241 patient evaluations for Glatiramer acetate

gkygrl
7484 thumb
gkygrl
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See gkygrl's full Glatiramer acetate history

May 17, 2011 (Started Aug 08, 2002)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 20 mg Daily
Advice & Tips: I am stopping it as a test since I am relatively stable at this point and the doctor wants to really evaluate my MS versus Fibromylagia.
Cost: < $25 monthly
Side effects: Injection site itching, Injection site reaction, Redness, Itching (pruritus), Lumps and bumps

Sep 19, 2010 (Started Aug 08, 2002)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 20 mg Daily
Advice & Tips: The shot is going to sting a little bit. To cut down on the sting, make sure that the drop on the end of the needle is shaken away and make sure the alcohol on the site is dried.
Cost: < $25 monthly
Side effects: Injection site itching, Injection site reaction, Redness, Itching (pruritus), Lumps and bumps

May 11, 2010 (Started Aug 08, 2002)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: Very easy to take.
Cost: < $25 monthly
Side effects: Injection site itching, Injection site reaction, Redness, Itching (pruritus), Lumps and bumps

Mar 4, 2009 (Started Aug 08, 2002)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: I would choose a Copaxone daily injection even over an oral therapy that acted with the side-effects of an Interferon. I don't mind the needle at all.
Cost: < $25 monthly
Side effects: Injection site itching, Injection site reaction, Redness, Itching (pruritus), Lumps and bumps

  • 0 helpful marks
Cyprian1
1542 thumb
Cyprian1
Sex: F
Data Quality: 1 star
Relapse: Moderate
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Cyprian1's full Glatiramer acetate history

May 15, 2011 (Started May 04, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: My taking of this medication is due to the loss of brain cells as opposed to relapses persay .. my neuro conducted a spectroscopy and didn't like that issue about the brain cells . I didn't reply yes or no to unexpected benefits as at first I thought I was feeling better but I think now that it was just wishful thinking . I am all for positive believe me . As for side effects , the book which shows diagrams wher to inject is so way off that I gave my 4th shot too high up above my belly button . The next day I felt horrible and called up Teva . The nurse said a false exacerbation. Then they called back and that nurse said she is documenting it as there were no notes by the previous nurse . I am sure no drug maker wants to hear the bad but Teva says it does , so when I suggested making the diagrams more accurate as people like me are going to go by what they see and can comprehend . Well, whatever . They made notes . Now I know better and it does make you have site issues , the rest is of course unknown as that is how it works right ? You have no way of knowing , like my MS , if it is workiing ?
Cost: < $25 monthly

  • 0 helpful marks
Tgrlly
33290 thumb
Tgrlly
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Tgrlly's full Glatiramer acetate history

May 9, 2011 (Started Nov 01, 2003)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
_-Miranda_-
32893 thumb
_-Miranda_-
Sex: F
Data Quality: 1 star
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: mild
Upper limb: none
Walking: mild
I am: g
I have:
MS

See _-Miranda_-'s full Glatiramer acetate history

Apr 24, 2011 (Started Jul 04, 2008)

  • Perceived effectiveness for Support immune health: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 20 mg Daily
Advice & Tips: When you first start taking this injection you will experience the symptoms of a small panic attack. Also it will leave a lump at the injectionsite. The injectionsite will often itch.

  • 0 helpful marks
ukiwi
9816 thumb
ukiwi
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: n
I have:
MS

See ukiwi's full Glatiramer acetate history

Apr 17, 2011 (Started Mar 27, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily

  • 0 helpful marks
lf in nc
8500 thumb
lf in nc
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See lf in nc's full Glatiramer acetate history

Apr 5, 2011 (Started Jun 22, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Somewhat
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: Injection site reaction

  • 0 helpful marks
karilou
4462 thumb
karilou
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: vg
I have:
MS

See karilou's full Glatiramer acetate history

Apr 1, 2011 (Started Oct 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Cost: < $25 monthly

Jul 18, 2010 (Started Oct 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: It's no problem taking Copaxone. I've never had any eyesight problems, no double vision. Also no cognition problems at all.
Cost: < $25 monthly

  • 0 helpful marks
bbblooze
23937 thumb
bbblooze
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: g
I have:
MS

See bbblooze's full Glatiramer acetate history

Mar 31, 2011 (Started Jun 17, 2010)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Perceived effectiveness for Fatigue: None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 20 mg every other day
Advice & Tips: I decided the side effects were not worth the unseen bebefits in 6 mo. of taking the drug and discontinued

Aug 12, 2010 (Started Jun 17, 2010)

  • Perceived effectiveness for Fatigue: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 20 mg every other day
Advice & Tips: So far I have only been getting the side effects. I get golfball sized painful lumps at the injectino sites which are red and hot to the touch for up to 4 days following the injection. The lumps have yet to go away or lessen in size. I have been told, "this happens" and I can "rub them to minimize the size". Okay......NOT WORKING!!! Then I had what they called 'seepage' the last injection. Once the needle was remove my body basically spit the solution out. Not drip, drip, but a steady flow until just about all of it was gone. Again, I got "this can happen". These do not sound like normal reactions, nor positive things ones body should be going through to me. Just saying.

  • 0 helpful marks
Blueiisofmine
32127 thumb
Blueiisofmine
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See Blueiisofmine's full Glatiramer acetate history

Mar 9, 2011 (Started Feb 12, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 20 mg Daily
Advice & Tips: I found it is better to take the shots in the evening an hour or so before bed.
Cost: $25-49 monthly
Side effects: Hives (urticaria), Dizziness and feeling faint, Infectious Cellulitis

  • 0 helpful marks
loisa
893 thumb
loisa
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: b
I have:
MS

See loisa's full Glatiramer acetate history

Mar 8, 2011 (Started Aug 25, 2004)

  • Perceived effectiveness for Other: Can’t tell
  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: As needed
Advice & Tips: 1. it's pretty well managed, as long you rotate the sites better that any nurse could do. Do not give any injection in a hard spot, otherwise you will get lipoatrophy over time. Copaxone is daily but there are no flu symptoms, so it's great 2. can't tell if it did anything besides to try stoping my MS 3. I took Copaxone at breakfast and then go to work. So till the time I got lipoatrophy on my arms and legs, everything were going smoothly... only a recent MRI to the brain, cervical and lombar showed small lesions everywhere. So here I go to Tysabri, under my doctors orders. God and I will make it work, hopefully!
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site pain, Injection site itching

Jun 17, 2010 (Started Aug 25, 2004)

  • Perceived effectiveness for Other: Slight
  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: As needed
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site pain, Injection site itching

Jan 5, 2009 (Started Aug 25, 2004)

  • Perceived effectiveness for Other: Slight
  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: As needed
Advice & Tips: Copaxone seems to work for me because it seems my MS almost disappeared. With Copaxone I had only 2 relapses a year, but they were always slight and they left almost no sequela. This winter (2008-2009) I didn't have relapses, so it is working. The only down side are the lumps, redness, itching that results in mild lypoatrophy. But I give the injections every other day and carefully rotate the injections sites. It's all perfect now, I simply give the injection and forget! Useful hints: - rotate injections sites (keep the planner updated). - ice before and after (if you need. I do!) - give the injection in the morning (it give less anxiety, because you don't have time to think about it!). - put the injection under your amrpit for a 1 or 2 minutes till it reaches your body temperature. - if you can, give the injection manually, because it seems to be less stressful in the skin (works better to avoid lypoatrophy). - smile and breathe!
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site pain, Injection site itching

  • 0 helpful marks
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