36 patient evaluations for Carbidopa-Entacapone-Levodopa

rose5
13543 thumb
rose5
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: moderate
Chest: moderate
Legs: mild
I am: vb
I have:
Parkinson's

See rose5's full Carbidopa-Entacapone-Levodopa history

Jun 29, 2014 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Advice & Tips: NOT WORKING SO WELL AFTER ALL THESE YEARS.
Cost: $25-49 monthly

Jul 14, 2012 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Cost: $25-49 monthly

Sep 4, 2010 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Cost: $25-49 monthly

Dec 13, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 25 mg-200 mg-100 mg Daily
Advice & Tips: Since the addition of Azilect 1mg, I have been able to lower my Stalevo dosing again. I now take Stalevo 100mg every 4 hours instead of every 3 1/2. Stalevo & Azilect have been a dream come true for me. My mobility has increased, and my dosage has gone down. What more could anyone ask for?!!!!
Cost: $25-49 monthly

Oct 1, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Advice & Tips: I take Stalevo 100mg every 3 1/2 hours throughout the day which adds up to normally 500-600mg a day. I was taking Stalevo 150mg 4 times a day, but after getting some "wearing off" effects, my doctor added Azilect 1mg in the am and dropped my Stalevo down to 100mg every 3 1/2 hours. Now, I can normally go 3 1/2 hours without feeling the "wearing off" effect. Sometimes, I can push it to 4 hours, but under doctor's orders, I take it every 3 1/2 hours to keep the stability of being "on".
Cost: $25-49 monthly

Aug 23, 2009 (Started Mar 05, 2005)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Advice & Tips: Stalevo was the first drug that I could tolerate in my first two years after my PD diagnosis. My neurologist and gastroenterologist worked together to find out why, trying Mirapex twice and Requip twice, that I would get severe abdominal pain, vomiting, dry heaves & migraines after titrating up to the six week point; then wound up in the hospital twice. I spent the first two years like this to the point that I lost 35 pounds in a year taking me down to 105 lbs. and could barely get out of bed. My doctor was waiting for the release of Stalevo, thinking it would be the only drug that I could tolerate at this point. I started taking 50mg and titrated to 150mg four times a day. It gave me my life back again. I finally started to feel better.
Cost: $25-49 monthly

  • 5 helpful marks
glundy
12888 thumb
glundy
Sex: M
Data Quality: 0 stars
Off
Mouth/throat: mild
Arms: none
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See glundy's full Carbidopa-Entacapone-Levodopa history

Mar 21, 2010 (Started Mar 05, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I had a very positive experience with this treatment. The reason I am off this medication is that I am starting a clinical trial and need to stay on sinemet. I am not doing as well as I was when I was taking Stalevo plus Sinemet. Walking, cramps on my right calf and foot to the point I cannot take a step without pain

Feb 25, 2010 (Started Mar 05, 2009)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily

May 16, 2009 (Started Mar 05, 2009)

  • Perceived effectiveness for Other: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: Some not all of my symptons are improved. Worth the change for me. Better balance, easier to manover in bed, generally feel better. Has not helped my right leg as far as walking goes.

Mar 25, 2009 (Started Mar 05, 2009)

  • Perceived effectiveness for Other: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: I noticed after a week or so that I was feeling better.Improvements in walking, balance, and stifness. Easyier to manover in bed. Very pleased with Stalevo and hope the improvements last.

  • 2 helpful marks
TomBerdine
609 thumb
TomBerdine
Sex: M
Data Quality: 2 stars
Off
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See TomBerdine's full Carbidopa-Entacapone-Levodopa history

Aug 20, 2008 (Started Sep 22, 2006)

  • Perceived effectiveness for Other: Major
  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 250 mg Daily
Advice & Tips: Longer lasting then the PARCOPA but much slower to take effect. About 45minutres to an hour. But last up to 3hours where the PARCOPA lasts only an hour or a little more.
Cost: < $25 monthly

  • 1 helpful mark
bandido1
4046 thumb
bandido1
Sex: M
Data Quality: 0 stars
On
Mouth/throat: moderate
Arms: severe
Chest: mild
Legs: moderate
I am: b
I have:
Parkinson's

See bandido1's full Carbidopa-Entacapone-Levodopa history

Dec 23, 2008 (Started Feb 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: time dosages to assure no "off" periods or "whiteouts"
Side effects: Wearing off increased tremors, Wearing off leg cramps

Sep 10, 2008 (Started Feb 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: No cure, treatments are improving but not yet perfected
Side effects: Wearing off increased tremors, Wearing off leg cramps

  • 1 helpful mark
Goodpenny
450 thumb
Goodpenny
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See Goodpenny's full Carbidopa-Entacapone-Levodopa history

Aug 11, 2009 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 6 x 12.5 mg-200 mg-50 mg Daily
Advice & Tips: Take it on time, in general, but you can adjust the timing a little bit now and then to cover special occasions. For instance, I take my last dose about a half an hour later than usual on the nights that I have my dance class.
Cost: $25-49 monthly
Side effects: Dyskinesia, Nausea

Jan 30, 2009 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg Daily
Cost: $25-49 monthly
Side effects: Dyskinesia, Nausea

Sep 24, 2008 (Started Oct 23, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Cost: $50-99 monthly
Side effects: Dyskinesia, Nausea

  • 1 helpful mark
lucky3210
12388 thumb
lucky3210
Sex: F
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: none
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See lucky3210's full Carbidopa-Entacapone-Levodopa history

Sep 7, 2009 (Started May 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Not at all
Dosage: 2 x 25 mg-200 mg-100 mg Daily
Advice & Tips: It makes the symptons of Parkinson go away and gives one a whole new lease on life. I had it with chemo treatment and for four years thought it was the chemo and arthristis and spinal stenosis, etc., stalevo made all the side effects go away. I pray it doesn't wear off or I become conditioned to it. At 76 now it really doesn't matter, but sure has made my life so much better.
Cost: < $25 monthly

  • 1 helpful mark
relayman
4565 thumb
relayman
Sex: M
Data Quality: 2 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: mild
I am: vg
I have:
Parkinson's

See relayman's full Carbidopa-Entacapone-Levodopa history

Dec 13, 2009 (Started Nov 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 225 mg Daily
Advice & Tips: At this time the side effects (loss of appetite, dizzyness and drymouth) outweighed the benefits (better arm swing and reduction of leg tremor). I will wait until the benefits are greater. I am doing well with structured exercise classes specifically designed for PD patients.
Cost: < $25 monthly
Side effects: Dizziness (vertigo)

  • 1 helpful mark
browncat87
58847 thumb
browncat87
Sex: F
Data Quality: 3 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: none
I am: g
I have:
Parkinson's

See browncat87's full Carbidopa-Entacapone-Levodopa history

Jun 1, 2010 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg-200 mg-100 mg Daily
Advice & Tips: take it on time,build up to higher doses gradually
Cost: $25-49 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Feb 18, 2009 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Jan 17, 2009 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Dec 20, 2008 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Advice & Tips: n/a
Cost: < $25 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

Aug 19, 2008 (Started Jun 08, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 250 mg Daily
Cost: $25-49 monthly
Side effects: Wearing off leg cramps, Discoloration of body fluids (ie sweat, urine), Dyskinesia

  • 1 helpful mark
TLRothwell
19589 thumb
TLRothwell
Sex: F
Data Quality: 0 stars
On
Mouth/throat: none
Arms: none
Chest: mild
Legs: mild
I am: vb
I have:
Parkinson's

See TLRothwell's full Carbidopa-Entacapone-Levodopa history

Apr 22, 2009 (Started Aug 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Severe
  • Adherence: Sometimes
  • Burden: Very
Advice & Tips: I absolutely cannot take more than half the prescribed lowest dosage due to projectile vomiting. I was given this in replacement of Carabadopa Levidopa combo which is a medication that should be removed from the market. The side effects of the caridopa-levidopa were worse than I could have ever imagined.. My on of time went for 6 hours down to less than half an hour with a week. I was constantly falling whille walking.

  • 1 helpful mark
Kimellis
10447 thumb
Kimellis
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Kimellis's full Carbidopa-Entacapone-Levodopa history

Sep 6, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: After several months of use, I developed severe and ongoing diahorea.
Side effects: Indigestion

Apr 16, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Side effects: Indigestion

  • 1 helpful mark
Last updated:
Showing 10 of 36 patient evaluations for Carbidopa-Entacapone-Levodopa