
    ALS: 5 yrs
    Bi-Pap
    Bulbar: mild
    Arms: moderate
    Chest: moderate
    Legs: mild
    See profile
    • by amma
    • current dosage: 23 hr daily
    • time on dosage: about 1 year
    • purpose: Fatigue, Breathing difficulty, General health
  • ea078700cb6d529acf5fa68fffe39d7c41e20adb
Fasciculations Efficacy General health Efficacy Fatigue Efficacy Breathing difficulty Efficacy Side Effects Adherence Burden
Aug 25, 2008 Can't tell None Always Not at all
Mar 10, 2009 Major Major Major None Always Not at all
Dec 15, 2009 Major Major Major None Always Not at all
Advice/Tips Cost
Mar 10, 2009 Get a battery so you can take it with you easily monthly
Dec 15, 2009 I use the nasal pillows during the day so I can wear my glasses. To give my nose a rest I use a mask at night. If I use small square band-aids on the bridge of my nose, there is less irratation monthly
  • Icon_thumb_on 1 helpful mark
  • gecc4
    Sex: M
    Data Quality: 3 stars
    ALS: 6 yrs
    Bi-Pap Wheelchair Feeding tube
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: severe
    See profile
  • gecc4
    • by gecc4
    • current dosage: 7 hr daily
    • time on dosage: about 3 months
    • purpose: Breathing difficulty
  • 850554d534373f83fdc7e6695d69320ed548bec7
Breathing difficulty Efficacy Side Effects Adherence Burden
Nov 18, 2009 Slight None Usually Very
Advice/Tips Cost
Nov 18, 2009 Most of my issues are with the masks, leaking, rubbing my nose, and dry mouth. monthly
  • Icon_thumb_off 0 helpful marks
General health Efficacy Side Effects Adherence Burden
Feb 18, 2009 Major None Sometimes Not at all
May 23, 2009 Moderate None Sometimes Not at all
Aug 10, 2009 Moderate Mild Sometimes Not at all
Nov 13, 2009 Slight None Sometimes Not at all
  • Icon_thumb_off 0 helpful marks
  • amberwell
    Sex: M
    Data Quality: 3 stars
    ALS: 5 yrs
    Bi-Pap Wheelchair Feeding tube
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    See profile
  • amberwell
    • by amberwell
    • current dosage: 8hours as needed
    • time on dosage: about 2 years
    • purpose: Other
  • 81ed4b2c0cf886bc2814b0144999d2ca2745c918
Other Efficacy Side Effects Adherence Burden
Sep 09, 2008 Major None Always A little
Nov 12, 2008 Moderate None Always A little
Dec 15, 2008 Moderate None Always A little
Jan 09, 2009 Major None Always A little
Feb 19, 2009 Major None Always A little
Oct 04, 2009 Moderate None Always A little
Oct 15, 2009 Major None Always A little
Advice/Tips Cost
Sep 09, 2008 use with humidifier monthly
Nov 12, 2008 Always use with humidifier < $25 monthly
  • Icon_thumb_on 1 helpful mark
  • MARNAV60
    Sex: F
    Data Quality: 1 star
    ALS: 2 yrs
    Wheelchair
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    See profile
  • MARNAV60
    • by MARNAV60
    • current dosage: 6 hr daily
    • time on dosage: 5 days
    • purpose: Breathing difficulty
  • 8468c8091d51e8c09608dc93dc9003111b3c2994
Breathing difficulty Efficacy Side Effects Adherence Burden
Apr 27, 2009 Moderate None Usually A little
  • Icon_thumb_off 0 helpful marks
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