Purposes:Fibromyalgia, Peripheral Neuropathy, Babesiosis, Support mental / emotional health, love, Lyme Disease, and Chronic Fatigue Syndrome(Started Jan 01, 1951)
Date
Dosage
Fibromyalgia
Efficacy
Peripheral Neuropathy
Efficacy
Babesiosis
Efficacy
Support mental / emotional health
Efficacy
love
Efficacy
Lyme Disease
Efficacy
Chronic Fatigue Syndrome
Efficacy
Side Effects
Adherence
Burden
Dec 02, 2011
As needed
?
?
Date
Dec 02, 2011
Advice & Tips
A friend has been coming over weekly - sometimes spending the night - for several months now. Almost each week - offering to buy groceries when she shops and do other chores. This regular visit has become a major bonus to my life. Friends always would come if I called, but I rarely call for help (so difficult to do). Because this friend comes whether I call or not, I get help without having to decide "yes this is important enough to ask for help". It also gives me conversation and sometimes an opportunity to help her. This is invaluable to me and often lift me from whatever pain is holding me prisoner.
Also, friends had urged me to join facebook for years, but I kept putting it off thinking I didn't want that. I finally joined in mid-Sept and am amazed at how much of a boost that has been to me. I don't do tv or regular newspapers because they are too stupid, biased and boring. But with fb, I find I can selectively chose the type and source of info (like current events) that comes to me and this has made my world larger and made me feel more like I am a part of the world. I like how people comment and give near-instant feedback to what I share (a news article or a personal piece of info) and that stimulates my thinking and is sort of like a conversation.
Some of my fb friends are from PLM, some are also chronically ill but never came to PLM, and others are not ill and some don't even know I am - others are IRL friends whom I've been out of touch with for awhile and don't know my health status. This has been of huge benefit to me.
I much prefer the interactions with people - even those from PLM - via fb than the PLM forum. We may not discuss health/disability topics in the detail the PLM forum allows, but I don't really need that for myself. And I've been bored or discouraged by some of the people who are forum regulars in PLM for their combative, whinny, or just not interesting messages. And on fb I am finding confirmation of that from many people who abandoned the PLM forum due to the behavior of just a few people.
The comparison or analogy for me is like the difference between work and personal friends. At work I would get along with my colleagues because we all happened to work at the same firm - or needed to interact for work. but I might not appreciate them and sometimes being amicable was draining and I'd feel angry about our interactions after work. That's how the PLM forum is for me - altho there are people whom I appreciate a great deal in the forum too, just like work.
With fb, tho, it is more like my personal friends whom I choose because I appreciate them. I feel sure they will enhance my life and they feel the same way about me. After 12 years of being sick and feeling isolated, fb has put me back in the world. PLM gave me some of this at first because prior to joining I had not talked about these health issues with anyone else who shared them except one friend who lives too far to visit. So having a group of people who shared many of the same issues was at first a relief, and a boost. But after awhile, I began to notice what people had written to me as beware/cautions in PLM PMs - there are cliques and individuals who are difficult to appreciate. Some of the members are actually nasty but have a passive aggressive way of expressing it. And until the recent "hide this tag; hide this user; hide this topic" option, one couldn't avoid them.
But, interaction with friends whether IRL or online has been a big help to me in exploring other trtmt options, getting my thoughts on subjects other than my health, and making me feel involved in the world even when I can't wash, dress, and drive somewhere (and that is most of the time.)