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Gilenya Treatment Report

Category: Prescription Drugs

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Generic Name: Fingolimod

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7 patient evaluations for Gilenya with a side effects rating of NoneNoneNoneNoneNone

  • Mikhali
    Sex: M
    Data Quality: 2 stars
    MS: 4 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
  • 29088-thumb
  • by Mikhali
  • See Mikhali's full Gilenya history
Purpose: MS (Multiple Sclerosis) (Started Aug 02, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 14, 2012 500 intl units Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 14, 2012
Advice & Tips
Only seemed to make my relapse worse. Probably bad timing.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • Tigertroll
    Sex: F
    Data Quality: 2 stars
    MS: 8 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 24432-thumb
  • by Tigertroll
  • See Tigertroll's full Gilenya history
Purpose: MS (Multiple Sclerosis) (Started Oct 15, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 10, 2012 0.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jul 10, 2012
Advice & Tips
I've had just one flare-up that lasted more than a week (felt like spiders crawling on me) in over a year on Gilenya. This is a HUGE improvement for me! Historically, I have had a new episode every 8-12 weeks, and was on a steroid regimen to calm it down at least twice a year.
  • Icon_thumb_on 2 helpful marks
  • arthurj
    Sex: M
    Data Quality: 2 stars
    MS: 37 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 3638-thumb
  • by arthurj
  • See arthurj's full Gilenya history
Purpose: MS (Multiple Sclerosis) (Started Apr 14, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 09, 2012 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • Rick N
    Sex: M
    Data Quality: 3 stars
    MS: 24 yrs
    Mentor
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: severe
  • 29865-thumb
  • by Rick N
  • See Rick N's full Gilenya history
Purposes: MS (Multiple Sclerosis) and to slow down progression (Started Nov 11, 2011)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness to slow down progression Perceived effectiveness Side Effects Adherence Burden
Apr 07, 2012 0.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Feb 06, 2012 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 17, 2012 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 07, 2012
Advice & Tips
I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost
$25-49 monthly
Date
Feb 06, 2012
Advice & Tips
I like this treatment as opposed to daily shots.
Cost
$25-49 monthly
  • Icon_thumb_on 1 helpful mark
  • jmartell
    Sex: F
    Data Quality: 2 stars
    MS: 11 yrs
    Type: Relapsing-Remitting
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • 28936-thumb
  • by jmartell
  • See jmartell's full Gilenya history
Purpose: MS (Multiple Sclerosis) (Started Jan 14, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 22, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 24, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_on 2 helpful marks
  • emgaston
    Sex: M
    Data Quality: 2 stars
    MS: 10 yrs
    Type: Relapsing-Remitting
    Sensation: None
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 33683-thumb
  • by emgaston
  • See emgaston's full Gilenya history
Purposes: to slow down progression and MS (Multiple Sclerosis) (Started Nov 07, 2011)
Date Dosage to slow down progression Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Nov 07, 2011 0.5 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Nov 15, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 01, 2011 0.5 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_on 2 helpful marks

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