31 patient evaluations for Phenytoin

Fluff4brains
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Fluff4brains
Data Quality: 3 stars
  • Sex: M
  • Age: 48
Condition: Glioblastoma 4 additional condition(s)
Quality of Life:
  • Mental: None
  • Physical: None
I am: vg
I have:
Glioblastoma

See Fluff4brains's full Phenytoin history

Nov 14, 2014 (Started Oct 20, 2014)

  • Perceived effectiveness for Seizures: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Twice daily

Nov 13, 2014 (Started Oct 20, 2014)

  • Perceived effectiveness for Seizures: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Twice daily
Advice & Tips: On stronger doses, you do feel like your IQ has dropped significantly. I spent an afternoon trying to work out how to switch my watch off Daylight Savings (and failed). You can make very poor and impulsive decisions. A client who didn't know my condition was bugging me for a conference call, and I sent him a selfie from my ICU bed to explain that, no, I can't do a conference call (blush). You can miss out on vital information - it just flies over your head. I wish I could say you feel care free, but you don't because you know you're missing your mental cognition. You need to make notes about EVERYTHING, especially questions for med team. You need to re-read those notes and add further notes. IMHO, you need to get your Phenytoin exit strategy in place as soon as you learn how to say it. The day my dosage halved and we added Keppra was such a joy - I could think again!

  • 0 helpful marks
Cagedbrd
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Cagedbrd
Data Quality: 1 star
  • Sex: F
  • Age: 25
Condition: Systemic Lupus Erythematosus 9 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: n
I have:
Systemic Lupus Erythematosus

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Jul 21, 2013 (Started Jul 21, 2013)

  • Perceived effectiveness for Psychogenic Non-epileptic Seizures: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg One time
Advice & Tips: Allergy anaphylaxis

  • 0 helpful marks
cuddle
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cuddle
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Most
Stiffness: All
function: Little
external_stress: None
Stickman: most
Description:F49y
CFS:?y
FM:14y Dx
I am: vb
I have:
Fibromyalgia

See cuddle's full Phenytoin history

Jul 1, 2013 (Started Mar 08, 2012)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily

  • 0 helpful marks
pheonix61
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pheonix61
Data Quality: 1 star
  • Sex: M
  • Age: 63
Condition: COPD 43 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
COPD

See pheonix61's full Phenytoin history

Apr 28, 2013 (Started Apr 27, 1994)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: < $25 monthly

Mar 12, 2013 (Started Apr 27, 1994)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: < $25 monthly

Jan 3, 2013 (Started Apr 27, 1994)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 600 mg Daily
Cost: < $25 monthly

Jul 17, 2012 (Started Apr 27, 1994)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 600 mg Daily
Cost: < $25 monthly

Apr 28, 2012 (Started Apr 27, 1994)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 600 mg Daily
Advice & Tips: Phenytoin is an Osteoclast drug, that is the effects on my body make my osteoporosis worse, I do take a 1050mg codliver oil/vit D capsule as recomended by the neurologist as he is conversant with my osteoporosis. Furher to that my appointment with his clinic in May will be looking to reducing the dose further which at present is 200mg daily.
Cost: < $25 monthly

  • 0 helpful marks
pheonix61
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pheonix61
Data Quality: 1 star
  • Sex: M
  • Age: 63
Condition: COPD 43 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
COPD

See pheonix61's full Phenytoin history

Mar 15, 2013 (Started Jun 30, 1992)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Ringing in ears (tinnitus): Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Jan 26, 2013 (Started Jun 30, 1992)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Ringing in ears (tinnitus): Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 800 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
CaitlinNatalie
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CaitlinNatalie
Data Quality: 1 star
  • Sex: F
  • Age: 20y
  • Duration: ? yrs
Quality of Life:
  • Mental: Moderate
  • Physical: None
1 seizure
120 weeks ago
I am: n
I have:
Epilepsy

See CaitlinNatalie's full Phenytoin history

Aug 23, 2012 (Started May 15, 2012)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily

  • 0 helpful marks
Stormborn
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Stormborn
Data Quality: 1 star
  • Sex: M
  • Age: 34y
  • Duration: 32 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
132 weeks ago
I am: vb
I have:
Epilepsy

See Stormborn's full Phenytoin history

May 28, 2012 (Started Jun 15, 2002)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I got sick, I stayed sick, low T-cell count, low white blood cell count. I know very few people have this problem with this medication, but this is far and away the one of the two worst treatments I endured for my epilepsy.

  • 0 helpful marks
ajcmglover
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ajcmglover
Data Quality: 0 stars
  • Sex: M
  • Age: 34y
  • Duration: 22 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
4 seizures
193 weeks ago
I am: b
I have:
Epilepsy

See ajcmglover's full Phenytoin history

Jan 22, 2012 (Started Apr 12, 1994)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 800 mg Daily
Advice & Tips: I dont know how I would fall asleep without it. I dont like it in the morning.
Cost: < $25 monthly

  • 0 helpful marks
mpatient
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mpatient
Data Quality: 2 stars
  • Sex: F
  • Age: 67y
  • Duration: 67 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy, Right Temporal Lobe Resection
0 seizures
97 weeks ago
I am: n
I have:
Epilepsy

See mpatient's full Phenytoin history

Dec 30, 2011 (Started Mar 01, 2010)

  • Perceived effectiveness for Epilepsy: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 150 mg Daily
Advice & Tips: I had surgery 8/27/11, and they said it cured me. Started getting all toxic effects from dilantin. It never worked and just makes me sick. If I take with food, it seems to help block it a bit.
Cost: < $25 monthly

  • 0 helpful marks
WEZIE
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WEZIE
Data Quality: 1 star
  • Sex: F
  • Age: 53y
  • Duration: 7 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
179 weeks ago
I am: n
I have:
Epilepsy

See WEZIE's full Phenytoin history

Jan 4, 2011 (Started May 15, 1961)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 300 mcg Daily
Advice & Tips: i just know i have to take this now in order to stay seizure free
Cost: < $25 monthly
Side effects: Daytime sleepiness

  • 0 helpful marks
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Showing 10 of 31 patient evaluations for Phenytoin