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Dalfampridine (4-AP extended release) Treatment Report

Category: Prescription Drugs

Most Popular Types: Ampyra

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See also: Fampridine (4-AP immediate release)

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53 patient evaluations for Dalfampridine (4-AP extended release)

Purpose: MS (Multiple Sclerosis) (Started May 20, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 15, 2013 10 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purposes: Walking problems and Fatigue (Started Oct 12, 2012)
Date Dosage Walking problems Perceived effectiveness Fatigue Perceived effectiveness Side Effects Adherence Burden
Feb 17, 2013 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 28, 2013 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 22, 2013 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Feb 17, 2013
Advice & Tips
I stopped taking Amprya because of an unrelated stomach ailment, which temporarily stopped all my oral medications. When I started taking orals meds again, I opted to skip the Ampyra as an experiment because . . . I spent several years learning to manage my secondary fatigue, which (I learned) is heavily connected to the use of my legs. In other words, when I don't use my legs (even when I can), I avoid substantial fatigue. So I've leaned using my legs is like driving an electric car with defective batteries and no energy gauge. Taking Ampyra is like installing better batteries (i.e., I walk better), but they are a different size, so my previous sense for running out of energy is all wrong. Not only do I run out of energy suddenly and unexpectedly, but the recharge time is longer. So . . . do I stay off Ampyra and live like I got used to? Or do I take Ampyra to walk better, but work to become accustomed to a new internal energy gauge? ahhh heck, this is MS, we're used to working to become used to constantly changing new normals :) I'll go back on it. Thanks for listening.
Cost
< $25 monthly
Date
Jan 28, 2013
Advice & Tips
I've been taking Ampyra for about 4 months, now. Its effects appeared slowly and gradually. I asked my doc last week about stopping it because I didn't think it was helping much, even though my PT scored my walking better (no longer a fall risk). He said he'd rather I just skip some doses to see; so I did. I started noticing a difference within a few hours of missing a dose. After skipping two doses in a row then falling, I started taking it again. I haven't fallen since starting Ampyra; my balance is definitely better with it. So are my bowels; mine have been mushy and frequent for ages; taking fiber helped, but with Ampyra my bowels are near normal again without the extra fiber (the constipation side effect of Ampyra seems to be helping me).
Cost
< $25 monthly
Date
Jan 22, 2013
Advice & Tips
Firmer Stools is an unexpected positive effect. My wife and PT both say my walking is better since I started taking Ampyra. I do notice improvement but only very slight. Without Ampyra my walking ability gradually deteriorates the more I walk. With Ampyra, my walking ability stays stable while I walk, but then suddenly gives out, and my legs feel like their veins are full of diluted menthol. So Ampyra helps make my walking better while I'm walking, but it does not help me walk longer. Is it worth taking? I haven't decided yet.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Improve mobility and MS (Multiple Sclerosis) (Started Dec 21, 2012)
Date Dosage Improve mobility Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Jan 09, 2013 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 09, 2013
Advice & Tips
So I could not sleep at all the first nigh but that improved every day. My sleep is totaly back to normal now. I am walking MUCH better and have been playing Hacky Sack with my two sons! I'm no where near 100% but my balance have really improved and I feel much better going up and down stairs. I would deffinetly ask you Dr. about this med and give it a try.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Walking problems and MS (Multiple Sclerosis) (Started Dec 15, 2010)
Date Dosage Walking problems Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Oct 22, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Mar 28, 2012 20 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Oct 14, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
May 16, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Feb 07, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Jan 24, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 22, 2012
Advice & Tips
No change really
Date
Mar 28, 2012
Advice & Tips
I have been having low back probbles that is affecting my left leg and hip from nerve compression in L4 and L5 . This has caused a lot of pain and makes walking a real challenge.
Date
Oct 14, 2011
Advice & Tips
Not as stiff, but still do not walk very well. Working to improve right leg stength aaitnd gait
Date
May 16, 2011
Advice & Tips
I find I have less stiffness, and leg pain. My foot drop is slightly improve. Doing a little more exercise, on Recumbent bike.
Date
Jan 24, 2011
Advice & Tips
I seem to be more achy in lowr back and legs, but am walking faster
  • Icon_thumb_on 2 helpful marks
Purposes: Also increase in energy and MS (Multiple Sclerosis) (Started May 01, 2010)
Date Dosage Also increase in energy Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Sep 27, 2012 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 14, 2012 10 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 23, 2010 10 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 09, 2010 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Lightheadedness, Constipation, Dizziness, Insomnia
Date
Sep 27, 2012
Advice & Tips
It is immediately obvious when I have gone too long without taking a pill - my leg drags and my foot drops. Sometimes I can't wait the full 12 hours and I have a very tough time if I sleep too late and too much time goes by.
Cost
< $25 monthly
Date
Jun 14, 2012
Advice & Tips
I started on 5/1/10 and had immediate benefits. However, after about a year it stopped working for me and things became worse. I stopped the pill on 12/13/11 and things went rapidly downhill. I started again 5/13/12 and immediately things improved. It seems to work if you take breaks from it.
Cost
< $25 monthly
Date
Jun 23, 2010
Advice & Tips
The prescribed dosage is two 10 mg tablets per day, spaced 12 hours apart. This is too much for most people, and the second tablet is wasted because you're mostly sleeping at that time, so most people I know take one tablet daily and do fine with that. Even that is two much for some, so they have gone to a compounding pharmacy where they can get ground to their specification, ie just 5 mg. This is a time released drug, so it cannot be cut in half.
Cost
< $25 monthly
Date
Jun 09, 2010
Advice & Tips
It's great - I love it.
Cost
< $25 monthly
  • Icon_thumb_on 3 helpful marks
Purposes: Chronic Fatigue Syndrome and MS (Multiple Sclerosis) (Started Jul 01, 2012)
Date Dosage Chronic Fatigue Syndrome Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Jul 18, 2012 1 other Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purposes: MS (Multiple Sclerosis), Improve mobility, and Improve flexibility/strength (Started Mar 31, 2010)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness Improve mobility Perceived effectiveness Improve flexibility/strength Perceived effectiveness Side Effects Adherence Burden
Jun 24, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_1Led_defaultLed_defaultLed_default NoneNoneNoneNone NeverNeverNeverNever Not at allNot at allNot at allNot at all
Mar 04, 2011 20 mg Daily ? ? ? ? MildMildMildMild UsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at all
Feb 02, 2011 10 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_default ? Led_efficacy_1Led_defaultLed_defaultLed_default SevereSevereSevereSevere UsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhat
Nov 08, 2010 10 mg Daily ? Led_efficacy_2Led_efficacy_2Led_defaultLed_default Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways VeryVeryVeryVery
Sep 16, 2010 20 mg Daily ? Led_efficacy_2Led_efficacy_2Led_defaultLed_default Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default ModerateModerateModerateModerate UsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhat
Apr 27, 2010 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Side effects:
Balance problems
Date
Mar 04, 2011
Advice & Tips
After a four week break I started on Ampyra again. When I did not take the meds I slowly got weaker, and tired more quickly. Now I have more energy and strength. I'll see how it goes ....
Cost
< $25 monthly
Date
Feb 02, 2011
Advice & Tips
I stopped taking Ampyra for now to see how I will do without. The compromised balance that I have when using it became more of a problem as time went on. The increased stamina and energy did no longer outweigh my balance problems.
Cost
< $25 monthly
Date
Nov 08, 2010
Advice & Tips
I felt that I was overmedicated with 2 doses of Ampyra per day. I tended to forget the evening dose 3-5 evenings per week. I talked to my neuro and she advised to experiment with 1 dose a day. I did that slowly, alternating 20 with 10 mg for a few weeks. Now I use 10mg/day and doing better. My balance has improved, and my fatigue is still gone.
Cost
< $25 monthly
Date
Sep 16, 2010
Advice & Tips
The summer wiped out most of the effects of Ampyra. Some of the effects of the drug that arestill there are: My fatigue symptoms have practically disappeared. My balance has worsened quite a lot, however. I am trying to find the right dosage of ampyra. Twice a day seems to be too much - at least twice a week I forget the evening dose, because I feel well. Now that the summer heat and humidity are (ALMOST) behind us, I hope that the initial improvements I experienced will pick up again.
Cost
< $25 monthly
Date
Apr 27, 2010
Advice & Tips
I have been on Ampyra for 4 weeks now, and the effects are stunning. I am rediscovering sensations and make movements I forgot I could do. I walk much better, I can lift my knee, and my footdrop is less. My right hand does not get tired as soon as before. And, for the first time in years I have sensation in the soles of my feet!! This is making a huge difference in my quality of life.
Cost
< $25 monthly
  • Icon_thumb_on 17 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 20, 2012 20 other Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Jun 15, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 19, 2012 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jun 19, 2012
Advice & Tips
I set my alarm on my cell phone to make sure I take a pill every 12 hours. I walk much faster since I started taking Ampyra. It helps me.
  • Icon_thumb_off 0 helpful marks
Purpose: Walking problems (Started May 26, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 05, 2012 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 27, 2010 20 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 05, 2012
Advice & Tips
stopped taking due to being wheelchair bound. when i was walking a few yrs ago, i did notice that it helped. definitely noticed a difference without it. After baclofen pump was placed, couldnt rely on tone to stand or walk, so have no need for it
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
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