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Gilenya Treatment Report

Category: Prescription Drugs

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Generic Name: Fingolimod

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1 patient evaluation for Gilenya with a burden rating of VeryVeryVeryVeryVery

  • azcharli
    Sex: F
    Data Quality: 2 stars
    MS: 18 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 18196-thumb
  • by azcharli
  • See azcharli's full Gilenya history
Purpose: MS (Multiple Sclerosis) (Started Dec 19, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 19, 2011 0.5 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Date
Dec 19, 2011
Advice & Tips
After that first dose I was shuffled off to the ER with a low heart rate. After 5 trips to the ER with blood red eyes and severe pain They finally diagnosed me with optic neuritis... DUH!! Yes they do blame Gilenya and yes my eyes are damaged. The Doctor told me that the drug is out of my system but it damaged some of my eye nerves. He also told me that it's not permanent and my nerves will repair themselves. IN TIME!! Bullshit. I am now a new statistic.
Cost
$50-99 monthly
  • Icon_thumb_on 3 helpful marks

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