2 patient evaluations for Clobazam with a side effects rating of Mild

dhaniboi
19508 thumb
dhaniboi
Data Quality: 3 stars
  • Sex: M
  • Age: 44y
  • Duration: 40 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
35 seizures
1 week ago
I am: n
I have:
Epilepsy

See dhaniboi's full Clobazam history

Oct 17, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: lessenes temper occurance, but Keppra rage is still there. Not gonna even think of taking more than 15mg a day till I cam have a BM daily without help i.e. prune juice, OTC peri colace, mineral oil or olive oil.
Cost: $200+ monthly

Oct 12, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: I might need colace, I had no BM today but chalking that up to stress, gotta talk to Eddie about lessening his alcohol intake.
Cost: $200+ monthly

Oct 11, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: my system seems to be getting used to the Onfi. just have used prune juice or coffee.
Cost: $200+ monthly

Oct 9, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: think my body is finally getting used to Onfi because I had a BM about 2 hours after coffee like normal. taking 1 pill in the AM and 1/2 at night. Not ready to go to 1 BID unless I get a script for pericolace in case it "clogs" me up again.
Cost: $200+ monthly

Oct 8, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: first BM with no help for about 2 weeks.
Cost: $200+ monthly

Oct 6, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: lessens my bad moods.
Cost: $200+ monthly

Oct 5, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: my body is getting used to it because it doesn't make me as sleepy. The constipation is better to but that may be because I have mineral oil in AM and a glass of prune juice with dinner.
Cost: $200+ monthly

Oct 2, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: did a small glass of prune juice with dinner. More than a glass feels like a colon clease diet.
Cost: $200+ monthly

Sep 28, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: took 3 yesterday and that helped. the 1 today didnt. may need perscription peri-colace.
Cost: $200+ monthly

Sep 27, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: works great at 10mg in the AM then 5mg at night. I love this medication but it makes me very constipated.
Cost: $200+ monthly

Sep 26, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: temper has lessened in my view. Started on 5 mg and 5 mg for a week, didnt do squat. After 7 days I still felt bad so went to 10mg in am and 5 in pm when I went to 10 mg I started having numerous complex partials and one drop attack. I went back to 10mg in am and 5 in pm and everything is back to good.
Cost: $200+ monthly

Sep 25, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Cost: $200+ monthly

Sep 23, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: had 2 drop attacks ans 2 partial complex in the last 2 days. I Did feal much better on 1 in am an 1/2 in pm. raising Fycompa to three to night it I sleep past noon I am emailing him ASAP. I was so happy with onfi.
Cost: $200+ monthly

Sep 21, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: no no seizures for a few days. had one now. maybe take a fycompa at 6:00pm?
Cost: $200+ monthly

Sep 20, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Cost: $200+ monthly

Sep 18, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: temper is better
Cost: < $25 monthly

Sep 17, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I dont "lose it" as easy. I dropped1 Pill of Fycompa and I woke up at 10:30am. I think I was on to many sedating medications at night. Pills are 9.68.
Cost: < $25 monthly

Sep 16, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Slept till about 2 pm today so dropping 4 MG of Fycompa.
Cost: < $25 monthly

Sep 15, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: slept till almost 1 pm. not sure if fycompa should be lowered 4 MG.
Cost: < $25 monthly

Sep 12, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: seizures are still increasing so increase to 1 tablet in am and .5 pill at pm, seizures have decresed by 1/2 if not more.
Cost: < $25 monthly

Sep 11, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: full dose helped .5 dose helps a little
Cost: < $25 monthly

Sep 10, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Started on 1/2 a pill twice a day. I want to up it because the seizure feeling is there from waking till sleeping. Last year at this time it was 8 a day at max and all occured after 4pm. dont take with water.
Cost: < $25 monthly

Sep 6, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Cost: < $25 monthly

Sep 4, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I woke up at 10 am then sat in a chair and fell asleep again till 1pm
Cost: < $25 monthly

Sep 3, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Major
  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: lets me wake rested.
Cost: < $25 monthly

Aug 30, 2014 (Started Sep 29, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I just started it but it allowed me to get a sound sleep and awake with NO seizures as of yet.
Cost: < $25 monthly

  • 0 helpful marks
pheonix61
45106 thumb
pheonix61
Data Quality: 1 star
  • Sex: M
  • Age: 63
Condition: COPD 43 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: vb
I have:
COPD

See pheonix61's full Clobazam history

Jul 17, 2012 (Started Oct 03, 1991)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Advice & Tips: being a minor tranquilizer as well clobazam helps with the occasional flutters I get from my GAD problems
Cost: < $25 monthly

Apr 30, 2012 (Started Oct 03, 1991)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Cost: < $25 monthly

Apr 28, 2012 (Started Oct 03, 1991)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Advice & Tips: being of the benzodiazipine class of drugs it has also had somewhat a marked effect on my psycosis.
Cost: < $25 monthly

  • 0 helpful marks
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Showing 2 of 2 patient evaluations for Clobazam