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5 patient evaluations for Friends

Purpose: General health (Started Dec 30, 1953)
Date Dosage Efficacy Side Effects Adherence Burden
Jan 12, 2012 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 12, 2012
Advice & Tips
1. No man is an island. 2. We are all social beings. 3. An exceptional friend is priceless.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Chispa
    Sex: F
    Data Quality: 3 stars
    Pain: Most
    Fatigue: All
    Sleep: Most
    Stiffness: Most
    function: Some
    external_stress: Little
    Stickman: most
    Description:F63y
    CFS:2y Dx
    FM:?y
  • Chispa
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Purposes: Fibromyalgia, Peripheral Neuropathy, Babesiosis, Support mental / emotional health, love, Lyme Disease, and Chronic Fatigue Syndrome (Started Jan 01, 1951)
Date Dosage Fibromyalgia Efficacy Peripheral Neuropathy Efficacy Babesiosis Efficacy Support mental / emotional health Efficacy love Efficacy Lyme Disease Efficacy Chronic Fatigue Syndrome Efficacy Side Effects Adherence Burden
Dec 02, 2011 As needed Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default Led_efficacy_2Led_efficacy_2Led_defaultLed_default ? Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ? Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default NoneNoneNoneNone SometimesSometimesSometimesSometimes A littleA littleA littleA little
Date
Dec 02, 2011
Advice & Tips
A friend has been coming over weekly - sometimes spending the night - for several months now. Almost each week - offering to buy groceries when she shops and do other chores. This regular visit has become a major bonus to my life. Friends always would come if I called, but I rarely call for help (so difficult to do). Because this friend comes whether I call or not, I get help without having to decide "yes this is important enough to ask for help". It also gives me conversation and sometimes an opportunity to help her. This is invaluable to me and often lift me from whatever pain is holding me prisoner. Also, friends had urged me to join facebook for years, but I kept putting it off thinking I didn't want that. I finally joined in mid-Sept and am amazed at how much of a boost that has been to me. I don't do tv or regular newspapers because they are too stupid, biased and boring. But with fb, I find I can selectively chose the type and source of info (like current events) that comes to me and this has made my world larger and made me feel more like I am a part of the world. I like how people comment and give near-instant feedback to what I share (a news article or a personal piece of info) and that stimulates my thinking and is sort of like a conversation. Some of my fb friends are from PLM, some are also chronically ill but never came to PLM, and others are not ill and some don't even know I am - others are IRL friends whom I've been out of touch with for awhile and don't know my health status. This has been of huge benefit to me. I much prefer the interactions with people - even those from PLM - via fb than the PLM forum. We may not discuss health/disability topics in the detail the PLM forum allows, but I don't really need that for myself. And I've been bored or discouraged by some of the people who are forum regulars in PLM for their combative, whinny, or just not interesting messages. And on fb I am finding confirmation of that from many people who abandoned the PLM forum due to the behavior of just a few people. The comparison or analogy for me is like the difference between work and personal friends. At work I would get along with my colleagues because we all happened to work at the same firm - or needed to interact for work. but I might not appreciate them and sometimes being amicable was draining and I'd feel angry about our interactions after work. That's how the PLM forum is for me - altho there are people whom I appreciate a great deal in the forum too, just like work. With fb, tho, it is more like my personal friends whom I choose because I appreciate them. I feel sure they will enhance my life and they feel the same way about me. After 12 years of being sick and feeling isolated, fb has put me back in the world. PLM gave me some of this at first because prior to joining I had not talked about these health issues with anyone else who shared them except one friend who lives too far to visit. So having a group of people who shared many of the same issues was at first a relief, and a boost. But after awhile, I began to notice what people had written to me as beware/cautions in PLM PMs - there are cliques and individuals who are difficult to appreciate. Some of the members are actually nasty but have a passive aggressive way of expressing it. And until the recent "hide this tag; hide this user; hide this topic" option, one couldn't avoid them. But, interaction with friends whether IRL or online has been a big help to me in exploring other trtmt options, getting my thoughts on subjects other than my health, and making me feel involved in the world even when I can't wash, dress, and drive somewhere (and that is most of the time.)
Cost
< $25 monthly
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Purpose: Pain (Started Dec 04, 2004)
Date Dosage Efficacy Side Effects Adherence Burden
Feb 03, 2011 As needed Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
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Purposes: Increase effect of another treatment and General health (Started Jan 25, 2009)
Date Dosage Increase effect of another treatment Efficacy General health Efficacy Side Effects Adherence Burden
Mar 01, 2009 Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Date
Mar 01, 2009
Advice & Tips
Friends that understand are great,,,thank you ppl!
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  • mstaz88
    Sex: F
    Data Quality: 1 star
    Pain: Most
    Fatigue: Most
    Sleep: Some
    Stiffness: Some
    function: Some
    external_stress: Most
    Stickman: most
    Description:F41y
    FM:16y Dx
  • mstaz88
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Purpose: Frustration (Started Aug 21, 2007)
Date Dosage Efficacy Side Effects Adherence Burden
Dec 18, 2008 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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