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Riluzole Treatment Report

Category: Prescription Drugs

Most Popular Types: Rilutek

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Generic Name: Riluzole

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94 patient evaluations for Riluzole

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 10, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 08, 2010 200 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Nov 08, 2010
Advice & Tips
marked reduction in fascics since moving to 100mg twice daily, although leg strength continues to decline.
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 15, 2010 50 mg Daily ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 08, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 12, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 12, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 05, 2010 50 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Jun 30, 2010 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 12, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tiredness
Date
Jun 30, 2010
Advice & Tips
I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost
$25-49 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 16, 2000)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 30, 2010 100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 18, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Fatigue (Started Sep 20, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Sep 03, 2010
Advice & Tips
Taken once in the morning and once at bedtime, about 12 hours apart. Unsure of effectiveness but disease has progressed slower than originally anticipated. I have been taking Rilutek since October of 2006. Currently purchasing under Medicare as a tier 4 drug. When in the doughnut hole the cost is approximately $985 per month.
Cost
$200+ monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 25, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 06, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 03, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 03, 2010
Advice & Tips
I don't have problems with Saliva so maybe it's working.
Cost
$25-49 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 17, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 19, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Aug 19, 2010
Advice & Tips
It is difficult to find a slot of time, two times a day, to take this medication without food.
Cost
< $25 monthly
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