Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Feb 28, 2002)
Date
Dosage
Efficacy
Side Effects
Adherence
Burden
Mar 12, 2011
5000 mg
Daily
?Can't tell
Mild
Always
Not at all
Jan 21, 2010
5000 mg
Daily
?Can't tell
None
Always
Not at all
Date
Mar 12, 2011
Advice & Tips
I have ALS with both upper and lower neurone damage yet my progression has been slow having survived 10 years from first symptoms and still have qualty of life. The only side effect is occasional diahoria which I think is natures way of saying you have taken a bit too much.
I would recommend people to take it as soon as possible after diagnosis. It needs to be natural vitamin-E. Look at Dr Carsten Hager and vitamin E on the internet to find out why I take it.
Cost:
< $25 monthly
Date
Jan 21, 2010
Advice & Tips
Build up to the full dose over 2-3 weeks.
The only side effect I have had is occasional diahorea which seems to be the body's way of telling you you have taken too much.
I would advise plwMND to take it as early as possible (two thirds dose mid am and remaining 1/3 mid p.m)
Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Mar 01, 2010)
Date
Dosage
Efficacy
Side Effects
Adherence
Burden
Jan 01, 2011
1200 mg
Daily
None
None
Always
Not at all
Date
Jan 01, 2011
Advice & Tips
I took this vitamin in various dosages for 10 years and did not see any benefit. After doing personnel research on the internet and seeing the result of clinical trials finding it doesn't have any therapeutic value I decided to discontinue usage.
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