Purposes:Muscular Dystrophy and Do not produce it on my own(Started Jul 01, 1994)
Date
Dosage
Muscular Dystrophy
Perceived effectiveness
Do not produce it on my own
Perceived effectiveness
Side Effects
Adherence
Burden
May 26, 2012
2970 mg
Daily
Major
Major
None
Sometimes
Somewhat
Date
May 26, 2012
Advice & Tips
i know i should take them but it is very hard. it has to be 3 tablets 3 times a day. they have to be kept in foil selves of 10. you cant put them in a pill minder because they dissolve easily.
i would have to carry them around to take them 3 times a day
primary carnitine deficiency syndrome is very scary
this is the only medication i have problems taking
Read about this in Poz Magazine, that our meds atrophy our bones and our hips will sometimes just fall apart without warning. I can still run across the street so I guess it's working.