Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started May 22, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jun 20, 2012
1200 mg
Daily
Major
None
Always
Not at all
Jun 01, 2012
1200 mg
Daily
Major
None
Always
Not at all
Date
Jun 20, 2012
Advice & Tips
4 weeks of normast+ashwaganda + stretching exercices
Breathing : a little better. More and more, I can whisper , sometimes I can even say a few words aloud. It means that my diaphragm is getting stronger.
Right arm and right thumb: a little stronger
Left arm and legs: new connections ( beginning of new movements)
So far it’s working. Will it last ? We’ll see…
Date
Jun 01, 2012
Advice & Tips
Ten days of normast (tablets 600 mg x 2)
Early May ALS had taken over: my breathing got worse, I needed my Bi-Pap almost 24h/24, I had no more appetite, my voice got weak, my speech was no longer understandable, excess saliva…
Normast not only put a hold but I’ve been experiencing some improvements:
Breathing: slightly better, I can breathe again 20’ without my Bi-Pap , I eat a little more.
My voice is stronger, my speech is better
Excess saliva: I’ve got a small window in the morning, and another one of around 2 hours in the afternoon during which my saliva is back to normal
Arms: a little stronger
I now hope that it’s only the beginning. We’ll see.
I add some Indian ginseng believing the combination of the two will be more powerfull
Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Jun 01, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jun 17, 2012
1200 mg
Daily
Moderate
None
Always
Not at all
Date
Jun 17, 2012
Advice & Tips
legs seemed weaker, walking more unstable, more pain while sleeping. may be a coincidence, but not taking chances. 6/17: After just a few days off, I was much weaker, to the point of being afraid to stand for fear of falling. I believe the reason for the previous falls was just due to having more strength to walk and just being careless when moving. Since being back on it, I have had increased strength; standing from a sitting position is much easier. And my energy level has improved. I also added a second dose of Cymbalta before bed, which is helping with night time pain.
Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started May 29, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Jun 04, 2012
1200 mg
Daily
None
Moderate
Always
Not at all
May 29, 2012
1200 mg
Daily
?Can't tell
None
Always
Not at all
Date
Jun 04, 2012
Advice & Tips
I have stopped taking the normast (tablets 600 mg x 2) after 5 days as I experienced an acceleration of progression. My right arm is a bit weaker and my swallowing/chewing has deteriorated, I'm also feeling very fatigued.
Of course I cannot definitely attribute this to the Normast, it may just be a coincidence.
Cheers Barry
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