Mycophenolic acid Treatment Report

• renalpenguin

  Data Quality: 0 stars

  • Sex: F
  • Age: 21y
  • Organ: Kidney

  Quality of Life:

  • Social: None
  • Mental: Mild
  • Physical: None

  1. Kidney : 2y Transplanted

• 
• by renalpenguin
• See renalpenguin's full Mycophenolic acid history

Purpose: Focal glomerulosclerosis (Started Oct 25, 2008)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 01, 2008	360 mg Every 12 Weeks	Slight	Mild	Always	Very

Date

Nov 01, 2008

Advice & Tips

I had a very hard time swallowing the pills, which is why I am on CellCept post-transplant and not MMF.

• 0 helpful marks

• Pedro0703

  Data Quality: 1 star

  Mentor

  • Sex: F
  • Age: 33y
  • Organ: Kidney(3)

  Quality of Life:

  • Social: None
  • Mental: None
  • Physical: None

  1. Kidney : 32y Transplanted
  2. Kidney : 19y Transplanted
  3. Kidney : 9y Transplanted

• 
• by Pedro0703
• See Pedro0703's full Mycophenolic acid history

Purpose: Transplant rejection prevention (Started Aug 01, 2008)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 28, 2010	180 mg Daily	Major	None	Always	Not at all

Date

Jun 28, 2010

Advice & Tips

I was switched to Myfortic because I was taking cellcelpt and a biopsy showed cellcept colitis, it was aweful. I was taking 1000mg of that twice a day. Now on the myfortic, my Nephrologist started me on a low dose and it turns out that my labs stayed great on that low dose, so now I take 1 tab of 180mg twice a day and I have less pills. I have had no problems with this drug.

Cost

< $25 monthly

• 0 helpful marks

• Miss Meg Will

  Data Quality: 1 star

  • Sex: F
  • Age: 25y
  • Organ: Heart

  Quality of Life:

  • Social: None
  • Mental: Mild
  • Physical: None

  1. Heart : 7y Transplanted

• 
• by Miss Meg Will
• See Miss Meg Will's full Mycophenolic acid history

Purposes: GVHD (Graft Versus Host Disease) and Transplant rejection prevention (Started Nov 11, 2007)

Date	Dosage	GVHD (Graft Versus Host Disease) Perceived effectiveness	Transplant rejection prevention Perceived effectiveness	Side Effects	Adherence	Burden
Nov 11, 2007	720 mg Daily	Moderate	Moderate	Mild	Always	A little

Side effects:

Nausea and vomiting

• 0 helpful marks

• hunnybird

  Data Quality: 3 stars

  Mentor

  • Sex: F
  • Age: 52y
  • Organ: Kidney

  Quality of Life:

  • Social: Moderate
  • Mental: Moderate
  • Physical: None

  1. Kidney : 3y Transplanted

• 
• by hunnybird
• See hunnybird's full Mycophenolic acid history

Purpose: Transplant rejection prevention (Started Jun 06, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 16, 2011	720 mg Daily	Major	Moderate	Always	Somewhat

Side effects:

Cloudy thinking, Forgetfulness, Diarrhea

• 0 helpful marks

• dazzler57

  Data Quality: 1 star

  • Sex: F
  • Age: 56y
  • Organ: Kidney

  Quality of Life:

  • Social: Mild
  • Mental: Mild
  • Physical: Mild

  1. Kidney : 10y Transplanted

• 
• by dazzler57
• See dazzler57's full Mycophenolic acid history

Purposes: Transplant rejection prevention and Kidney transplant rejection and organ removal (Started Feb 01, 2010)

Date	Dosage	Transplant rejection prevention Perceived effectiveness	Kidney transplant rejection and organ removal Perceived effectiveness	Side Effects	Adherence	Burden
Jan 01, 2011	720 mg Daily	Slight	Slight	Severe	Sometimes	Very

Side effects:

Sick to my stomach, Diarrhea

Date

Jan 01, 2011

Advice & Tips

I am having extreme difficulty with this medication. In the middle of 2010, it attacked my uterus giving me so much bleeding and pain I had to have it removed. Doctors say that is not a side effect of this medication, I beg to differ. I still have much trouble with it causing extreme puking and Diarrhea always beginning with these rotten egg burps. My doctors say there is nothing else they can give me. I need to look into other doctors now. No benefits for this medication for me. It impacts my life badly.

Cost

$200+ monthly

• 0 helpful marks

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