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ALS Phase 3 Study Dexpramipexole (KNS-760704) Treatment Report

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5 patient evaluations for ALS Phase 3 Study Dexpramipexole (KNS-760704) with a side effects rating of NoneNoneNoneNoneNone

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 24, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 16, 2013 300 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Nov 26, 2012 300 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Nov 26, 2012
Advice & Tips
Been rolled over to open-label for DEX. We hope to have a read-out soon (Dec/Jan) on results. I either have a really slow onset or this drug is really working... maybe both. While I've lost much strength in my right hand, all else is good for the last 2 years. My only negative was an early spike in Liver enzimines...
Cost
< $25 monthly
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Purpose: Participate in clinical trial (Started Jun 16, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 11, 2012 300 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 11, 2012
Advice & Tips
This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.
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Purposes: Participate in clinical trial and ALS (Amyotrophic Lateral Sclerosis) (Started Sep 10, 2011)
Date Dosage Participate in clinical trial Perceived effectiveness ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Oct 10, 2012 2 Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jul 05, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 26, 2012 300 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 20, 2011 300 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_on 5 helpful marks
Purpose: Participate in clinical trial (Started Sep 09, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 31, 2012 300 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
  • Icon_thumb_on 1 helpful mark

19 additional evaluations for ALS Phase 3 Study Dexpramipexole (KNS-760704) are not currently shared publicly.