Evaluations from Patients who take Glatiramer acetate

Stefie/MS

Sex: F

Data Quality: 3 stars

MS: 23 yrs

Mentor

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate
by Stefie/MS
See Stefie/MS's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Jul 27, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 31, 2011	20 mg Daily	?Can't tell	Mild	Always	Not at all

0 helpful marks

stax23

Sex: F

Data Quality: 2 stars

MS: 12 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: none

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild
by stax23
See stax23's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 26, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 26, 2011	20 mg Daily	?Can't tell	Mild	Always	Not at all

Side effects:: Injection site bruising

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kcj1963

Sex: M

Data Quality: 1 star

MS: 9 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: none

Speech: mild

Swallowing: moderate

Upper limb: mild

Walking: moderate
by kcj1963
See kcj1963's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Mar 01, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 24, 2011	20 mg Daily	?Can't tell	Mild	Always	A little
Apr 16, 2011	20 mg Daily	?Can't tell	Mild	Usually	A little

Date: Aug 24, 2011
Advice & Tips: get your veins ballooned... because you have CCSVI... it was very ez with no problems... and even though one-third of people treated don't get symptom relief, like myself, it's still worth a shot and at least you will have better blood flow to your lesions among other things, and this is the main point in getting venoplasty...
Cost: < $25 monthly

0 helpful marks

caseyd

Sex: F

Data Quality: 2 stars

MS: 4 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: none

Swallowing: none

Upper limb: mild

Walking: moderate
by caseyd
See caseyd's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 28, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 29, 2011	20 mg Daily	Major	Mild	Always	Not at all
Aug 11, 2010	20 mg Daily	Major	Mild	Always	A little
Mar 26, 2010	20 mg Daily	Major	Moderate	Always	Somewhat
Oct 22, 2009	20 mg Daily	?Can't tell	Mild	Always	A little

Side effects:: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site itching, Injection site pain, Bruising, Itching (pruritus), Nausea, Redness, Swelling

Date: Jul 29, 2011
Advice & Tips: I've only tried the auto-ejector once and since that first time, it's been manual for me. I've been on this med for two years and I've done well on it - - that's enough of a motivator to continue with whatever inconvenience the daily injection poses.
Cost: < $25 monthly

Date: Aug 11, 2010
Advice & Tips: Recent MRI shows no new or enhancing lesions. Before Copax and estriol, fresh attacks hit every 2-3 months. Free of attacks since 9/09. Hallelujah!
Cost: < $25 monthly

Date: Mar 26, 2010
Advice & Tips: From what I understand, Copaxone takes 4 - 6 months to kick in. In my case I began taking it 8/09. One month after I began treatment I had another attack. But this flare-up was much milder than previous ones (they had been running every 2 - 3 months, putting me in bed for days). Since 9/09, I've had fatigue hit me pretty hard but my balance has recovered enough so that I'm walking without a cane and the fatigue has diminished enough so that I can walk roughly a mile. For a bit of perspective, in the late Fall I had to sleep for an hour after taking a shower in the a.m. Please keep in mind that I take this med with other pills.
Cost: < $25 monthly

Date: Oct 22, 2009
Advice & Tips: I did a bit of research on patients taking copaxone prior to beginning treatment and I decided to go with manual injection. Compared to the one instance I used the autoinjector (with the SS nurse during training), I believe this was the right choice for me as the manual injections seem less uncomfortable. That being said, I'm still keeping an eye on oral meds slated for FDA approval in the near future.
Cost: < $25 monthly

1 helpful mark

Kenny J

Sex: M

Data Quality: 2 stars

MS: 7 yrs

Type: Relapsing-Remitting

Sensation: None

Overall: None

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: moderate
by Kenny J
See Kenny J's full Glatiramer acetate history

**Purposes:** MS (Multiple Sclerosis) and General health *(Started May 01, 2007)*
Date	Dosage	MS (Multiple Sclerosis) Perceived effectiveness	General health Perceived effectiveness	Side Effects	Adherence	Burden
Jul 20, 2011	20 mg Daily	Moderate		None	Always	Not at all
May 31, 2009	20 mg Daily		None	Mild	Always	Not at all
May 10, 2009	20 mg Daily		None	Mild	Always	Not at all

Side effects:: Bruising, Redness, Lumps and bumps, Injection site itching, Itching (pruritus)

Date: May 31, 2009
Advice & Tips: I just wonder what it would be like if i did not take the shots, I think the medicine dose help me, as I know how i feeling before. I stillc tired and wore out but over all I feel great. As i know the tireness is something for now i have to live with
Cost: < $25 monthly

Date: May 10, 2009
Advice & Tips: I think taking the shots has helped me out, I know how I felt before i started my treatments, so I feel positive about my treatment. I'm on a program so there is no cost to me for the shots,

0 helpful marks

gardener

Sex: F

Data Quality: 3 stars

MS: 9 yrs

Mentor

Type: Relapsing-Remitting

Sensation: None

Overall: None

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: none
by gardener
See gardener's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 15, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 09, 2011	20 mg Daily	Moderate	Mild	Always	A little
Aug 25, 2008	20 mg Daily	Major	Mild	Always	A little
Jun 16, 2008	20 mg Daily	Moderate	Mild	Always	A little

Side effects:: Lumps and bumps, Bruising, Redness, Injection site reaction

Date: Jul 09, 2011
Advice & Tips: I had reduced fatigue within a month.
Cost: $200+ monthly

Date: Aug 25, 2008
Advice & Tips: Be very consistant, and rotate your shots.
Cost: $200+ monthly

Date: Jun 16, 2008
Advice & Tips: It's not really a positive, but my immune system now recognizes mosquito bites as a problem.
Cost: $200+ monthly

0 helpful marks

gardener

Sex: F

Data Quality: 3 stars

MS: 9 yrs

Mentor

Type: Relapsing-Remitting

Sensation: None

Overall: None

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: none
by gardener
See gardener's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 15, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 08, 2011	20 mg Daily	Moderate	Mild	Always	A little

0 helpful marks

DebbieBren

Sex: F

Data Quality: 2 stars

MS: 21 yrs

Type: Secondary Progressive

Relapse: Moderate

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: none

Speech: mild

Swallowing: none

Upper limb: moderate

Walking: moderate
by DebbieBren
See DebbieBren's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Jan 01, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 01, 2011	20 mg Daily	None	None	Usually	Not at all
Sep 01, 2010	20 mg Daily	None	None	Always	A little

Date: Sep 01, 2010
Advice & Tips: did not work at all

0 helpful marks

mrsevans

Sex: F

Data Quality: 0 stars

MS: 3 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: None

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate
by mrsevans
See mrsevans's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started Oct 08, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 24, 2011	20 mg Daily	Moderate	Mild	Always	Not at all
Oct 10, 2010	20 mg Daily	?Can't tell	None	Always	Not at all

Date: Oct 10, 2010
Advice & Tips: For burden I put that it is not difficult at all, not because self injections aren't a little creepy, but because it is not hard for me to suck it up and do it anyway. I want to get better and I will do anything I can to help myself. The injections really aren't that bad, just a little sting (I will admit right now I take a deep breath, count and go on 3). :) So far I have NO SIDE EFFECTS, no bump, blister or anything :)
Cost: $25-49 monthly

0 helpful marks

doughntpanic

Sex: F

Data Quality: 2 stars

MS: 13 yrs

Type: Relapsing-Remitting

Relapse: Moderate

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate
by doughntpanic
See doughntpanic's full Glatiramer acetate history

**Purpose:** MS (Multiple Sclerosis) *(Started May 28, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 18, 2011	20 mg Daily	Moderate	None	Usually	A little
Feb 13, 2011	20 mg Daily	Moderate	None	Always	A little
Aug 03, 2010	20 mg Daily	?Can't tell	Mild	Always	A little

Date: Feb 13, 2011
Advice & Tips: I inject my copaxone every evening before bed after my shower. I have found that if I inject slowly I have much less trouble with pain & lumps after the injection. The stinging, pain & itch has decreased over time as I have been on Copaxone for over 8 months. You are not supposed to massage the site for 24 hours after injecting but it helps to do so if it has been >24hrs. I will never be able to know for sure but I believe this treatment has been very effective. I have been doing much better after several months on it.
Cost: $25-49 monthly

0 helpful marks