36 patient evaluations for Carbidopa-Entacapone-Levodopa

rose5
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rose5
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: moderate
Chest: moderate
Legs: mild
I am: b
I have:
Parkinson's

See rose5's full Carbidopa-Entacapone-Levodopa history

Jul 14, 2012 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Cost: $25-49 monthly

Sep 4, 2010 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Cost: $25-49 monthly

Dec 13, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 25 mg-200 mg-100 mg Daily
Advice & Tips: Since the addition of Azilect 1mg, I have been able to lower my Stalevo dosing again. I now take Stalevo 100mg every 4 hours instead of every 3 1/2. Stalevo & Azilect have been a dream come true for me. My mobility has increased, and my dosage has gone down. What more could anyone ask for?!!!!
Cost: $25-49 monthly

Oct 1, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Advice & Tips: I take Stalevo 100mg every 3 1/2 hours throughout the day which adds up to normally 500-600mg a day. I was taking Stalevo 150mg 4 times a day, but after getting some "wearing off" effects, my doctor added Azilect 1mg in the am and dropped my Stalevo down to 100mg every 3 1/2 hours. Now, I can normally go 3 1/2 hours without feeling the "wearing off" effect. Sometimes, I can push it to 4 hours, but under doctor's orders, I take it every 3 1/2 hours to keep the stability of being "on".
Cost: $25-49 monthly

Aug 23, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Advice & Tips: Stalevo was the first drug that I could tolerate in my first two years after my PD diagnosis. My neurologist and gastroenterologist worked together to find out why, trying Mirapex twice and Requip twice, that I would get severe abdominal pain, vomiting, dry heaves & migraines after titrating up to the six week point; then wound up in the hospital twice. I spent the first two years like this to the point that I lost 35 pounds in a year taking me down to 105 lbs. and could barely get out of bed. My doctor was waiting for the release of Stalevo, thinking it would be the only drug that I could tolerate at this point. I started taking 50mg and titrated to 150mg four times a day. It gave me my life back again. I finally started to feel better.
Cost: $25-49 monthly

  • 4 helpful marks
glundy
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glundy
Sex: M
Data Quality: 1 star
Off
Mouth/throat: mild
Arms: none
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See glundy's full Carbidopa-Entacapone-Levodopa history

Mar 21, 2010 (Started Mar 05, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I had a very positive experience with this treatment. The reason I am off this medication is that I am starting a clinical trial and need to stay on sinemet. I am not doing as well as I was when I was taking Stalevo plus Sinemet. Walking, cramps on my right calf and foot to the point I cannot take a step without pain

Feb 25, 2010 (Started Mar 05, 2009)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily

May 16, 2009 (Started Mar 05, 2009)

  • Perceived effectiveness for Other: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: Some not all of my symptons are improved. Worth the change for me. Better balance, easier to manover in bed, generally feel better. Has not helped my right leg as far as walking goes.

Mar 25, 2009 (Started Mar 05, 2009)

  • Perceived effectiveness for Other: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: I noticed after a week or so that I was feeling better.Improvements in walking, balance, and stifness. Easyier to manover in bed. Very pleased with Stalevo and hope the improvements last.

  • 1 helpful mark
server
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server
Sex: M
Data Quality: 0 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: mild
I have:
Parkinson's

See server's full Carbidopa-Entacapone-Levodopa history

Apr 3, 2011 (Started Sep 16, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Perceived effectiveness for Improve mobility: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: Stalevo is strong, yet one has to not overdo it. That's what I think I did. Taking Madopar HBS starts less strong so I expect less shaking legs, and stays longer in the blood, so I expect to have less trouble in the night.
Cost: < $25 monthly

Oct 4, 2008 (Started Sep 16, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: take this on the right time, divide the moments that you take this meds to regular times, mine are 8am 1pm and 6pm (time frame 5 hrs).
Cost: < $25 monthly

  • 1 helpful mark
Goodpenny
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Goodpenny
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See Goodpenny's full Carbidopa-Entacapone-Levodopa history

Aug 11, 2009 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 6 x 12.5 mg-200 mg-50 mg Daily
Advice & Tips: Take it on time, in general, but you can adjust the timing a little bit now and then to cover special occasions. For instance, I take my last dose about a half an hour later than usual on the nights that I have my dance class.
Cost: $25-49 monthly
Side effects: Dyskinesia, Nausea

Jan 30, 2009 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg Daily
Cost: $25-49 monthly
Side effects: Dyskinesia, Nausea

Sep 24, 2008 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Cost: $50-99 monthly
Side effects: Dyskinesia, Nausea

  • 1 helpful mark
lucky3210
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lucky3210
Sex: F
Data Quality: 0 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See lucky3210's full Carbidopa-Entacapone-Levodopa history

Sep 7, 2009 (Started May 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Not at all
Dosage: 2 x 25 mg-200 mg-100 mg Daily
Advice & Tips: It makes the symptons of Parkinson go away and gives one a whole new lease on life. I had it with chemo treatment and for four years thought it was the chemo and arthristis and spinal stenosis, etc., stalevo made all the side effects go away. I pray it doesn't wear off or I become conditioned to it. At 76 now it really doesn't matter, but sure has made my life so much better.
Cost: < $25 monthly

  • 1 helpful mark
Limby
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Limby
Sex: F
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Limby's full Carbidopa-Entacapone-Levodopa history

Jul 21, 2011 (Started Sep 06, 2010)

  • Perceived effectiveness for Increase effect of another treatment: Major
  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: I think taking Stavelo in conjunction with Azilect is working very well for me. I'm just not sure whether the other symptoms I have are due to the progression of PD or if they are side effects.
Cost: $50-99 monthly
Side effects: Nausea, Wearing off leg cramps, Wearing off increased tremors, Fatigue

Aug 21, 2009 (Started Sep 06, 2010)

  • Perceived effectiveness for Increase effect of another treatment: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I think it is very effective. If you forget to take them, the tremors start quicker and the foot cramps can be quite severe at times. NOTE: Regarding the cost below: I live in Canada and as such our system covers approx 75% of all medications.
Cost: $50-99 monthly
Side effects: Nausea, Wearing off leg cramps, Wearing off increased tremors, Fatigue

Mar 9, 2009 (Started Sep 06, 2010)

  • Perceived effectiveness for Increase effect of another treatment: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I am not quite sure, but I think numbness in the feet and ankles hasw been affected. To be re-evluated this week. (PS. For mthose in the US, our govt pays a good portion if we do not have Ins. Normalyy it would be appx.$550.00)
Cost: $100-199 monthly
Side effects: Nausea, Wearing off leg cramps, Wearing off increased tremors, Fatigue

Oct 2, 2008 (Started Sep 06, 2010)

  • Perceived effectiveness for Increase effect of another treatment: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Advice & Tips: It works very well, with exception to the numbness.
Cost: $200+ monthly
Side effects: Nausea, Wearing off leg cramps, Wearing off increased tremors, Fatigue

  • 1 helpful mark
bandido1
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bandido1
Sex: M
Data Quality: 0 stars
On
Mouth/throat: moderate
Arms: severe
Chest: mild
Legs: moderate
I am: b
I have:
Parkinson's

See bandido1's full Carbidopa-Entacapone-Levodopa history

Dec 23, 2008 (Started Feb 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: time dosages to assure no "off" periods or "whiteouts"
Side effects: Wearing off increased tremors, Wearing off leg cramps

Sep 10, 2008 (Started Feb 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: No cure, treatments are improving but not yet perfected
Side effects: Wearing off increased tremors, Wearing off leg cramps

  • 1 helpful mark
TLRothwell
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TLRothwell
Sex: F
Data Quality: 0 stars
On
Mouth/throat: none
Arms: none
Chest: mild
Legs: mild
I am: vb
I have:
Parkinson's

See TLRothwell's full Carbidopa-Entacapone-Levodopa history

Apr 22, 2009 (Started Aug 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Severe
  • Adherence: Sometimes
  • Burden: Very
Advice & Tips: I absolutely cannot take more than half the prescribed lowest dosage due to projectile vomiting. I was given this in replacement of Carabadopa Levidopa combo which is a medication that should be removed from the market. The side effects of the caridopa-levidopa were worse than I could have ever imagined.. My on of time went for 6 hours down to less than half an hour with a week. I was constantly falling whille walking.

  • 1 helpful mark
browncat87
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browncat87
Sex: F
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: none
I am: n
I have:
Parkinson's

See browncat87's full Carbidopa-Entacapone-Levodopa history

Jun 1, 2010 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg-200 mg-100 mg Daily
Advice & Tips: take it on time,build up to higher doses gradually
Cost: $25-49 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Feb 18, 2009 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Jan 17, 2009 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Dec 20, 2008 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Advice & Tips: n/a
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Aug 19, 2008 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 250 mg Daily
Cost: $25-49 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

  • 1 helpful mark
relayman
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relayman
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: mild
I am: vg
I have:
Parkinson's

See relayman's full Carbidopa-Entacapone-Levodopa history

Dec 13, 2009 (Started Nov 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 225 mg Daily
Advice & Tips: At this time the side effects (loss of appetite, dizzyness and drymouth) outweighed the benefits (better arm swing and reduction of leg tremor). I will wait until the benefits are greater. I am doing well with structured exercise classes specifically designed for PD patients.
Cost: < $25 monthly
Side effects: Dizziness (vertigo)

  • 1 helpful mark
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Showing 10 of 36 patient evaluations for Carbidopa-Entacapone-Levodopa