14 patient evaluations for Rituximab

superstar
Portrait default thumb
superstar
Sex: F
Data Quality: 0 stars
Left Eye : mild
Right Eye : mild
Sensation : moderate
Overall : mild
Swallowing : none
Arms : mild
Legs : mild
Bladder/Bowel : moderate
Spinal Cord : mild
I have:
NMO

See superstar's full Rituximab history

Oct 30, 2009 (Started Feb 01, 2009)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: Mild
  • Adherence: Never
  • Burden: Not at all
Dosage: 10 mg Every Other Week
Advice & Tips: Has made me feel alot better; however, I still have symptoms from permanet scare tissue damage. However; after my last two treatments: 1) Feb 2) Oct...both MRI's following each treatment showed significant improvement and no activity and no inflamation. I was and am happy with the results. However, if you are thinking about starting this treatment, it is very important to monitor your B cells through monthly Blood Tests to make sure the medication is doing its job and working.
Side effects: Insomnia

  • 1 helpful mark
smbrunner
Portrait default thumb
smbrunner
Sex: F
Data Quality: 0 stars
Left Eye : moderate
Right Eye : moderate
Sensation : moderate
Overall : mild
Swallowing : mild
Arms : mild
Legs : moderate
Bladder/Bowel : moderate
Spinal Cord : mild
I am: g
I have:
NMO

See smbrunner's full Rituximab history

May 25, 2010 (Started May 22, 2008)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 10000 mg Every 3 months
Advice & Tips: Make sure you are not allergic to the medication. Thought it was just an chronic infusion rxn, when I consulted the allergist, he said I was very allergic to it. Hated to stop the medication as it was very helpful. If you are allergic to guninea pigs/ mice do not take it!
Cost: $200+ monthly
Side effects: Allergic reaction

Mar 7, 2010 (Started May 22, 2008)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 10000 mg Every 3 months
Cost: $100-199 monthly
Side effects: Allergic reaction

Mar 5, 2010 (Started May 22, 2008)

  • Perceived effectiveness for Neuromyelitis Optica: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 1000 mg Every 3 months
Advice & Tips: Due to increased severity of pain from the Devic's uncontrolled with the max dose of 200mcg Fentanyl, it was decided that by neurology to do an early dose of Rituxan. In other words, instead of 3 months, we did the Rituxan in 2 months as in the past this has helped with the pain. The infusion was over 24 hours and I had severe issues with hypotension and ventricular arrythmias, needed increased fluid support and keeps the support meds scheduled at every 6 hours (increased the dosages of Benadryl and demerol, tylenol). Will see if the pain improves!
Cost: $100-199 monthly
Side effects: Allergic reaction

Feb 28, 2010 (Started May 22, 2008)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 1000 mg Every 3 months
Advice & Tips: This is the only tx that seems to be best though for some reason my relapses try to recur with two months after the infusion. With the other chemo (MTX) I had too many life threatening infections so I had to stop, I will have to deal with the side effects for now. I do feel great for the first two months after the treatment. Usually the tx is done outpatient, but in my case I must stay inpt and the infusion is done between 12-18 hours due to side effects. Need hydration and cardiac monitoring before, during amd after to help deal/ monitor some of the adverse side effects. Myneurologist doesn't understand these increasing adverse reactions with each successive dose. Afraid to increase the frequency for this reason.
Cost: $100-199 monthly
Side effects: Allergic reaction

  • 1 helpful mark
graclyn
2132 thumb
graclyn
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: mild
Swallowing: none
Upper limb: mild
Walking: mild
I am: b
I have:
MS

See graclyn's full Rituximab history

Dec 31, 2008 (Started May 05, 2005)

  • Perceived effectiveness for Other: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Very
Dosage: 1000 other Yearly
Advice & Tips: In 2005 when I had this treatment it gave me moderate improvement but this time in 2008 I only had slight improvement and that only seemed to last for not quite a full year, unlike the other time which I had some benefit up to 3 years.
Cost: $200+ monthly
Side effects: Low blood pressure

  • 1 helpful mark
Karina2805
15820 thumb
Karina2805
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: severe
I am: g
I have:
MS

See Karina2805's full Rituximab history

Mar 1, 2010 (Started Nov 12, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Never
  • Burden: Somewhat
Dosage: 10 mg Weekly
Side effects: Respiratory infections

Dec 9, 2009 (Started Nov 12, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Sometimes
  • Burden: A little
Dosage: 10 mg Weekly
Advice & Tips: Got too many respiratory infections after the first dose. Second dose, tomorrow after three weeks
Side effects: Respiratory infections

  • 1 helpful mark
nursefairy
8586 thumb
nursefairy
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See nursefairy's full Rituximab history

Jan 9, 2009 (Started Aug 29, 2008)

  • Perceived effectiveness for Other: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 10 mg Yearly
Cost: $100-199 monthly
Side effects: Migraine headaches

Oct 10, 2008 (Started Aug 29, 2008)

  • Perceived effectiveness for Other: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 10 mg Yearly
Cost: < $25 monthly
Side effects: Migraine headaches

  • 0 helpful marks
MariaE
8923 thumb
MariaE
Sex: F
Data Quality: 1 star
Left Eye : mild
Right Eye : mild
Sensation : moderate
Overall : mild
Swallowing : none
Arms : mild
Legs : moderate
Bladder/Bowel : moderate
Spinal Cord : mild
I am: n
I have:
NMO

See MariaE's full Rituximab history

Jan 21, 2009 (Started Dec 10, 2007)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: As needed
Cost: $200+ monthly
Side effects: Muscle pain, Tiredness, Tiredness

  • 0 helpful marks
LSK
12214 thumb
LSK
Sex: F
Data Quality: 3 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: severe
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See LSK's full Rituximab history

Nov 1, 2009 (Started May 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 500 mg Every 3 months
Cost: < $25 monthly

Jun 18, 2009 (Started May 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Cost: < $25 monthly

  • 0 helpful marks
YellowIsJoy
18935 thumb
YellowIsJoy
Data Quality: 1 star
  • Sex: F
  • Age: 36y
  • Organ: Kidney(3)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
  1. Kidney : 16y Transplanted
  2. Kidney : 15y Transplanted
  3. Kidney : 6y Transplanted
I have:
Kidney Transplant

See YellowIsJoy's full Rituximab history

Jul 24, 2008 (Started May 29, 2008)

  • Perceived effectiveness for Prevention of recurrence of disease: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 1 other Weekly
Advice & Tips: It's a painless infusion. You don't feel, taste, or smell anything.
Cost: $50-99 monthly
Side effects: Hair loss, Hair thinning, Nausea, Hair curling, Fatigue, Fatigue

  • 0 helpful marks
uschiw
2964 thumb
uschiw
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: none
Vision: moderate
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See uschiw's full Rituximab history

Oct 22, 2010 (Started Jan 27, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: As needed
Advice & Tips: i had the rituximab treatment 01.27.10 and 2 weeks later 02.10.2010 the next treatment was given 10.22.2010 and 2 weeks later 11.05.2010 my insurance did not cover at atll nor the infusion time! unfortunately i am still declining…, no relapses… but = this treatment did not work for me
Cost: $200+ monthly

  • 0 helpful marks
Dave-nmo
Portrait default thumb
Dave-nmo
Sex: M
Data Quality: 0 stars
Left Eye : none
Right Eye : none
Sensation : moderate
Overall : moderate
Swallowing : none
Arms : moderate
Legs : severe
Bladder/Bowel : severe
Spinal Cord : moderate
I have:
NMO

See Dave-nmo's full Rituximab history

Aug 30, 2011 (Started Mar 01, 2009)

  • Perceived effectiveness for Neuromyelitis Optica: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 1000 mg Yearly
Advice & Tips: worked for 2 years, then stopped working

Jun 22, 2010 (Started Mar 01, 2009)

  • Perceived effectiveness for Neuromyelitis Optica: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1000 mg Yearly
Advice & Tips: Had 1000 mg infusion 4x at weekly intervals @ 10 months, had 1000 mg infusion 2x at 2-week interval

  • 0 helpful marks
Last updated:
Showing 10 of 14 patient evaluations for Rituximab