Purpose:Idiopathic Intracranial Hypertension(Started Mar 16, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Mar 27, 2012
500 mg
Daily
Moderate
Moderate
Usually
A little
Date
Mar 27, 2012
Advice & Tips
I would not take this medication given better options, but they really don't exist for IIH. I try to take it with either breakfast or lunch, and with dinner.
Purpose:Idiopathic Intracranial Hypertension(Started May 01, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jan 23, 2012
2000 mg
Daily
Major
Moderate
Always
Somewhat
Oct 25, 2011
2000 mg
Daily
Major
Severe
Usually
A little
Date
Jan 23, 2012
Advice & Tips
This makes you very tired, and you become very aware of shifts within your brain pressure. It is, however, the only thing that kept me from further cognitive loss and blindness (which I was on the edge of). I really do recommend it, even though it kind of sucks.
We found out that my synthroid was the cause of my IIH; we don't know how, but my body somehow processes synthroid differently. I was taken off of synthroid (put onto cytomel) and spent a month being stepped off of diamox -- after the first half-life, the step-down rate became very quick (we waited until my medicine gave me two consecutive low-pressure headaches at the current dose). I still have over-sensitized eyes, non-perfect visual fields, and a lot of audio/visual identification trouble (what is that object, what does that word match up to) and strategizing/problem-solving/working memory isssues, but hopefully those will clear up in the next year or two.
Date
Oct 25, 2011
Advice & Tips
Make sure to understand whether you are having low-pressure or high pressure headaches (how they change in relation to whether or not you're lying down helps); I usually suffer high-pressure headaches but on a higher dose I realized when I took doses too close together (10 hours about instead of 12) I was actually getting some low-pressure headaches.
I don't know why a drug meant for altitude sickness has the effect of helping me lose the weight I gained on a higher dose of Mirapex, but it seems to be working. I've lost 4 or 5 pounds in the month I've been on it.
It made me very tired, weak, drained, did not notice the diurectic effects any different than before taking it, actually voiding seemed to be harder and less at the time I quit taking this drug. There was a huge difference in how I felt, which was so much better after I got off it.
Purpose:spinal fluid pressure(Started Nov 19, 2009)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Dec 20, 2009
375 mg
Daily
?Can't tell
Severe
Always
Not at all
Nov 30, 2009
375 mg
Daily
Moderate
Severe
Always
Not at all
Side effects:
Numbness in hands, Burning sensation in soles of feet, Head pain, Head pain
Date
Nov 30, 2009
Advice & Tips
unexpected dizziness, head pressure changed but head pain increased dramatically. Took medication for three weeks but started having unusual head pains and spikes. I was unable to get up in the mornings and morphine didn't even help. Concerned about migraine strokes I slowly removed myself back off of this medication, pressure and pain returned to a tolerable level for the moment.
Updating results…
0 helpful marks
Moderate
