Evaluations from Patients who take Naltrexone

jennikb

Sex: F

Data Quality: 2 stars

ALS: 6 yrs

Wheelchair

Bulbar: mild

Arms: severe

Chest: mild

Legs: severe
by jennikb
See jennikb's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Feb 10, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 22, 2013	4.5 mg Daily	Major	None	Always	A little
Mar 26, 2012	4.5 mg Daily	Moderate	None	Always	Not at all
Dec 14, 2011	4.5 mg Daily	Moderate	Mild	Always	Not at all

Date: Apr 22, 2013
Advice & Tips: 9 months after being dx with ALS, I noticed that my voice in 2009 stabilized. In 2013, my voice and swallowing are basically the same. I give most credit to taking LDN.
Cost: $25-49 monthly

Date: Mar 26, 2012
Advice & Tips: I am seeing many ALS patients loosing their voice. I am convinced that LDN is what prevented me from loosing mine. I started on the drug a couple years ago, noticed an immediate impact, and have not gotten off. My voice is still around which was contrary to my original progression. I still struggle, but most people can understand what I am saying with very little repeating. Please consider using just to see if it works for you.
Cost: < $25 monthly

Date: Dec 14, 2011
Advice & Tips: This seemed to be the reason why I was able to keep my voice. No proof of this fact, but it certainly is the appearance from my perspective.
Cost: < $25 monthly

1 helpful mark

slowrambler

Sex: M

Data Quality: 1 star

MS: 37 yrs

Type: Secondary Progressive

Relapse: Moderate

Sensation: Severe

Overall: Mild

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: severe
by slowrambler
See slowrambler's full Naltrexone history

**Purpose:** MS (Multiple Sclerosis) *(Started Sep 01, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 07, 2012	4.5 mg Daily	Major	None	Always	Not at all
Feb 09, 2009	4.5 mg Daily	Major	None	Always	Not at all
Sep 07, 2008	4.5 mg Daily	Major	None	Always	Not at all

Date: Sep 07, 2012
Advice & Tips: This medication's given me some very un-expected increase in heat tolerance.
Cost: $50-99 monthly

Date: Sep 07, 2008
Advice & Tips: This medication is FDA approved for MS in "compounded" form only. If an MS patient can obtain a prescription for this medication (many neurologists won't consider writing a script for this), they'll need to have access to a "compounding" pharmacy. As with all medications, success rates appear to vary. Many people who I know that are using LDN have realized dramatic, if not astonishing symptomatic relief in addition to less disease activity. Some that I know tried it for a period of time without any noticible relief or change & thus stopped using it. Success rates have seemed to depend on dosage level, at least from my observations. Some using LDN notice change almost immediately at the lower dosage levels. Others, as noted above, realize no change at any dosage level. Personally, the symptom relief that I've noticed most is an increase in heat tolerance. As far as my overall success rate, I'd say this medication has done very well in slowing the progression. I've gone over 15 months without having an exacerbation or needing IV solu-medrol. 11 of those months have been since I began using LDN, & I'm not using highest dosage. Maintaining my mobility level & being essentially symptom free for this period of time is very unusual (& quite pleasant!) for me; especially over the last 3 yrs. Note: neurologists/MS specialists might recommend a dormant period of time between stopping a current medication (Beta-Seron, Avonex, etc.) & the beginning of LDN use.
Cost: $50-99 monthly

3 helpful marks

jmb727

Data Quality: 0 stars
- Sex: Female
- Age: 28y
Condition: Interstitial Cystitis 2 additional condition(s)
Quality of Life:
- Social: Moderate
- Mental: Moderate
- Physical: None
I am: Neutral
by jmb727
See jmb727's full Naltrexone history

**Purpose:** Interstitial Cystitis *(Started Feb 15, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 17, 2012	4.5 mg Daily	Slight	None	Always	Not at all

Date: Aug 17, 2012
Advice & Tips: This treatment needs to be given a fair chance for at least a year, based on other IC patients that have received positive results. After 6 months, my symptoms have improved 35 to 40%. I will be looking into increasing my dosage. My overall energy is much better. I sleep like a baby most nights, now.
Cost: $50-99 monthly

0 helpful marks

Thekla

Sex: F

Data Quality: 2 stars

MS: 15 yrs

Type: Secondary Progressive

Sensation: Moderate

Overall: Mild

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: moderate

Walking: severe
by Thekla
See Thekla's full Naltrexone history

**Purpose:** MS (Multiple Sclerosis) *(Started Feb 15, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 01, 2012	2.5 mg Daily	Moderate	Moderate	Always	A little
Sep 30, 2011	4 mg M,W,F	Slight	Moderate	Always	Not at all

Date: Sep 30, 2011
Advice & Tips: It really seemed to help for years but we suspect that I have become sensitized to it. It was suggested that I drop my dosage to 2mg but it is very difficult to obtain here.

0 helpful marks

Outofmymind

Data Quality: 0 stars
- Sex: Female
- Age: 62y
Condition: Ulcerative colitis 9 additional condition(s)
Quality of Life:
- Social: Moderate
- Mental: Moderate
- Physical: Mild
I am: Neutral
by Outofmymind
See Outofmymind's full Naltrexone history

**Purposes:** Ulcerative colitis, Psoriatic Arthritis, and Fatigue *(Started May 01, 2012)*
Date	Dosage	Ulcerative colitis Perceived effectiveness	Psoriatic Arthritis Perceived effectiveness	Fatigue Perceived effectiveness	Side Effects	Adherence	Burden
Jul 12, 2012	3 mg Daily

Date: Jul 12, 2012
Advice & Tips: I can't believe the positive effect it has on my arthritic pain. I take very little medication for this condition and I feel LDN has turned out to be a panacea. I hope in time I get the same results for ulcerative colitis and fatigue.
Cost: $25-49 monthly

0 helpful marks

binet

Sex: M

Data Quality: 2 stars

ALS: 7 yrs

Wheelchair

Bulbar: moderate

Arms: severe

Chest: mild

Legs: moderate
by binet
See binet's full Naltrexone history

**Purposes:** ALS (Amyotrophic Lateral Sclerosis) and Immune system weak *(Started Mar 22, 2012)*
Date	Dosage	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Immune system weak Perceived effectiveness	Side Effects	Adherence	Burden
May 25, 2012	5 mg Daily	Slight	Slight	None	Always	Somewhat
May 20, 2012	5 mg Daily	Slight	Moderate	None	Always	A little

Date: May 20, 2012
Advice & Tips: 14days 1,5mg 14 days 3mg after 4,5mg tremblements et asphyxie les 10e jours arreter puis repre ndre

0 helpful marks

cinéphile 94

Sex: M

Data Quality: 3 stars

ALS: 4 yrs

Bi-Pap Wheelchair

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe
by cinéphile 94
See cinéphile 94's full Naltrexone history

**Purposes:** ALS (Amyotrophic Lateral Sclerosis) and Support immune health *(Started Sep 24, 2011)*
Date	Dosage	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Support immune health Perceived effectiveness	Side Effects	Adherence	Burden
May 21, 2012	4.5 mg Daily	Slight	Moderate	None	Always	Not at all
Apr 19, 2012	4.5 mg Daily	Moderate	Moderate	None	Always	Not at all

Date: May 21, 2012
Advice & Tips: I had to stop in order to begin normast. Because LDN blocks opioid receptors throughout the body for three or four hours, people using medicine that is an opioid agonist, i.e. narcotic medication — such as Ultram (tramadol), morphine, Percocet, Duragesic patch or codeine-containing medication — should not take LDN until such medicine is completely out of one's system.
Cost: $25-49 monthly

Date: Apr 19, 2012
Advice & Tips: Less yawning,less saliva. Part of my regimen along with detoxifier and antioxydants. Thanks to this combination some of my muscles are coming back to life! furthermore no cold, no flu. I'll tell you you have to 'take LDN.
Cost: $25-49 monthly

0 helpful marks

alohawoman

Sex: F

Data Quality: 0 stars

Pain: Most

Fatigue: Some

Sleep: All

Stiffness: All

function: Most

external_stress: Most

Stickman: most
Description:F54y
FM:7y Dx
by alohawoman
See alohawoman's full Naltrexone history

**Purpose:** Fibromyalgia *(Started Oct 25, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 25, 2012	4.2 mg Daily	Moderate	None	Always	Not at all

Date: Apr 25, 2012
Advice & Tips: My Kaiser Internal Medicine MD would not prescribe because it's off-label, even though I sent her links to two studies that showed this was helpful and with no side effects. A functional medicine doctor my husband had been seeing prescribed it for me instead. YI - It has to be compounded at a Pharmacy and I have to pay out of pocket since Kaiser won't prescribe. It helps take some of the "nervy" burning pain away and I have not had any side effects whatsoever like I have with every other medication.
Cost: $25-49 monthly

1 helpful mark

DoubleLoader

Sex: M

Data Quality: 1 star

Major Depressive Disorder

Depression: 2

Mania: 0

Emotional: 1

Anxiety: 2

Compulsion: 2

External Stress: Severe

Rx

26 M

Function: Moderate

Distress: Moderate
by DoubleLoader
See DoubleLoader's full Naltrexone history

**Purpose:** Fatigue *(Started Dec 20, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 19, 2012		Slight	None	Always	Not at all
Feb 15, 2012	4.5 mg Daily	Slight	None	Always	Not at all

Date: Apr 19, 2012
Advice & Tips: I didn't notice a major change in my fatigue for any direction. Still I would say that I was feeling slightly better during the treatment than before and after it, perhaps from other reasons.
Cost: < $25 monthly

0 helpful marks

Dawn Angel

Sex: F

Data Quality: 2 stars

Parkinson's: 6 yrs

Hoehn-Yahr 2 Type: Parkinson's disease On

Mouth/throat: none

Arms: none

Chest: none

Legs: mild
by Dawn Angel
See Dawn Angel's full Naltrexone history

**Purpose:** Parkinson's Disease *(Started Jun 09, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 08, 2012	4.5 mg Daily	None	None	Always	Not at all
Aug 13, 2011	4.5 mg Daily	?Can't tell	None	Always	Not at all

Date: Aug 13, 2011
Advice & Tips: Worth a try, although my initial optimism has not continnued.
Cost: $25-49 monthly

1 helpful mark