Ursodiol Treatment Report

• jamieb012606

  Data Quality: 1 star

  • Sex: Female
  • Age: 28y

  Condition: PFIC 1 additional condition(s)

  Quality of Life:

  • Social: None
  • Mental: None
  • Physical: None

  I am: Good

• 
• by jamieb012606
• See jamieb012606's full Ursodiol history

Purpose: Progressive Familial Intrahepatic Cholestasis (Started Dec 01, 2008)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 27, 2011	200 mg Daily	Major	None	Always	Not at all

• 0 helpful marks

• Gang1

  Sex: M

  Data Quality: 1 star

  ALS: 3 yrs

  Bi-Pap Wheelchair

  Bulbar: mild

  Arms: severe

  Chest: moderate

  Legs: severe

• 
• by Gang1
• See Gang1's full Ursodiol history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 26, 2011)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 16, 2011	500 mg Daily	None	None	Always	Not at all

Date

Jun 16, 2011

Advice & Tips

I stopped taking this when I stopped taking ceftriaxone

Cost

< $25 monthly

• 0 helpful marks

• sheronemus

  Sex: M

  Data Quality: 2 stars

  ALS: 9 yrs

  Bi-Pap Wheelchair Feeding tube

  Bulbar: moderate

  Arms: severe

  Chest: moderate

  Legs: moderate

• 
• by sheronemus
• See sheronemus's full Ursodiol history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Oct 12, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 31, 2010	900 mg Daily	?Can't tell	Severe	Always	Somewhat

Side effects:

Diarrhea

Date

Oct 31, 2010

Advice & Tips

Couldn’t get to recommended dose due to diarrhea

Cost

< $25 monthly

• 0 helpful marks

• Buying Time

  Sex: M

  Data Quality: 0 stars

  ALS: 9 yrs

  Bi-Pap Wheelchair

  Bulbar: mild

  Arms: moderate

  Chest: moderate

  Legs: moderate

• 
• by Buying Time
• See Buying Time's full Ursodiol history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Dec 09, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 21, 2010	600 mg Daily	?Can't tell	Mild	Always	A little

Side effects:

Weight loss, Low cholesterol

Date

Feb 21, 2010

Advice & Tips

Sadly, it did not seem to help me. Side effects were pretty mild, although I did lose quite a bit of weight while on ursodiol.

Cost

< $25 monthly

• 0 helpful marks

• kinma

  Sex: F

  Data Quality: 0 stars

  ALS: 5 yrs

  Wheelchair

  Bulbar: moderate

  Arms: severe

  Chest: mild

  Legs: severe

• 
• by kinma
• See kinma's full Ursodiol history

Purpose: Gall stones (Started Nov 09, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 08, 2010	500 mg Daily	None	None	Always	Not at all

• 0 helpful marks

• LincolnAve

  Sex: M

  Data Quality: 0 stars

  ALS: 8 yrs

  Bi-Pap

  Bulbar: mild

  Arms: mild

  Chest: mild

  Legs: moderate

• 
• by LincolnAve
• See LincolnAve's full Ursodiol history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 06, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 07, 2009	3000 mg Daily	Slight	None	Always	Not at all

Date

Apr 07, 2009

Advice & Tips

Take it early and it may be beneficial. It definitely does not reverse ALS.

Cost

< $25 monthly

• 0 helpful marks

19 additional evaluations for Ursodiol are not currently shared publicly.