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Requip XL Treatment Report

Category: Prescription Drugs

Generic Name: Ropinirole

See patients taking Requip XL

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31 patient evaluations for Requip XL

holmesa

Sex: F

Data Quality: 2 stars

Parkinson's: 16 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: none

Arms: mild

Chest: mild

Legs: mild
by holmesa
See holmesa's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Oct 06, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 26, 2013	8 mg Daily	Major	None	Always	Not at all
Nov 25, 2012	8 mg Daily	Moderate	None	Always	A little
Sep 23, 2012	8 mg Daily	Slight	Mild	Always	Not at all
Mar 22, 2012	16 mg Daily	Major	Mild	Always	Not at all
Dec 10, 2011	16 mg Daily	Major	None	Always	Not at all
Nov 22, 2011	16 mg Daily	Major	Mild	Always	A little
Sep 28, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Aug 15, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Jun 09, 2009	12 mg Daily	Major	Mild	Always	Not at all

Side effects:: Swelling in ankles, Muscle cramps, Pain, Fatigue, Indigestion, Lack of concentration, Swelling in feet, Nausea

Date: Sep 23, 2012
Advice & Tips: I have titrated down from 16mg to 12mg to 8mg to 4mg BUT had to go back to 12mg due to pain, cramp, clawing etc however my binge eating has stopped & my ankles & feet are not swollen.
Cost: < $25 monthly

Date: Sep 28, 2011
Advice & Tips: It is the mainstay PD treatment. Lowering the dose by 25% caused cramping & tremor.
Cost: < $25 monthly

Date: Aug 15, 2011
Advice & Tips: Difficult to titrate down - possibly due to it being slow-release
Cost: < $25 monthly

1 helpful mark

Shakin

Sex: M

Data Quality: 2 stars

Parkinson's: 7 yrs

Hoehn-Yahr 2 Type: Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Shakin
See Shakin's full Requip XL history

**Purposes:** Tremor(s) and Parkinson's Disease *(Started Nov 07, 2009)*
Date	Dosage	Tremor(s) Perceived effectiveness	Parkinson's Disease Perceived effectiveness	Side Effects	Adherence	Burden
Aug 10, 2012	8 mg Daily	Major	Moderate	Severe	Always	A little
Aug 04, 2010	24 mg Daily	Slight	Slight	Moderate	Always	A little
Apr 28, 2010	24 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Apr 17, 2010	24 mg Daily	None	None	Moderate	Always	Not at all
Apr 09, 2010	24 mg Daily	None	Slight	Mild	Always	Not at all
Apr 03, 2010	24 mg Daily	None	None	Mild	Always	Not at all
Jan 27, 2010	24 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Jan 16, 2010	20 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Jan 15, 2010	20 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Jan 09, 2010	18 mg Daily	None	?Can't tell	Moderate	Always	Not at all
Jan 01, 2010	16 mg Daily	Slight	?Can't tell	Moderate	Always	Not at all
Dec 27, 2009	16 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Dec 20, 2009	14 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Dec 12, 2009	10 mg Daily	None	?Can't tell	Moderate	Always	Not at all
Dec 11, 2009	10 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Dec 06, 2009	8 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Nov 29, 2009	6 mg Daily		None	Mild	Always	Not at all
Nov 14, 2009	2 mg Daily		?Can't tell	Moderate	Always	Not at all

Side effects:: Cramps in legs, Tiredness, Somnolence, Headaches, Nausea, Dizziness, Daytime tiredness, Back pain, Insomnia, Excessive daytime sleepiness (somnolence), Insomnia, Anxious mood

Date: Aug 04, 2010
Advice & Tips: Well I'll be switched! I took this crap (carba/leva) a couple of years ago with NO positive result. Needless to say I was not very open to the idea that we try it again. "You have not had it the way I prescribe it" I just did not see how that crap could work! I decided when I started going to DR Dewey I said I would give his treatments an honest try. I told the Doc that I would follow his advice and try it added to the Requip. DadGUM! He is on to something! Im on 24mg Requip XL + 6 mg Carba/Leva. He built me up to these very slowly, NO Really SLOWLY! Months to get to full dose. I dont sleep good at night. Want to stay up all night and watch movies with sex scenes. Other than that and being EXHAUSTED all the time, I am doing very well! Reduced but not gone is the shaking. Sometimes I go 30 minutes without shaking! I do NOT like being so heavily drugged! I can type and ten-key by touch again with good accuracy! I thought those days were gone! Still difficult putting a small nut on a bolt, or holding a drill without shaking. I have a dr appt Friday 8/6/2010 What will he say this time I REALLY want to reduce the dose of Requip and STOP the Carba/Leva
Cost: $25-49 monthly

Date: Apr 28, 2010
Advice & Tips: HAS NOT BEEN WORTH TAKING IN MY OPINION.
Cost: $25-49 monthly

Date: Apr 17, 2010
Advice & Tips: My doctor switched me from Requip XL to Mirapex ER April 9,2010. He gave me some samples until my prescription was filled.. Our Insurance company refused the the prescription, saying it was too large of a dose. My samples ran out and I had to go back on Requip XL. Now he wants me to try Levadopa for a month to see if it will help. I cannot wait to get off Requip. We are starting to consider DBS, truthfully I am very apprehensive.
Cost: $25-49 monthly

Date: Apr 09, 2010
Advice & Tips: April 9, 2010 Dr. Dewey switched me from 24mg Requip XL to 3mg Mirapex ER titrating up to 6 mg. I am to take for one month to see if it is any more effective in treating my tremors than the Requip. He says the next thing to consider is DBS. He was able to show me that the Requip has helped with my minor symptoms, it just did not help the tremor.
Cost: $25-49 monthly

Date: Apr 03, 2010
Advice & Tips: My personal experience is that Requip XL has been a waste of time and money. I guess we had to try it to know if it would help or not. I shake worse today than when I started the Requip XL, go figure! I am afraid of the withdrawals when coming off the med.
Cost: $25-49 monthly

Date: Jan 27, 2010
Advice & Tips: Last week when I went to 22mg there was no noticeable change. Did not get sick. Dry eyes are better since switching to taking in the evening. I still sleep better with Benadryl. This past Saturday (1/23/2010) I increased to my maximum dose of 24mg. Slight upset stomach the next afternoon. I don't think I would have noticed it if I had been busy doing something. I was encouraged by talking to another PWP who told me that he did not experience any benefit for the first 5 months. He is now happy with the results. Since I am at full dose I will report less often unless I experience a change. Good Luck to all, keep your head up! February 27, 2010 - Still on full dose of 24mg daily. No noticeable improvement, side affects have faded except POOR SLEEP and desire to eat all evening. Feb 12, 2010 Index finger on LEFT hand was shaking a lot. Feb 16 left hand slight tremor.
Cost: $25-49 monthly

Date: Jan 16, 2010
Advice & Tips: I am now taking my daily dose at 6:30pm. I then take Benadryl as I go to bed. Last night for the first time I got 5.5 hrs then 2.5 hrs sleep. What a good change. Still no benefit in treatment of tremors. Jan 21 update I have been on the evening schedule about a week now. I tried going without Benadryl 3 days, my sleep was very fitful. Last night I took 1x10mg Benadryl and slept 5.5 hours got up for restroom and went right back to sleep for 3 hours. Ii do think taking Requip XL in the evening has reduced the severity of the late afternoon sleepiness. However the Bennadryl helps more!
Cost: $25-49 monthly

Date: Jan 15, 2010
Advice & Tips: This week has been interesting. 1/9/10 increased dose to 20mg, no nausea, headache or sickness. Getting more sleep since starting anti-hystamines last Wednesday actually got 7 hours good sleep Wed 1/13/10. The same day my neuro insists that Requip XL is not cause of interrupted sleep patterns. He told me to start taking Requip XL in the evenings... so I did. BACK to TERRIBLE sleep. I saw the clock every hour of the night. Hope tonight is better!
Cost: $25-49 monthly

Date: Jan 09, 2010
Advice & Tips: ADVICE - Try taking 1 Benadryl tablet each evening to help with sleep interruption. EXPERIENCE - Jan 2, I increased dose to 18 mg daily. I take my daily dose at 6:30 am. About 8:30 I started feeling a slight nausea which lasted about three hours. Jan 6, I added the evening dose of Benadryl (Diphenhydramine). It has made all the difference in the world. I have gone from seeing the clock every hour of the night to actually sleeping 3 and even 5 hours at a time which feels sooooooo good! Today, Jan 9 I have increased to 20 mg, I don't expect much change. I'll let you know what happens.
Cost: $25-49 monthly

Date: Jan 01, 2010
Advice & Tips: This week on 16mg, slight upset stomach 3 days, some leg cramps, continuing with interrupted sleep each night, most nights I see the clock every hour, have started going to bed about 8:30 to try and get more sleep. Get VERY TIRED between 4 and 6pm, cannot drive more than 20 minutes without dosing off. MUST BE VERY CAREFUL! Headaches are mostly gone. As for treating symptoms - well I can't see any great improvement! I still shake like crazy, still get multiple letters when typing, have to run ten key numbers 3 or 4 times too be sure of the total.
Cost: $25-49 monthly

Date: Dec 27, 2009
Advice & Tips: Well, I got through last week with virtually no sickness. I did start having leg cramps this past week. No nausea, only very mild headache a few days. No noticeable improvement in tremor. I have noticed an improvement in use of calculator and typing (Controlled motor skills). Daytime sleepiness has worsened, 3:30 to 6:30 pm is the worst. I can only drive about twenty minutes without getting to the point of dosing off. Wednesday, I had to drive an hour to make a delivery and dosed off 6 or 7 times. Was happy to get home and realized that I must now make another change in life. Yesterday I increased to 16mg (2x 8mg XL). Mild upset stomach a couple of hours after taking, lasted less than an hour. This morning mild upset stomach about two hours after taking. I'll let you know how this week goes.
Cost: $25-49 monthly

Date: Dec 20, 2009
Advice & Tips: I do not know what it is with this medication, one week it hits me hard another week it is easy to take. I had gotten used to it "I thought" until last week going from 10 to 12 mg daily. I felt sick all day the first day, mildly sick the second and had mild head ache for 4 days. Then yesterday I increased to 14 mg, had mild sick feeling two hours after taking that lasted for about 3 hours then I was fine the rest of the day. Although I was very tired! I just took my 2nd dose at 14mg will see how it goes this week. I must say that yesterday was the first time I think I have noticed a reduction in my hand tremor. I hope this drug is actually starting to work.
Cost: $25-49 monthly

Date: Dec 12, 2009
Advice & Tips: Increased my dose from 10 to 12mg this am, Three hours later started feeling bad now 10 hours later still feel like crap! Nausea, headache general sick feeling.
Cost: $25-49 monthly

Date: Dec 11, 2009
Advice & Tips: Dec 7 increased to 10mg, Wednesday evening felt sick for about 2.5~3 hours. Other than that no difference to previous evaluations.
Cost: $25-49 monthly

Date: Dec 06, 2009
Advice & Tips: Nov 29 increased from 3 tabs 2mg to 4 tabs 2mg each, Mon 30th about two hours slight nausea. Thursday & Friday slight headache and nausea. Saturday Dec 6th felt bad all day. Nausea and headache. Sunday 7th felt ok all day. Increasing dose to 10mg tomorrow 7th. Experiencing Insomnia nights and daytime tiredness especially afternoon.
Cost: $25-49 monthly

Date: Nov 29, 2009
Advice & Tips: As with previous doses one day after increasing from 2 tabs 2XL to 3 tabs 2XL, I got Nausea, Headache and Tired. MUST eat with medication. If I eat when I get Nausea during the day it helps. Mild Headaches seem to come with this medication for me. I have not had as many headaches in 53 years as in the past 3 weeks. Still no apparent benefits, increasing to 4 tabs today will update next week.
Cost: $25-49 monthly

Date: Nov 14, 2009
Advice & Tips: Start up evaluation: First day - no effects. Second Day - very tired mild nausea. Third day - Nausea, Achy back and muscles, major dizziness (every time I got up got dizzy). Fourth day - mild nausea and head ache, Fifth day - mostly normal. Today 7th day, added second tablet waiting to see what tomorrow will bring.
Cost: $25-49 monthly

2 helpful marks

Maribeth

Data Quality: 0 stars
- Sex: Female
- Age: 66y
Condition: Narcolepsy 2 additional condition(s)
Quality of Life:
- Social: Mild
- Mental: Mild
- Physical: Mild
I am: Good
by Maribeth
See Maribeth's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Sep 12, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 18, 2011	16 mg Daily	Major	None	Always	Not at all
Mar 09, 2011	16 mg Daily	Major	Mild	Always	Not at all
Apr 08, 2010	16 mg Daily	Major	Mild	Always	Not at all
Mar 24, 2009	16 mg Daily	Major	Mild	Always	Not at all
Jan 11, 2009	16 mg Daily	Major	Mild	Always	Not at all
Nov 27, 2008	12 mg Daily	Major	Mild	Always	Not at all
Oct 26, 2008	10 mg Daily	Major	Moderate	Always	Not at all

Side effects:: Dizziness, Back pain, Tiredness, Tremor(s), Hyponatremia, Nausea, Narcolepsy

Date: Oct 18, 2011
Advice & Tips: It works for me I couldn't work without it. I was over medicated for afew weeks and had moderately severe narcolepsy!
Cost: < $25 monthly

Date: Mar 09, 2011
Advice & Tips: Just increased my dosage to work up slowly to 24mg, I can now tolerate 20mg and will increase to 22Mg for next week, I hope, I can tell the difference because my tremors had become worse in my hand, arm, and even started in my left leg, Now they have calmed down unless I get too tired. Hooray! I will add Sinemet if I really need it. but for now I can still go to work.. I take all of my Requip XL early in the AM because I can't sleep if I take it at night, It is a little unpleasant when it hits -but it lasts for me until midnight.
Cost: $100-199 monthly

Date: Apr 08, 2010
Advice & Tips: Without requip XL, I would lose my fine motor skills and would not be able to work as writing. typing, etc. would be impossible for me. Word retrieval would become impossible again. This drug is a godsend for me and no trouble to take in the early AM not at bedtime. Love it for now - even with low blood sodium levels that must be closely monitored. n
Cost: < $25 monthly

Date: Mar 24, 2009
Advice & Tips: This drug has done wonders for me. I just hope it keeps me in the condition that I am in now = a few arm and finger tremors almost seem like part of my natural self. It would be strange if they stopped. I didn't want to do any meds - just denial. I'm glad my neurologist knows the magic words to make me do what is best.
Cost: < $25 monthly

Date: Jan 11, 2009
Advice & Tips: TRY IT - IT'S REALLY BAD SIDE EFFECTS FOR ABOUT 24 HOURS WHEN YOU START OR INCREASE - BUT THEN IT'S GREAT - A STEADY FLOW OF MEDS
Cost: < $25 monthly

Date: Nov 27, 2008
Advice & Tips: I was in denial, my usual state of mind about life in general,so I did not want to take any drug. My neurologist was very patient and did not push me to do anything. I started the drug - got very sick and then improved rapidly. You never know how your body, brain will react to drugs until you try them
Cost: < $25 monthly

Date: Oct 26, 2008
Advice & Tips: It makes you sick. About 20 minutes after you take it, it feels like you got hit by a car and knocked off a cliff with lightheadedness and nausea all the way down - then on some days after that I feel so good - like I never knew that a person could feel. Be sure to be compliant with this medication. I wasn't at first - too much denial and it was horrible.

0 helpful marks

LifesGardener

Sex: F

Data Quality: 2 stars

Parkinson's: 3 yrs

Hoehn-Yahr 3 Type: Parkinsonism (unknown cause) On

Mouth/throat: none

Arms: none

Chest: mild

Legs: mild
by LifesGardener
See LifesGardener's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Mar 17, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 15, 2011	6 mg Daily	Slight	None	Always	Somewhat
Mar 31, 2011	6 mg Daily	Moderate	None	Always	A little

Date: Apr 15, 2011
Advice & Tips: This treatment has reduced the number and severity of night time foot and calf cramps.
Cost: $25-49 monthly

0 helpful marks

Magzmom

Sex: F

Data Quality: 1 star

Parkinson's: 9 yrs

Hoehn-Yahr 2 Type: Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Magzmom
See Magzmom's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Sep 01, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 12, 2011	6 mg Daily	Moderate	Moderate	Always	Not at all
May 21, 2010	6 mg Daily	Moderate	Moderate	Always	Not at all

Side effects:: Weight gain

Date: May 21, 2010
Advice & Tips: Helps with both tremor and restless leg syndrome.
Cost: < $25 monthly

0 helpful marks

daddytom

Sex: M

Data Quality: 2 stars

Parkinson's: 18 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by daddytom
See daddytom's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Aug 26, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 25, 2011	8 mg Daily	Moderate	Severe	Always	Not at all
Jan 03, 2011	8 mg Daily	Moderate	Moderate	Always	Somewhat

Side effects:: Frequent nausea

Date: Mar 25, 2011
Advice & Tips: Do not stop youe meds with out your Drs approval And be sure you titrate down slowly
Cost: < $25 monthly

Date: Jan 03, 2011
Advice & Tips: I need to be very careful and watch my actions. I do believe Requip makes OC. I have talked to my Dr and when I believe OC behaviour is effecting my marriage and my life in negative ways we will ty something else. It is a pain, but Requip does appear to help PD symptoms
Cost: < $25 monthly

0 helpful marks

LifesGardener

Sex: F

Data Quality: 2 stars

Parkinson's: 3 yrs

Hoehn-Yahr 3 Type: Parkinsonism (unknown cause) On

Mouth/throat: none

Arms: none

Chest: mild

Legs: mild
by LifesGardener
See LifesGardener's full Requip XL history

**Purpose:** Stiffness/Spasticity *(Started Dec 21, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 07, 2011	6 mg Daily	Slight	None	Always	Not at all

Date: Mar 07, 2011
Advice & Tips: this dosage was insufficient. Changed to Requip XL.
Cost: < $25 monthly

0 helpful marks

outdoorsguy

Sex: M

Data Quality: 1 star

Parkinson's: 3 yrs

Hoehn-Yahr 1 Type: Parkinson's disease On

Mouth/throat: mild

Arms: none

Chest: none

Legs: mild
by outdoorsguy
See outdoorsguy's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Nov 01, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 06, 2011	14 mg Daily	Slight	Mild	Always	Not at all

Side effects:: Cramps in legs

Date: Feb 06, 2011
Advice & Tips: I did well up until the 10 mg dose and then I began to feel worse. It is hard to directly link it to the dosage as a side effect. I'll reevaluate and see how I feel at 12 mg dosage.
Cost: < $25 monthly

0 helpful marks

alwayslearning

Sex: F

Data Quality: 2 stars

Parkinson's: 4 yrs

Hoehn-Yahr 2 Type: Parkinsonism (unknown cause) On

Mouth/throat: none

Arms: none

Chest: none

Legs: mild
by alwayslearning
See alwayslearning's full Requip XL history

**Purpose:** Parkinson's Disease *(Started Nov 21, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 23, 2011	8 mg Daily	Moderate	Moderate	Always	A little
May 30, 2010	4 mg Daily	Major	Mild	Always	A little
Jan 07, 2010	4 mg Daily	Moderate	Mild	Always	Not at all

Side effects:: Stiffness in fingers, Headaches, Joint stiffness, Sleep problems, Tendonitis, Hair loss, Stiffness in hands

Date: Jan 23, 2011
Advice & Tips: Requip XL definitely controls the rigidity in my left arm and the curling, charlie horse in hands and feet. But new symptoms have appeared and I'm not sure if it's from the Meds or PD. I wake up with achy, stiff fingers and my whole body pops and cracks at the joints when I move - tendonitis? I also sleep less and have gained a little weight.
Cost: $25-49 monthly

Date: May 30, 2010
Advice & Tips: Reduces rigidity Elevates mood
Cost: < $25 monthly

Date: Jan 07, 2010
Advice & Tips: Although early in my treatment, I believe it has reduced the tremor and rigidity. I plan on staying with the lowest dose possible...
Cost: < $25 monthly

0 helpful marks

tchrterri

Sex: F

Data Quality: 3 stars

Parkinson's: 11 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: moderate
by tchrterri
See tchrterri's full Requip XL history

**Purposes:** Parkinson's Disease and Disordered muscle tension (dystonia) *(Started Nov 30, 2008)*
Date	Dosage	Parkinson's Disease Perceived effectiveness	Disordered muscle tension (dystonia) Perceived effectiveness	Side Effects	Adherence	Burden
Dec 01, 2010	2 mg Daily	Slight	Major	Severe	Always	Somewhat
Jan 14, 2009	2 mg Daily	Moderate		Mild	Always	A little

Side effects:: Nausea

Date: Dec 01, 2010
Advice & Tips: 1. Consult with a pharmacist or a psychiatrist to find out how this drug may affect your behavior and/or mood. 2. Draw up a plan. Make sure your family and friends know to watch for any signs of behavior changes. These can be subtle at first. YOU, the patient, probably won't realize what is happening. Obsessive/compulsive and impulsive behaviors can include a lot of things besides gambling, overeating, and overspending. 3. This drug can cause hyper-sexuality. Talk to your partner and be mindful of possible effects from the drug. This is not a nice side effect!! 4. Are you also taking Sinemet? The two together can amplify side effects. We were not told about these side effects.
Cost: $25-49 monthly

Date: Jan 14, 2009
Advice & Tips: This drug can be intense for a lot of people. It does help, though. Takes a lot of experimenting to find the right dose and combination of meds.
Cost: $25-49 monthly

0 helpful marks

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